Post # 1
I’m on this site for wedding planning, however, I was recently (last week) told I have PCOS. I dont plan to try to have a baby till 2015. All this wedding planning and planning for our future has got me with “baby on the brain!” I discontinued the pill last October when I was unable to fill my prescription (during hurricane Sandy) my doc at the time told to wait till I got my period to restart my pills. Well, I never got my period. It is now March, I went to a new Obgyn last week just for a fresh perspective, she diagnosed me with me PCOS after viewing my ultrasound. She told me to start taking Loestrin SE (birth control) told me I “wouldn’t be getting my period naturally” without birth control and sent me on my way. She told me to lose weight, which I AM with weight watchers, and now I’m just left with so many questions, like WHY even go on birth control? Yes, I am sexually active, but we use condoms..I am terrified that when we ARE ready to have a baby, my non menustrating body will not rise to the occassion, it makes me sad and worried, as I REALLY would like to have a baby in the next couple years.
I know this post may come across as ignorant, as I really have no understanding of PCOS and what it means to be diagnosed with it.
anyone on here with experience of PCOS? Any help/information would be greatly appreciated.
Post # 3
I’m not a medical expert, but I was diagnosed with PCOS about 6 years ago.
It doesn’t mean you won’t ovulate, or EVER get a period. For me, personally, I just tend to have irregular, long cycles, and got pregnant without fertility medication.
In the meantime, you’ll likely be put on birth control as it has lots of good things going for it. For me, it regulated my cycles, helped with out of control weight gain/made it possible to lose (I gained 50lbs in the year we were TTC, and I SWEAR I wasn’t gorging myself), and helps with the male pattern hair growth that a lot of people experience. Extremely long cycles can put you at risk for endometrial cancer, so often a doctor will want you to have at least 3 periods a year. Essentially when cells in your uterus get really thick and old, the cells are disorganized and more likely to mutate, so they want you to slough those cells on a semi-regular basis at least. Even when we were TTC, I was supposed to contact my gyno if I had a cycle that exceeded 48 days, and she’d usually prescribe provera to induce a period.
Don’t want to write you a mile long response, but if you have any further specific questions, feel free to ask. It’s one of those things that SOOO different for everybody, but I’ll try to answer as best I can.
Post # 4
@SapphireSun: I appreciate your information. Thank you.
Post # 5
I was diagnosed with PCOS 9 years ago at 15. I’m 24 now.
I always had heavy periods and a couple times did not get one. I was put on BCP to regulate my periods, keep them lighter, and it also helped with acne/hair growth, that kind of thing. I never knew if I ovulated or not (at 15 you don’t really pay attention or care about that). I eventually went on metformin as well as BCP to help regulate.
I went off of BCP in August to start TTC, and I still got periods, but did not ovulate until a few months later, and am now pregnant (from the first cycle trying).
Everyone has different bodies, so all situations are totally different. Who knows…BCP may help get your body to regulate itself eventually? I’m not sure. I’m no medical professional.
Just listen to what the dr has to say- they know what needs to be done to make your body work and can help you get pregnant when the time comes.
Post # 6
I was diagnosed with PCOS in 2011. Looking back, I definitely had symptoms when I was younger but was never diagnosed. When I was in high school I had very heavy, painful periods that were somewhat irregular (45 days was the norm for me). I also had a couple of ovarian cysts that sent me to the hospital thinking it was appendicitis. After my second cyst, my doctor suggested that I go on BCP (at age 15). I was fine on that, had my period regularly and no other issues.
In 2010 I went off of BCP in preparation for TTC. I gained about 50 pounds, almost seemingly overnight and my doctor couldn’t tell what was wrong. Finally when my period became more irregular, (I went 60 days at one point), my friend who is an ARNP suggested that I have my doctor run a hormonal panel. He did, and my testosterone was elevated, my blood sugar was also borderline. I was put on Metformin immediately, and have now lost 35 of the 50 pounds I gained. It is much easier for me to lose weight while on the Met or BCP, when I am off both, I keep gaining no matter what I do.
