Post # 1
Hey ladies, I really need some advice here. This will probably be long, but please bear with me!
I was diagnosed with PCOS about 2 years ago. My gyno also suspected endometriosis but she never tested for it exclusively. I am on Yaz for birth control and to help control my symptoms, but every month is still agony. I am in so much pain and usually have a couple of days off work. I have tried skipping the sugar pills but I end up spotting near the end of the second pack, so I have to go monthly.
For a couple of months I have been getting stabbing pains in where I imagine my ovaries would be. It is usually on the right side but sometimes happens on the left. These pains come and go a few times a day. This didnt bother me so much, but for the past 2 weeks I have been bleeding after sex. Not a whole lot of blood, and mostly just mixed in with cm, but enough to me me feel yuck (and a bit period pain-y). This lasts for a day or to. My breasts have been incredibly sore as well but I dont know if that has anything to do with either condition.
Does this sound like it could be endometriosis? Or something else? I have booked an appointment with my gyno, but its not for a while and I am freaking myself out. I am terrified of not being able to have children and I already worry enough having PCOS.
I was also advised by a gp to stop taking birth control pills because I suffer migraines, but I suffer so much with my period that I really need the flexibility of being on the pill as I have to plan ahead when I can get my period (give or take a few days).
Please help me!
Post # 3
@kaleidoscope: I don’t have any experience with either PCOS or endomytreosis, but I will say that scaring yourself before you know anything for sure is no good for business. Take a deep breath and relax! Can you call your doctor and get in any sooner? Express your concern? You can also ask to be put on a list to be called in early if there’s a cancellation which often works as well.
Take some deep breaths hon. You don’t know anything for sure yet and jumping to conclusions will just unnecessarily stress you out.
Post # 4
Thanks for your reply 🙂 I will be calling her today to try and get in sooner. I know I shouldn’t stress until I know for sure, but between this, other health issues and wedding planning, things are a bit crazy!
Post # 5
- Wedding: September 2014 - Jacksonville Inn
I have PCOS and endometriosis, I’m actually having a hysterectomy next week because of my endo. The pain around your ovaries you are describing could be from either condition. If I have alot of small cysts on my ovaries I do get that type of pain. But, I also get that type of pain when I have adhesions from my endometriosis. If your Dr. suspects you have endo I would push her to formally diagnose you. Endometriosis can affect your fertility, so if you plan on children you need to know. I was diagnosed 10 years ago through a simple laproscopic surgery that took about an hour. They also removed all my endometriosis that was there at the time. Most people are back to themselves after a week, it’s a very simple procedure. I hope you will call your Dr. and I hope you feel better!
Post # 6
- Wedding: May 2014 - The Crystal Ballroom at The Rice Hotel
I was diagnosed with PCOS when I was 18. After going on the pill + metformin my periods started up and with a lot of hard work I started to shed some pounds. It was probably a couple of months later that I started having intense pain on my right side. My gyno was an idiot and ignored it, so my mom signed me up for a scope, then we returned the results to let her explain. The gyno was flustered with us for doing so, but still she went into an explaination of when my AF was due that my cyst were swelling causing the intense pain. She perscribed me pain meds to use during the week of swelling. I used all 3 for a few more months and gradually noticed I no longer had the pain. This could have been due to weght loss or the meds. However, I am back up to my orginal weight, off all meds, and battle all my PCOS symptoms except for missed periods. Weird. Anyways, I do not have endo and still suggest you continue your plans to talk with your doctor. Just wanted to throw my 2 cents in about having the same pain.
BTW, as for my pain soley on the right side, it seems that is my main affected ovary. My left does not bother me as much.
Good luck at the appointment!
Post # 8
Sorry to hear you’ve been having a tough time. From my knowledge, it does sound very similar to endometriosis, but of course, I am not a doctor and cannot give you a diagnosis.
Regarding migraines and BCP, I feel your pain. I suffer from acute migraines when I am on BCP, and my doctor thinks there was a link between me being on BCP and developing gallstones. Having PCOS, pretty much the only way to control the disease is to be on BCP, or Metformin. Both of which my body cannot handle. It definitely makes you feel like you’re between a rock and a hard place, huh?