Possible heart abnormalities on anatomy scan… Anyone else?

posted 3 years ago in Pregnancy
Post # 2
Member
9137 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

yougotme:  Try to focus on the idea that if they diagnose a problem now then something may be able to be done about it before it gets worse and surgery (if necessary) wouldn’t even be a memory for your child.

Post # 2
Member
9528 posts
Buzzing Beekeeper
  • Wedding: August 2013

DON’T PANIC.

I haven’t been pregnant but I work in genetics, so I’ve had many patients that had real or possible heart anomalies on ultrasounds. I think it’s really good that you’re not Googling. Honestly, at this point it could be nothing. If it is something, it could be dozens of different things. If you go researching now, you’ll just be spinning your tires. 

You say you have an appointment next week – is that for a fetal echocardiogram? That’s probably what you need. If that is still unclear they might want to consider a fetal MRI, though these aren’t really standard of care yet. 

Try to wait for the additional testing. If it’s negative, then you don’t have anything to worry about. If it finds something, then at least you should have some more information to go from. And you’ll be at the doctor’s office, so you can ask questions. I would definitely take someone with you to the appointment and maybe two people. Can your husband go with you? Do you have a friend who could come along to take notes?

There’s really nothing your can do right now except try to keep calm and relax. I know that’s easier said than done. But stress isn’t good for you or baby. So take deep breaths and try not to spin your thoughts through the “what if”s. 

Post # 5
Member
9528 posts
Buzzing Beekeeper
  • Wedding: August 2013

yougotme:  Ah. It sounds like they’re sending you to a Level II ultrasound with a Maternal Fetal Medicine doc. That’s good. If they really thought there was something going on, they would have sent you directly to a fetal echo. The Level II Ultrasound is a full anatomy scan, not just the heart, but the MFMs have special training in fetal anomalies. They’re absolutely the people you want to see. I know it’s scary, but just try not to freak out while you wait. 

Post # 6
Member
9137 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

yougotme:  The only thing I found that seemed relevant was a study showing that 2D ultrasounds are not as accurate as 3D ones at detecting heart issues.  So it’s probably just a precaution and you’ll get good news with a more sophisticated test being read by a specialist.

Post # 7
Member
509 posts
Busy bee
  • Wedding: May 2012

I have no experience with this and and even though i knpw the worry and stress that come with pregnancy and motherhood, I still cannot begin to imagine how you feel. You’ve gotten some great advice and would totally encourage you to keep off of dr google. Wishing you all the best sweetie. Hugs.

Post # 8
Member
856 posts
Busy bee
  • Wedding: August 2012

yougotme:  Something very similar happened to me during my first pregnancy. I did end up getting a more in depth ultrasound and it turned out everything was fine. This is very common so do not panic. If they do find something then they will be able to ensure that you deliver in the right hospital where there are specific doctors that can be on hand during delivery. My daughter was born 100% healthy. 

Post # 10
Member
856 posts
Busy bee
  • Wedding: August 2012

yougotme:  We found out at the scan. The high risk dr met with us immediately afterwards to discuss it with us. It was so relieving. The days leading up to the in depth u/s were rough so I definitely know how you’re feeling right now and my thoughts are with you. Try to focus on something else and relax (easier said than done, I know!) Its more likely than not that all will be ok.

Post # 11
Member
3119 posts
Sugar bee
  • Wedding: August 2012

While it didn’t happen to me, I know that this is not uncommon and more often than not, turns out completely okay. More than a few of the 30+ girls in my August moms group had some sort of abnormality show up during the anatomy scan and I can’t think of one where it actually has been an issue. And if it IS an issue, then you’re finding out at the very best possible time – when you can proactively treat the issue to the best possible outcome. Keep your spirits up!

Post # 13
Member
486 posts
Helper bee
  • Wedding: October 2012

Glad to know baby is well. My sister in law is expecting and also at about the 25 wk mark was told there was possible hypertrophy of the right ventricle. They did further testing and it truly was nothing. Apparently it was a combination of her being very thin and the technician using a new machine that was more clear than they’re used to! Watch out for those new machines, hehe.

Post # 14
Member
1132 posts
Bumble bee
  • Wedding: October 2012

Yes, we had an issue during our anatomy scan. It appeared there was a space near baby’s adrenal gland, which could have been either a tumor or a hematoma (harmless bruise). Also, one of baby’s kidneys was slightly enlarged, which could have meant she wasn’t processing water.

There was nothing that could be done in utero, so we just had to wait it out. We went for 2 super detailed follow up ultrasounds, and then a final one when I was about 32 weeks. The 32 week one showed the spot had DISAPPEARED. Baby was 100% fine. It was probably just a hematoma that went away–in the “old days” before multiple ultrasounds at every stage, we probably never would have known about it. Instead, we got several months of worry and tons of medical care for ultimately nothing. 

She remains perfectly healthy–her kidneys work great, knock on wood. So I think that though Google will show you worst case scenarios, I think a lot of times funky things just happen in the womb as baby is developing. Ultrasounds are okay, but they are not 100% reliable and we cannot perfectly see or understand everything they show. Hope everything is fine for you!

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