Reflux Babies

posted 2 years ago in Babies
Post # 2
Member
692 posts
Busy bee

My best friend had a reflux baby and is a single mom. Her son cried and cried and didn’t respond to treatment for the GERD. She had such a hard time and felt like she wouldn’t survive it, but she did. Life gets hard and we tend to underestimate our ability to cope, but we’re all resilient and can get through anything.

I hope your babies get better soon!

Post # 3
Member
111 posts
Blushing bee
  • Wedding: September 2011

BOGB:  Hi there. My son (now 2) had reflux until 1 yo. How long has it been since your baby is on Zantac? It takes some time before you see improvement, depending on how much he was “burned” by his reflux, but it took about 2 weeks for us.

 

I remember this time as being extremely hard on us 3, baby and parents. I thought it would never end and often cried, I was exhausted. But it did pass, and eventually we could go in the car for a short trip, or in the stroller for a walk outside and things improved.

 

I also felt very alone, none of my friends had babies with reflux, so they could not understand why I didn’t go out of the house, they didn’t get it.

 

My DS was also EBF, so I just felt like he was living on me all the time haha. But at least I got to enjoy a lot of cuddling time 😉 It is hard. Hopefully things will smooth out soon and you can have an easier time.

Post # 5
Member
3989 posts
Honey bee
  • Wedding: October 2011

Reflux baby here!  She is 13 weeks now and we found out at 1 month that she had reflux and a dairy/soy intolerance.  I stopped breastfeeding in fear of accidently ingesting soy and making her feel bad, and we put her on Nutramigen.  We also thickened her formula with rice cereal, per doctors orders.  And she’s on Zantac three times a day.  The fussiness has definitely decreased, but she still spits up a lot.  I think what has helped the most has been the rice cereal, surprisingly.

She also sleeps in the Fisher Price Rock n Play, which has been a lifesaver because of the incline.  She’s comfortable and I don’t worry about her choking.

It’s been a tough road with lots of laundry.  But thankfully there’s a light at the end of the tunnel after time.

Post # 6
Member
1449 posts
Bumble bee
  • Wedding: January 2012

We knew our DD had reflux and she has been on xantac since ~2m. What we didn’t know and no one told us (several drs were all asked about this) was that her sleeping problems and wanting to eat every 2!!!fliipppinghours around the clock are reflux issues. We had her 4m appt with a new dr and she was like uhhh no that’s not normal! You poor parents! Soooo she decided to switch her to previcid and they actually have a local pharmacy that compounds it and they say it works way better then the standard big box drug store.

Soooo we are only 2 days into the new meds but here’s to hoping. Weve had such a rough 4ms that DH has sworn off having a second just because of how bad this has been. It makes me sad that its been so hard at a time we should be enjoying the most. 

BOGB, it might be worth asking your dr about trying to switch meds.

  • This reply was modified 2 years, 3 months ago by  .
Post # 7
Member
2600 posts
Sugar bee
  • Wedding: October 2011

BOGB:  Hello fellow July mom. So sorry to hear you’ve been dealing with relfux! My friend’s son has it and she has had a rough go of it for sure. He is doing much better now at 4 months. I think using Simethicone helped her some (because I think GERD caused her baby to have lots of gas pain as well, and it helped with that). My son has mild reflux and I just talked to a Lactation Consultant about it this morning, since he will fuss at the breast a lot. She recommended pro-biotics for him, and I read that it helps for the mom to take them, also, since you’re breastfeeding. Anyways, I hope the zantac kicks in and your little guy gets some relief soon! And that things get easier for you as well- hang in there!

Post # 9
Member
3989 posts
Honey bee
  • Wedding: October 2011

BOGB:  There was blood in her stool (only visible by microscope), and that’s how they can tell they have an allergy.  It might be worth bringing a soiled diaper with you next time for them to check for you!

Are you swaddling? For a long time we thought DD hated being swaddled until we got The Miracle Blanket and it did exactly as advertised…created a miracle 🙂  Now at 13 weeks she sleeps for 9-11 hours swaddled in her rock n’ play! (We are lucky – but had a hard road getting to this point!)

