Radioiodine treatment for thryoid, anyone?

posted 3 years ago in Wellness
  • poll: When you had radioiodine treatment, did you suffer any bad side-effects?
    YES but only short-term / non significant : (1 votes)
    100 %
    YES long-term and life altering. Worst mistake of my life!!! : (0 votes)
    NO I've been fine / haven't felt any different : (0 votes)
    NO and I feel better after doing RAI : (0 votes)
    NO it's the best thing I've done for my thyroid!!! : (0 votes)
  • Post # 3
    Member
    1563 posts
    Bumble bee
    • Wedding: August 2012

    @DarlingClementine:  Is there any possibility of moving to PTU instead of RAI? I had Graves and was on PTU for four years before my levels were considered good enough to stop. My sister also had Graves but wasn’t as stable on medication and eventually had the surgery (instead of RAI). Personally, if my Graves comes back and cannot be controlled by medication, I would opt for the surgery as I don’t want to put unnecessary radiation in my body (especially as a woman of child bearing age). BTW, my sister did not turn into an overweight ball of depression. She’s doing really well and actually lost weight after surgery.

    Post # 5
    Member
    9137 posts
    Buzzing Beekeeper
    • Wedding: November 2013 - St. Augustine Beach, FL

    @DarlingClementine:  A friend of mine had RAI done almost 30 years ago and while she still has hyperactive thyroid, it’s more easily controlled with meds now than it was before the procedure.

    On the other side my mom has hypothyroidism that has to be controlled with synthroid and she had a healthy pregnancy at 40.  She has had some problems with depression but they were more influenced by being in a bad marriage than hypothyroidism.

    Maybe get a second opinion from another endocrinologist for reassurance.  Make sure to see someone at a separate practice (in another town if you can swing it.)

    Post # 6
    Member
    1563 posts
    Bumble bee
    • Wedding: August 2012

    @DarlingClementine:  Ah, I see. Well, I think it’s worth getting a second opinion if you are able to. I’ve found that doctors often push RAI on patients very early (my endo included) and it’s not a decision to take lightly as you obviously know. Good luck!! 

    Post # 8
    Member
    1563 posts
    Bumble bee
    • Wedding: August 2012

    @DarlingClementine:  Good luck with the treatment! It will feel so good once your levels are more in check! 🙂

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