(Closed) Pregnant Bees: Trisomy testing?

posted 5 years ago in Pregnancy
Post # 3
Member
10367 posts
Sugar Beekeeper
  • Wedding: September 2010

Why don’t you call your insurance and ask what they cover, so you can take that variable out of the equation?

We will test regardless. We believe if we can’t afford the tests, we shouldn’t be having a kid, honestly. It’s not that expensive.

Post # 4
Member
862 posts
Busy bee
  • Wedding: June 2012

There was lot of talk on July Babies about this – people not having it covered and deciding whether or not to do it, etc. I think in general, even if you wouldn’t terminate if the baby had a positive test, the 12 week ultrasound elicits valuable medical information. Babies with chromosomal abnormalities need to be monitored more carefully etc. for things like heart conditions. Positives don’t mean that you baby for sure has a chromosomal abnormaility, it just increases the likelihood of it. From the testing that they offer here in Canada, the best diagnosis they get with the standard testing is that there is a 1 in 9 chance, which still isn’t even that high.

I don’t know, if faced with having to pay for it or not, what I would do, but the test does give the doctors more information in terms of pregnancy risk! Good luck in making the right choice for you and your little one!

Post # 6
Member
3982 posts
Honey bee
  • Wedding: July 2011

My insurance doesnt cover it and even if it is positive, the only way to prevent the child being born with it is termination. Not an option for me. Finding out now wont change how much I love my child or how I care for it. So we aren’t bothering with it. Even though our OB wad pushing for it too.

Post # 7
Member
862 posts
Busy bee
  • Wedding: June 2012

@DrTeeth:  Other bees who have researched it have said it’s in the $600-900 range, depending on the clinic!

Post # 9
Member
818 posts
Busy bee
  • Wedding: July 2013

We didn’t with our first but did with our 2nd and I have to say I probably wouldn’t opt for it if we were planning on a 3rd. The reason being that we would not terminate and the high rate of false positives would just freak me out the whole rest of the pregnancy if I received a “high risk” number. Plus the more evasive tests also have a risk of miscarriage which also freaks me out. Had I known all this before I would not have had it with the 2nd either. Got results last week that all is good but if not I would have been so worried the rest of the pregnancy.

Post # 10
Member
419 posts
Helper bee
  • Wedding: June 2012

i didn’t get one. i would hate to have a false positive. 

Post # 11
Member
5548 posts
Bee Keeper
  • Wedding: December 2011

As someone with more than a couple friends and family members who had false “positives” like to the point the ob suggested termination who ended up with 100% healthy normal kids I not one for tests that wouldn’t change the outcome of your pregnancy. 

Eta: Wait, if this is the ultrasound kind of test then I would get that, not an ammnio which is invasive. The ultrasound is low risk  

Post # 12
Member
7904 posts
Bumble Beekeeper
  • Wedding: March 2012 - Pelican Grand Beach Resort

Your insurance likely covers it. I have Medicaid and even they cover it. In my opinion, the best reason to get the testing done is that it’s often the only way to get crappy insurance to cover an early ultrasound. If we hadn’t done the NT scan, we wouldn’t have been able to see our baby until 18-22 weeks at the anatomy scan.

As for false positives, that’s kind of a misnomer. The test produces a result that say the liklihood that your baby could have one of these disorders, never that your baby does. You will get odds, like 1 in 5000, meaning 1 in 5000 people with these results will have a baby with Downs, etc. Based on those odds, you can decide whether you want an amnio or not to find out more. For us, the odds were so unlikely that the risk of an amnio was not worth it. No one, however, will make you have an amnio. It’s a serious procedure that puts the fetus at risk.

I was originally not planning to get the scan, but in the end we did it. One reason was the U/S, but the other was that knowledge is power and if we had a child with Downs we would definitely keep it but could use that time to prepare. DH’s brother is special needs, so we are well aware that planning and preparation would be a HUGE help. Plus, it’s useful for the labor and delivery team to know that they will be dealing with a special needs infant.

 

Post # 13
Member
1278 posts
Bumble bee
  • Wedding: March 2013

I worked for an OB for 6 years and cannot tell you how many women I saw with false positives almost abort their pregnancy because of it! Do the testing but IF AND ONLY IF a positive comes out take the recommendations and seek a perinatologist  for further testing immediately before making any decisions. 

Post # 15
Member
1278 posts
Bumble bee
  • Wedding: March 2013

I thought the trisomy test was bloodwork?

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