Weddingbee boards

Hmmm....I have never heard that baby seizures are common?  My background is in adult critical care---primarily neurosurgical ICU/trauma---and seizures are never a good thing. 

I hope the little guy is getting the best care and my prayers are with the family.  I can't imagine how frightening it must be to have a sick child. 

Oh gosh. My nine year old daughter has had a seizure disorder since she was a baby. It so scary... this family is definitely in my thoughts. 

Thanks so much for all of your prayers and good vibes, ladies! I really appreciate them!  Baby Shortcake is doing well.  She has silent reflux, but had that before her seizures.  She has undergone extensive testing, but they still don't have any definite answers.  She wasn't sick, so infection or febrile seizures weren't the cause (she had two lumbar punctures to rule out infection and metabolic disorders).  They ruled out spina biffida occulta, as well as a brain birthmark, which were their earlier guesses. She's been on phenobarbital now to control her seizures, but is now weaning off of it.  They were planning to do further testing for neuroblastoma (most common kind of childhood cancer), and for glut 1 transport deficiency disorder, but those tests have been put on hold because she has grown so well (she's not even 3 months old and she's wearing 9-12 month clothing!), is hitting all of her developmental milestones, and has not had any more seizures or otherwise strange behaviour.  She will continue to be followed by a team of neurologists, as well as her pediactric specialist for her reflux (unrelated to her seizures), but we have faith and are confident that she will grow up just fine.  You can follow our journey on our blog (http://www.ourlittlehaus.com), which is also where the last of our wedding recaps are being posted. Thank you again!