Met has also enabled me to have regular periods and ovulate, it has really been great. DH and I have been TTC for 18 months, with no luck, but my doctor doesn’t think it is due to my PCOS at this point since I am having regular periods and ovulating. One of my friends with PCOS got pregnant her first month on Met.
I know this is hard to do, but try not to stress about it too much at this point. If you end up having trouble when the time comes, there are lots of things that doctors can do to help you get pregnant. Feel free to PM me anytime if you have questions!
Post # 7
I have PCOS too and I still had regular cycles with periods every month (only missed 2 or 3 periods in like 2 years when the cysts were acting up). She probably wants you on the pill so it will help regulate your cycle and help stimulate your boby to have a period each month so you won’t have a chance to let cysts build up on your overies. Weight can be a factor too since PCOS is generally linked to a hormonal imbalance. I know they would prefer you to lose weight because that can also help regulate your cycle. Let me know if you have any questions and maybe I can help! Also, don’t worry about not being able to get pregnant. I’m currently 23 weeks and have 3 cysts on my overies (one developed since becoming pregnant, and the other 2 didn’t keep me from being able to get pregnant). They do have a few medications to help women with PCOS get pregnant if they are having trouble ovulating each month too.
My story is pretty similar to @Sunshine1810:. I had irregular cycles starting around 15. I would miss periods for a few months at a time then have it for 2 weeks. So instead of doing any checking my doctor just stuck me on the pill. I took it for about 8 years and decided to stop and see what my body would do naturally. In 2011 I missed a couple periods and went to the doctor, she saw the cysts and diagnosed me with PCOS. I had surgery to remove one large cyst that August. When we decided to try for a baby I rotated Clomid to help with ovulation and birth control to try and shrink the new cysts I had for several months and we got pregnant last October with no meds.
Post # 8
- Wedding: June 2011 - Sydney, Australia
There are SO many different levels and responses to PCOS. Some women ovulate and have periods regularly; others (myself included) NEVER ovulate, and therefore have long, irregular cycles & little chances of conceiving without help.
I was put on birth control while doing IVF to control the timing of my cycles a little more and to control the symptoms of PCOS (weight gain, hair growth, acne, etc) – so if you’re not actively trying to fall pregnant, I’d be using protection. Just because you have suspected PCOS does NOT mean that you don’t need birth control; if you choose not to use some form of it, you still have a shot at getting pregnant.
Hope that helps. 🙂
Post # 9
PCOS is a syndrome and as such it can really vary from person to person.
I was diagnosed when I was 15, I am 33 now. Going on BCP didn’t help me, it reduced my androgen levels but (this is how it was explained to me) the PCOS was being disguised by the pill. It helped with my hirsutism but I started to gain a lot of weight, the more weight I gained, the worse the symptoms got. After 6 years on BCP it would no longer bring on my period. I have tried others but they don’t agree with me. The last one made me sleep all the time!
For me, the biggest help was losing weight. I take Metformin but don’t really think it does much for me. Left on my own, i can skip periods for months on end, I think the longest was 16 months.
Trying to conceive has been hard. I’ve been trying for 7 months but have only had 3 periods in that time. At age 15 the Dr told me not to get my hopes up on conceiving- they didn’t know that much about it in the 90s! But that has always stayed with me. Now I know better but that Drs comment is always at the back of my mind.
There is no easy answer as it affects people differently and to vastly different degrees, just have faith. Many women with PCOS are mothers and sometimes symptoms get a lot better after you have a child.
There are now lots of support groups and education about it, I think it’s important to find out how and to what degree your PCOS affects you.
Post # 10
Thank you guys, the more I hear about it the more educated, relieved and/or nervous I am…if that makes sense. I’m going to TRY to not worry myself sick over something like this until there is any reasoning to. I truly appreciate the information and responses.