Post # 10
Member
3128 posts
Sugar bee
  • Wedding: December 2017

My daughter is four months. She wasn’t diagnoised with reflux until 2 months and dairy allergy until 3 months. I feel so bad because that’s a ling time to suffer!

Our doctor only kept us on Zantac for 4 days to get insurance to cover Prilosec. zantac only reduces the acid in the reflux and doesn’t stop the reflux itself. For that you need a PPI like Prilosec or Prevacid. The other drawbacks to Zantac are how this dosage constantly needs to be readjusted for weight gain and I have heard that it will randomly stop working after a couple of weeks, just as soon as you start to see an improvement. If you don’t feel like Zantac is working, talk to your doctor about switchingn to whichever PPI your insurance will cover.

We also used gas drops or gripe water for immediate relief, and gave her prop optics to help grow good bacteria in her digestive system. We used a crib wedge to prop her up until she started rolling over. I would also recommend double checking the ingrediants in the foods you eat- milk protein is found in a lot of foods. I spent a week eating some bad thtings without even realizing it. If none of that helps you could also try going off soy, peanuts or red meat (other common allergens). 

Our daughter is also a high needs baby. The combination of all three has made my husband swear off any hope of future biological offspring, alough we always kind of planned to be one and done. I say that she is so difficult just to ensure she remains our one and only 🙂 the good thing about having a baby with these issues is that they aren’t too serious (we aren’t in nicu!) And it makes the good times soooo much more special. I cherish every smile and laugh because we work so damn hard to get them!

Post # 11
Member
3128 posts
Sugar bee
  • Wedding: December 2017

nousdeux:  my friends all have the easiest, happiest babies I swear! I actually avoid seeing them right now, only because I don’t want to want something I can’t have or feel any sort of resentment for the situation that we are in. I love my little girl more than anything and we will get through this, but it sure is challenging!

 

Post # 12
Member
1111 posts
Bumble bee

I don’t know if this helps you at all, but I actually had severe reflux as a child and my parents propped my crib up on concrete blocks. Probably not the best solution in the world, but I know that they had no success with helping it until they actually propped me up in some way at night.

Post # 13
Member
1449 posts
Bumble bee
  • Wedding: January 2012

Gosh it is amazing to find kindred spirits here! Thanks for starting this thread! Just like MissTatas I want to strangle those who are like ohOh my baby OoooNNNNNLLLLLLYYY slept for 5hrs last night.

I was totally prepared for this to be hard. I was ok with knowing sleep would be rough but I never ever dreamed it would be this miserably hard. it makes so so so so sad. For her whole 3rd month she would scream all night and it was so mentally exhausting. It was such a struggle every day that I often forgot to enjoy juat being with her. Thankfully the screaming has stopped and she’s more interactive now so it’s not so hard but it sucks to try so hard to be a good parent and to be dealing with this. 

MissTatas:  We sound like the same person with having the high needs on top of everything else. Sending you a virtual hug! 

BOGB:  Ugh to the 2hr thing. I spent almost every sleepless night googling sleep issues on my ipad and not a single thing led me to realize that the sleep and 2hr thing were reflux related. I feel like such a bad mom now for not realizing it but our dr was like “well it’s all you knew and you thought it was normal and someone should have said something the many times you said she was still eating that frequently” 🙁 I thought something was wrong with me and I wasn’t producing enough milk for the longest time. My stupid period came back at only 3m post partum. I now think its because even though she was eating every 2hrs she wasn’t eating a ton. This in turn tanks my supply once a month further stressing us out. Sigh. 

misskittenn:  We put a pillow under our gals mattress to create an inclue for that exact reason. 🙂 Ped recommended books, pillows, or whatever you could find to get the job done. 

After KateByDesigns info I wonder if she also has an allergy now. She had a few streaks of red blood in her diaper tonight. She had the rotavirus vaccine yesterday but it’s side effects don’t list that. I was going to call the ped tomorrow since Google said if she’s acting fine and it’s only a tiny bit it didn’t need an er visit. I don’t eat a ton of dairy though because I have a lactose sensativity. Hrmmmmm. 

