Post # 1
This might be a long shot, but I’m posting to see if there are any Bees currently pregnant or who already have a child, and have a bleeding disorder.
I was diagnosed with a bleeding disorder about 8 years ago. It’s something I’ve learned to live with. I’ve always had to take medication during my period, or prior to getting a tooth pulled or any major surgery, to make sure I don’t bleed out.
I’m now 17 weeks pregnant. Being pregnant and with a bleeding disorder puts me at high risk. I’m waiting to get into the high risk clinic and also see my hemotologist. Having a bleeding disorder could possibly put my baby at risk, but also myself when it comes time to delivery.
I’ve been googling and trying to find other moms and moms to be, who have one and find out how they’ve dealt with it during pregnancy and then delivery. I’ve found some good stuff, and other pretty scary stuff (like the mother hemorrhaging after the delivery and needing several transfusions).
Does anyone have anything experience with it that they could share?
Post # 3
Hi! I had my baby a month ago and i have a bleeding disorder myself (my blood takes a super long time to clot amongst other things) I was high-risk all throughout my pregnancy which meant many appointments with my hemotologist and a delivery plan was put in place pretty early on (in case of early labor etc) I ended up being induced for other reasons but staff at the hospital knew of my condition and of the delivery plan, so while i was in labor I was put on a drip to with medicine to help in case i did bleed alot, and they had blood product on standby in case they needed it urgently. I wasn’t allowed an epidural because of the risk of bleeding in the spinal fluid so i did it med-free, and in the end (because i think of the medication i already had on-board) my bleeding was very minimal! (blood products weren’t needed) So even though we repeatedly talked about the worst-case scenarios – it all turned out better then expected. i then stayed in hospital for 4 days post-delivery where my bleeding was monitored and i was given more medication to help. We are now waiting for an appointment with the hospital for my daughter to find out if she inherited my bleeding disorder.
Good luck with your pregnancy! it was certainly a scary time because I thought my bleeding disorder would be a massive issue but in the end it wasn’t.
Post # 4
I work in haematology and it really depends what type of bleeding disorder you have and the severity of it. You’d be surprised how common bleeding disorders are, even among pregnant ladies. In fact we had a woman with von willebrands disease recently undergo an elective c-section. We had been monitoring her throughout her pregnancy and she didn’t need any blood products at all.
Post # 5
@Mrs D: Thanks for your response. I’m glad everything turned out well for you. Congrats on your little one!
@Sibiohan: Thanks for responding too. I also have VWD. The idea of a c-section makes me a little nervous, but it’s good to know there’s medications in place that make it easier on the mom.
I remember meeting a lady with a few years back who said when she delivered her son, she needed several transfusions and bled for days. Somehow it’s those scary stories that stick with you, but it seems like there’s a lot of women who manage just fine in the end. I appreciate both you ladies taking the time to respond. It certainly makes me feel a bit better.