Post # 1
I’m curious about which prescription rescue meds have worked for you when a migraine strikes?
I previously used Maxalt but lately it hasn’t been doing the trick. My neuro gave me a sample of Sumavel (an injectable) and that helped a bit but the migraine still came back.
I’m currently wait on a nerve block to be approved by insurance to see if that helps. I previously tried imatrex with no success and fainted too many times while taking beta blockers as a preventative.
I’joust about at my limit. My head hurts a almost 4 days a week and I have nerve pain in my scalp. My chiropractor and acupuncturist have provided some temporary relief but nothing lasting. I’ve been to PT and still do my stretches daily. I sleep on my back so as not to stress my neck. My birth control isn’t a contributing factor.
Any other advice?
Post # 3
I get Botox shots and while it took a while to get the dose adjusted to the correct amount, it’s finally correct and I went from having a headache 20+ days per month (I actually had a stretch where I had a headache for 97 days straight or something) to having fewer than 4 in the past 3 months I also take Topomax on a regular basis and Maxalt works about 50% of the time. I take narcotics as my rescue medication when I need it because they work the best for me.
My doctor did have me try a powder that you put in liquid, but I couldn’t handle it because it’s an NSAID and I can’t take NSAIDs. It also had a slight licorice flavor that made me want to vomit. Flavors and smells tend to intensify my migraines.
I’d be happy to answer any questions about Botox if you have them. I’ve been getting the shots for just over a year. Because I’ve tried everything else, they are covered by my insurance for a regular visit copay.
Post # 4
I get them too, and I probably shouldn’t even be replying ha, because I find that talking and thinking about them brings them on!
I’ve been on lots of daily treatments of beta-blockers too, and they normally did nothing, and also once there was one that put me to sleep really quickly. Have you tried Zomig or Zomigoro (not sure, I’m in France but I think the brand is the same). That works for some people (not for me) but you can’t take it too often.
My doctor gave me some pills with codeine in them and I took two this morning…but when you are getting them so frequently, taking something like that might not be advised. I don’t have much tips because I’ve yet to find something that works…yet my migraines used to be very frequent and they’ve decreased. Are you sure about the birth control? I went off it, and I still get them, but less.
Now I want to try improving my diet and water intake, and exercise a bit more frequently. I also take a magnesium and B 6 (i think B6) supplement daily. The last real migraine I had, the only thing that made me not feel the pain was going underwater in my bathtub, face down…I guess it felt good to float. I also have massages once a week, if you’re like me you’re super tense around your neck, shoulders etc…
We can have a support thread if you like 🙂
Post # 5
I dont knowif you guys have the same meds but I take Relert (eletriptan)
Post # 6
Thanks ladies. I’m seeing my neuro again soon and will inquire about these other tripan meds you’ve each suggested. Narcotics do help but I tend to get rebound headaches the next day so that, combined with the frequency of my migraines isn’t the greatest option.
@ErisInChaos: I can’t tolerate NSAIDs either. So frustrating. I mentioned Botox to the neuro and she said that its a possibility but we need to try other treatments first because of insurance.
Migraines are just the worst!
Post # 7
I was on imitrex but started getting horrible side effects. They’ve just moved me to Maxalt, and while the side effects are gone, so is most of the relief. I’ve been debating calling to get my dose upped for a few days now.
Post # 8
I tried a few but they didn’t work for me. The only thing that finally worked was when I started acupuncture (although now I have a permanent red dot on my hand from the needle… suspicious) and changing my diet.
Good luck..! Migraines destroyed my life for an entire year.
Post # 9
I used to be on Midrin, but it was discontinued a few years back. It worked wonders for me. I still have some left over (yes, I know they are expired, but when something works for your migraine, you hang on to it)!!
I must admit I do need to go see my own doctor and get re-diagnosed/re-prescribed, so this will be a pretty insightful thread for me, too, OP.
Post # 10
I used to be on Zomig (nasal spray). It worked fantastic but left a horrible taste in my mouth. I always got so naueseated that I would vomit so I swtiched to a nasal spray becasue I would vomit up my medications so it was a good option (despite the yucky taste. I would actually take it with a peppermint & that would help!)
Once I came off birth control, my migraines disappeared! I was on BC for about 8 years before I ever had any migraines from bc so you cannot rule that out unless you have actually tried coming off & continued to have migraines. I was on Topamax for daily maintence (which can cause severe birth defects if I happened to get pregnant), had rescue Zomig, & phenergran for nausea. My neurologist insisted it wasnt due to bc. I work in healthcare so I decided to try myself off bc and I haven’t had a migraine since August 2011. I’m also off all medications.
Post # 11
I used to take Imitrex for years (until it stopped working for me) now I take Relpax and it works great! The Relpax also doesn’t make me groggy or knock me out like other things have.
EDIT-I know that they’re really starting to believe that migraines are a hereditary thing-I’ve had them since I was very very little (about 2nd grade).
