Post # 1
So ive been dealing with some serious blood issues for the past 2 years. 2 years ago on my birthday i found out that i had a pulmonary embolism that came out of no where. i spent 2 weeks in icu and was put on blood thinner to prevent me from having another….well that was 2 years ago and since then i have had 5 clots in the same lung. a few weeks ago i noticed the signs of me getting another clot. i was so afraid to say anything because i felt like if i didnt speak it out loud then maybe it would go away ( crazy and dumb i know) but the other night i woke and could not breath. my Fiance rushed me to the ER where sure enough we found out that i had a nother clot. i begged my doctors not to hospitalize me, im planning a wedding, we have a 5 year old son and i did not want to take off work. he promised to release me under 3 conditions. 1. i stayed over night to recieve and iv blood thinner, 2. i promised to take my med everyday ( a higher dosage) and lastyly and hardest.. i had to take a medical leave from work! so i agreed and have been home for 2 days almost…and i am going CRAZY!!!!!
im pretty sure i have cleaned every room in our apartment at least 3 times, im driving my wedding planner crazy becauase i email her at least 7 times a day, and my poor Fiance… lol im sure ive called him every hour since he has been at work. i guess the hard part of this is that i only get 2 weeks of paid sick leave….if this clot hasnt broken up by then then we go down to one income and although we could pay for all our bills with no prob…our wedding would be put on the back burner. the thought of this brings tears to my eyes…
In a strange way i feel guilty and cheated because i want to be able to enjoy this amazing and exciting time in my life with out having to worry about blood clot, needles, blood thinner, ect…but this is apart of my life now so its something that i will have to deal with..i guess. i really just need some encouragment bees. Sorry for the long rant! Are there any of you going through medical issues while trying to plan you r wedding? how do you handle it??
Post # 3
Gosh, I am so sorry to hear that. I dont have any advice for you, but you and your family are in my thoughts!
Us bees are here whenever you need to talk 🙂
Post # 4
Having to deal with a chronic illness is hard. Your blood clots are like someone having diabetes. It doesn’t go away. You have to take daily medication. You may have crises from time to time.
I believe the intent of your doctor telling you to be off work was that you would be getting some rest at home. It doesn’t sound like you are doing that at all.
One thing I have learned in my life is that a lot of energy is wasted in worrying about things and absolutely nothing is accomplished by it.
Why don’t you give your self permission to relax and not worry about things for at least a week and re- evaluate the situation then?
Post # 5
i think my hardest issue that im dealing with right now is that i have let this take control over my life for so long…for once i just want to enjoy being a normal 24 year old. but on another hand, i have a whole family that needs me so i cant just ignore whats going on. i have to take care of my self. but thank you so much ladies for the words of encouragment. you have no idea how much that means to me
Post # 6
Sorry you’re going through this.
I don’t have anything where I might be hospitalized but I do have to take medication for the rest of my life b/c I had my thyroid removed… even more so trying to start having kids.
I understand the wanting to take control of your life! I know that even having to take daily meds it feels sometimes like I’m on it’s schedule rather than mine… esp since i have to take it fasting….
Gosh I remember in the beginning, and even now sometimes, I would forget to take it and remember as soon as I’d sit down to eat!!! GRRRRRRR
You know though… taking everything you need to and relaxing now in this time off IS taking control of your life… b/c if you didn’t say anything or go to the dr. or take your meds then it would dictate your death…. rather you do what you need to and you tell that condition it can eat it and you’re going to Live!
((hugs)) for your frustration & hope for you getting well sooner rather than later 😉
EDIT:: Never let the financial stuff burden you and get you too frustrated.. Money is only money and more WILL come… Spend your time letting your body do what it needs too and let everything else take the back burner 😉
Post # 7
@runsyellowlites: thank you so so so so much…. i think i am def going to take this time out to just relax and do some wedding planning from my laptop
Post # 8
I’m sorry you’re going through this! I lost my job while we were planning our wedding, so I can relate to the feeling of “I just want to enjoy planning my wedding”! But sadly, life doesn’t stop, even if we are planning a wedding. I agree with the other Bees that you should try and enjoy the time off and relax and let your body heal. Don’t push yourself or you may end up taking time off for longer 🙁 Hope you feel better!
Post # 9
I’m so sorry you’re having to go through this. I was diagnosed with RA (rheumatoid arthritis) about the time my Fiance moved in with me, and started getting worse not too long before he propsed. I’ve spent the last 4 years trying to feel like my old self instead of an 80 year old, and even managed to come very, very close for a few months before our wedding.
I never thought that this is what my life would be like at 36, an endless string of drs appointments, blood tests, injections, changes in medication and feeling like I’m 80 some days (like I’m at least 70 the others). I understand your frustration. Some days all I want is my old life back. But this is my life, all I can do is live it the best I can, acknowledging when I need a break and taking advantage of the good times. That’s the control you can have, to live the life you are given to the very best of your ability.
Sometimes you can’t do what you used to, but that’s okay. Sometimes you can, and that’s precious. Make sure you lean on the people who are around you for support, they love you and want you healthy and happy. Healthy and happy is way more important than any wedding detail. Above all else take care of yourself, so rest, relax, and get better right now.
I wish you the best. Hugs.
Post # 10
1. You need to rest and stop stressing about planning your wedding next year. Your wedding isn’t worth losing your life for. Your doctor told you take medical leave so that you could relax! I don’t think he meant stress at home, clean every room, and email your planner 7 times a day.
2. LISTEN to your body! Don’t ignore it again. You could have DIED! You knew something was wrong and you ignored it! Next time you might be so lucky! No one is going to be annoyed with you or not believe you.
3. Start giving other people stuff to do while you rest. Your wedding isn’t until next March. You have time to do things if you have all the big vendors booked. If you don’t have them booked, let someone else do the research and get back to you with results.
Post # 11
It suxs when a chronic illness takes over your life. I had severe major depression that left me unable to work off and on for 3 years. I learned that there are some things we can control (like taking meds and going to the doc ASAP) and some things we can’t (like thinking our way to perfect health). Your first priority has to be your health–money, wedding, everything can wait. If you don’t have your health, nothing else matters. Take care of yourself, learn to let go and relax!
Post # 12
I know it’s horrible, but please don’t ignore it again! My mother died from a pulmonary embolism.
As to your question, I was dealinh with chronic pain before my wedding and still am. It’s hard but you have to take it day by day, rest when you have to and still try to have the best day possible!