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I don't have this but my best friend has had it. She like you got rushed in to hospital with pains and it resulted in her having both ovaries shelled out their outer skin so to speak, one ovary had a cyst the size of a melon. Months later she went for her check-up scan and she had another cyst on one of the ovaries. So she had operation number two where the ovary was removed. She has been told by the doctor that if she wants a family, the sooner she starts trying the better. However, she's not quite ready for it yet, she's told me, but I think after I get married in June next year she may then start trying.
I'm really sorry you have to go through all that! I know there are a few bees on here with PCOS and some with endo. Just know that you aren't alone! It may take a little longer for you to conceive and you will most likely need fertility medications. But there are a lot of couples who have to use them to have a baby.
Check out this thread I started. There are a few of us talking about our situations and the kind of treatments we are going through.
The board @sweetkate started has been awesome. There are several of us with PCOS and it's so helpful to hear what everyone else is going through. And to be able to vent without being told to "just relax"!
I just saw this thread, sorry! I was just diagnosed with PCOS as well. I think I'm on the more fortunate side of PCOS and I ovulate still, just not as frequently (lately I've been getting a period about every 50-60ish days). Since it was recently decided that we probably won't be TTC for another 3 years (which makes me very sad) I decided to go back on birth control to regulate everything. I asked the doctor if waiting will impact my chances of conceiving and she said it will pretty much be the same. If it's going to be difficult, doing it now vs 3 years from now won't make a difference. I don't have endo though so I don't know how that plays into it.
@JoesWifey: Sorry to hear you were just diagnosed with this! That is good though that your doc told you waiting should be okay for you. For me it is more the endo that is the scary waiting game. It continues to grow but you never really know where so you just always have the chance of it growing somewhere that will impact your ability to conceive. Since this post my husband and I have talked and we decided that ideally our longest wait time will be a year and a half to start trying.
I have both PCOS and endo. I know both have a high chance of miscarriage and even though I have been on BC to help with my periods, I have only had 2 this entire year (and last year was similar) and we don't want to go through IVF or anything like that so for us we've had to take a step back and start thinking that it may not happen for us and if it doesn't happen for us, then we look at adoption, which I've always wanted to do anyways.
I was diagnosed with PCOS about a year ago. I'm off my BC right now (have to be off of it for my bloodwork) and haven't seen AF in a few months. It's awkward that, as someone with fertility issues, I MISS my period more than I ever thought possible. :/
We aren't "ttc" but because of the condition... we aren't NOT ttc either. I've been off BC for a few months (almost 6) and had my period naturally once, but we use condoms because we would "rather" be married, we are just in a place because of this that kind of makes it less important WHEN and more important that we DO. It puts you in an awkward position on that. We don't get married for another year + a few months (I know, we're the long engagement couple) but when we do get married, we've agreed that we will stop using condoms as well.
I'm open to any questions you might have, you can message me or whatever if you like. I've done a fairly decent amount of research. Just wondering...did they show you (or even do?) an ultrasound of your ovaries? I hated seeing mine. It somehow solidified it to SEE the issue, though it did HELP.
I have PCOS that they found while they were doing my C-section delivering my son. My first period after I had him I was in the ER with the same MAJOR pain too. My periods havn't been the most normal since they found the cysts. My husband and I TTC in June and was successful. I thought for sure that I wouldn't be able to concieve easily. Before TTC we had quite a few "opps" sessions where we didn't use any protection. All those times I never got pregnant. It might take a little longer but don't get too frusterated! It IS still totally possible!!!!
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Well I was thrilled in my last post for a quick second. I was talking about how we decided to start TTC in a year. Well 4AM rolls around today and I end up in the ER with excruciating pain, passing out multiple times... I was kept there all day today and according to my ultrasounds I have PCOS on top of my endometriosis. Apparently I had cysts rupturing and that's where all of the pain came from. So I am hoping that my husband will be open to a very serious conversation about possibly starting to try much sooner.
Any other bees out there with this? Are you TTC? I don't even know very much about it all yet. Just looking for some kind of input.