Post # 12
I use Fioricet when I get migranies- it’s great. I also can’t use NSAID’s, they can actually trigger my migraines, though mine are usually caused by consuming too much sugar or forgetting to eat every few hours (I’m hypoglycemic). It took me years to figure this out- I always had the worst migranies when I was really stressed out, finals week, when I had family problems etc. It makes sense now- it was becuase I ate poorly when I was stressed (bring on the chocolate and carbs!!).
@ thegreeneyedkri My mom had them too
Post # 13
I swear by Relpax. I was havign problems finding one that worked, adn it turns out Relpax worked wonders for my mom. I had to take my first pill in my neurologist’s office. It works rather quickly (well, for a pill) for me. I cant take additional NSAIDs since I take Celebrex daily, but sometimes takng an extra helps. I’ve had nerve blocks (not for migraines) and they’ve been amazing.
Post # 14
I’m really interested in this thread, too. I currently have had a migraine for over a day and a half. My neurologist recently prescribed Maxalt for me- yesterday I took 2, today I took 1- it did nothing. I have also taken Imitrex. It used to work and now does nothing.
@ErisInChaos: The powder medicine you are talking about is Cambia. I have some in my medicine cupboard 🙂 It does taste nasty, but it has provided the most relief for me until recently. But it is crazy expensive, so even though they havent worked for me, I definitely recommend that any migraine sufferer try generic Maxalt or Imitrex first.
My doctor said he would call in a steroid pack for me if I am not better tomorrow. Have any migraine sufferers done this? Also, does anyone use abortives that are injectable or drops you put under your tongue? My wedding is fast approaching and I am starting to feel like I need to call in the big guns.
Post # 15
@chocolatecoveredstrawberry: Yes, Cambia, that’s the one. I still have some left from the samples my neuro gave me, but I only tried it the one time. She wanted me to try it to see if I could tolerate it even though it’s an NSAID. Maxalt worked better for me, but the thing that works best is the narcotics for rescue. I haven’t tried everything though, just Imitrex, Maxalt and the Cambia. The only meltable one that I have tried is the Maxalt melting one- drops would make sense if they work quickly. I’ve not heard of steroids as treatment, that’s more for inflammation. You used to be able to get Imitrex as an injectible; if it worked for you before, maybe reverting to the injectible form might help if you want to try an injectible?
@MrsPaulsBabyBallerina: I had to prove that I had exhausted all the options before my neuro would apply for the Botox because otherwise it would get denied, but a nerve block wasn’t ever one of the options. Topomax was one, a beta blocker was another (which I wasn’t a candidate for because my blood pressure is already low enough), amitriptyline (Elavil) was another (it’s a tricyclic antidepressant I believe- it’s been a long time since I tried it, and it didn’t work) and then the rescue meds. After you’ve tried those 4 things or have been ruled ineligible to take them then the insurance will approve the Botox. I can’t say I’m wild about the Topomax- I lost a bit of weight going on it, which was good, but it can give you a higher risk for kidney stones and I noticed my hair shedding more. Not going bald or anything, but my hair definitely falls out at a higher rate than before. I was able to decrease my dose this past month with the Botox working so well though. 🙂
It’s a bit unnerving to get 23-some shots in a sitting, and the first time it feels like your forehead is filled with cement (it’s so weird) but after that it doesn’t feel as weird. I get them in all the places on the head as well as down the neck and shoulders. If you google Botox injection sites there’s actually a picture that shows the trigger places where they do the injections. You can’t lay down for a few hours afterwards so the Botox doesn’t ‘shift’ and I get a headache 12-48 hours afterwards, but then it lasts for almost 3 months. Last month was the best batch I’ve had yet; my dose has been gradually adjusted up in different spots depending on how my headaches react, and the neck/shoulder spots were added/increased. I only had maybe 3 headaches the last 3 months and it was amazing!
I know a major trigger for me is not getting enough sleep, stress, certain scents, flashing or glare from lights, loud sounds and certain alcohols. On rare occasions I’ll see little lights (aura I guess you’d call it) and I’ll get one, or I’ll see the lights and then feel weird but not have the pain.
Migraines suck! Especially when they aren’t controlled and you get them frequently because people don’t understand them and don’t always take them seriously. I’m so glad I found a doctor who listens to me now!
Post # 16
@chocolatecoveredstrawberry: I recently got a sample of Sumavel which is an injectable. That helped me more than the Maxalt did. I’ve never heard of steroids for migraines but I have taken them for other reasons. I had so much energy from them it was insane. I seriously could see why people get hooked on uppers like cocaine. I didn’t need hardly any sleep and my house was amazingly clean. I had to take them for several months though so I’d imagine that’s why it was more pronounced. When I’ve taken them for a week or two, I’m just more of an insomniac than I usually am but not nearly as hyperactive from the months-long course.
@ErisInChaos: I’ve tried Elavil before and it literally made me hear voices which was absolutely terrifying. Thanks for all the info on the Botox. A good friend of ours gets it done as well. Unfortunately for her, she still gets migraines frequently enough that she was declared permanently disabled.
I’m scheduled for a nerve block in a couple of weeks so I shall see if that helps. I’d really rather not have to go down the Botox route but it would be better than getting migraines every week.