Post # 1
So DH and I will be TTC starting in July But I am really nervous for a number of reasons. For starters i have been on bc pills since 16 (now 33) and i am worried that once i get off ill get the pcos diagnosis. Before i started bc pills my cycle was always 38 days (one symptom). My sister was the same and now that she got of bc pills her doc just diagnosed her with mild pcos. But even more worrisome is that im currently on immune-suppressing drugs that i have to stop because it would damage a baby but im so afraid of flares and will likely be put on prednisone again at least until im pregnant. Im worried with my age and possible pcos that it might take forever and ill be miserable with an immune flare and just trying to get by on prednisone.
Are there any bees that were on prednisone while pregnant? What was the dose? Did your doctor have any alternate treatments for during pregnancy?
Post # 2
My mother has experience with prednisone & pregnancy. She was diagnosed with Lupus when she was 23 (kidneys were failing) & at 28 she found out she was pregnant with me (already had one kidney transplant). She was taking prednisone since her diagnosis and throughout her pregnancy with me. Her dosage was 30 milligrams a day and her doctors monitored the pregnancy weekly. There weren’t any alternate treatments for her. I hope this information helps & good luck with everything!
Post # 3
What are you taking the prednisone for? Can you take something else instead to keep your immune system in check? I’ve always been told hormonal BC is not great to take if you have autoimmune issues, but it probably has kept your pcos at bay!
Post # 4
adalm03: hey sorry for the late reply, i thought the site alerted you if you got replies to your thread!
thank you very much for your story. Right now the plan is for me to switch to prednisone this week and get off as soon as i get a bfp.
Post # 5
Preppy_Bee: see above comment for why this reply is so late. sorry! I am on a worse immune suppressant now and switching to prednisone as the least bad. Prednisone is my last chance but it is still not the greatest. My doctor said to get off as soon as preggers but can pulse them during pregnancy if absolutely necessary. My hope is that like most ppl, once pregnant my immune system will suppress naturally to support bebe darcy.