Post # 14
Member
111 posts
Blushing bee
  • Wedding: September 2011

MissTatas:  I feel you! I must admit at times I felt jealous of those smiling, cooing, happy baby that nothing seemed to bother and that could be taken anywhere (we never went to the restaurant for at least the 6 first months, and I never got to enjoy the mommy-baby morning movie theater that I thought I would be going to every month before I gave birth).

With that said, it seems at 1yo things change the other way around, my son started sleeping through the night at 10mo (talking 11h of sleep straight with no BF), and curiously at that age those happy baby that used to be great sleepers became not so great, I have no clue why.

My best exemple is a friend’s baby that I used to say jokingly was almost like “an ornament”, he was there, smiling, happy, content with himself and wouldn’t make a peep, never! Well now at a bit over 2yo, he still wakes up 3-4 times at night (!), has temper tantrum like it’s his job, kicks his parents, has the uncanny hability to make himself vomit if he does not want to go to sleep, and whatnot. Obviously the parents are at the end of their rope, and cannot believe how that angel turned into a toddler devil

So, we never know what’s in store for us. Hang on tight for now, cherish the moments when your little girl is happy and smiling, give her all the love you can when she’s struggling, soon this will all be a memory and you’ll wake up each morning to see a happy baby smiling at you and you’ll know it was all worth it!

Post # 15
Member
111 posts
Blushing bee
  • Wedding: September 2011

BOGB:  I don’t know about zantac, but for me the Prevacid has been the same dosage from 4mo to 1yo, half a pill diluted in water and given in a syringe. He wouldn’t have Zantac because of the taste of it, it takes like pepper mint (at least here in Canada), whereas Prevacid tastes like fruits. I’d give it maybe another week and then go see the doctor again?

What we did that also helped : as a PP wrote we jacked his bed with some 2×4, I believe it was 2-3 piled up under each foot of the head panel, so that whereever he was sleeping he was in an inclined position. Though you have to check sometimes because he ended up sleeping in the wrong way and would have his head lower than his feet! But that didn’t happen often.

I wore him all.the.time. in an ergo baby with the infant insert, or in a sling, but I found the ergo to be much more comfortable in the long run.

Per his Dr instructions, we introduced highly diluted rice cereals (and then switch to barley because he didn’t like rice), at 4mo and it did help keeping the milk down.

At 6mo I stopped offering him the breast at every peep he made, I put him on a routine and I think it also helped, as in the more often you BF, the more often he can have reflux, and he started drinking more at each time, so that helped me also. He accepted a pacifier at 6mo, before that he would have none of it as I was the pacifier. FYI i did sometimes BF as often as every 45m, and we’re talking about a 3-4mo baby that was not in a growth spurt!

I had help, all the help I could get, my mother is a SATW and she often came for a 1-2 week sleepover, she would cook, clean, play with the baby while I could take a shower or just run a quick errand at the drugstore alone, that saved my sanity. To remember you’re still a person, a woman, not only a mother and in my case, a milk dispenser.

And last, I became a supreme master at sudoku on my phone while I breastfed. It helps pass the time. I also had a kobo but it does nto glow in the dark, so I couldn’t use it in the night.

 

We are now trying for a second baby, and we as some PP also thought we could not go through this again, well apparently we can haha. Originally we thought we would have 2 close babies, but we chose to wait a bit to catch our breath, and we’re ready now. As soon as I’m pregnant I’m buying myself a kobo glo, and then we’ll be all set for whatever comes our way.

Sorry for the novel, I just really wanted to let you know (and all the others PP of course), that there IS hope, it Will get better. And I’ll add very quickly that for all the time we spent glued together when he was little, my toddler is still very affectionate and will randomly ask for/give a hug, likes to cuddle, says “I love you” all the time and gives kisses. It kind of feels as if all the love we gave him during those hard few months is now given back to us, and it’s wonderful.

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