Scared and trying to cope

posted 3 years ago in Emotional
Post # 3
Member
201 posts
Helper bee
  • Wedding: June 2014

@Cluelessbride10:  Hey there, I am sorry you’re dealing with this.  I haven’t experienced this, but I do have a family friend with RA.  Sometimes it limits things she can do, but overall you’d never know anything was wrong.  Have you tried seeing a counselor?  They might be able to help you talk through this.  And I’m sure your fiance will talk to you too.  Good luck.

Post # 4
Member
42469 posts
Honey Beekeeper
  • Wedding: November 1999

@Cluelessbride10:  A new diagnosis can be really difficult to deal with.

I would respectfully suggest that you consider a visit to a rheumatologist or an internist. A podiatrist can diagnose and treat foot problems, but systemic illnesses shoud really be managed by someone else.

Post # 6
Member
42469 posts
Honey Beekeeper
  • Wedding: November 1999

@Cluelessbride10:  Try not to dwell on the worst possible outcomes.  Look to famous people with RA for inspiration: Lucille Ball, Kathleen Turner, Kristy McPherson (professional golfer) etc.

I used to be a real worry wart. Then one day I realized all that worrying wasn’t accomplishing a single thing. It was simply draining all my energy.

Post # 7
Member
2368 posts
Buzzing bee
  • Wedding: June 2014

One of the veterinarians I used to work with has RA.  It’s very treatable in most cases.  She was diagnosed well over a decade ago and still practices, has no problem doing surgeries or anything else.  She’s limited some things – she no longer restrains large animals herself, is careful about the weight of things she tries to pick up, things like that. 

Don’t panic. (Yes, that’s easy for me to say)  And for the love of all that you find holy, stay OFF google and webMD.  Wait till the diagnosis is confirmed, and talk to the rheumatologist about your specific case.  Every person is different, and the treatment plan for you may not be the same as it is for some other random person on the internet.  If you freak out about worst case scenarios, all you do is drive yourself crazy and knock down your immune system, making you feel even worse.

Post # 9
Member
1706 posts
Bumble bee
  • Wedding: December 2012

@Cluelessbride10:  Until you get any results back try not to worry. There has been something wrong with my right foot for around 4 years now and after cortisone shots, dozens of X-rays and 2 bone scans I gave up. A lot of drs thought they knew but they didn’t. What I know is that I can’t run or even take too long a walk without most likely needing crutches, and I’ve just become ok with that, I can still bike 🙂 no matter thediagnoses you’ll be ok! You’ll just have to adapt.

Post # 10
Member
1574 posts
Bumble bee
  • Wedding: May 2013

I have rheumatoid arthritis (in addition to some other chronic health issues), and it’s not the end of the world. Honestly, when I was diagnosed (I was diagnosed w/ RA and lupus at the same time) I was just relieved to know WHAT I had. Definitely see a rheumatologist – mine is very amazing, and I feel very secure in his care. There are so many good medications out there. I am debating going back on infusions as my health has been flaring the last few months. i take medication every day (Plaquenil for my lupus and RA twice a day, Celebrex twice a day and can add a third pill if needed, and Tramadol or Vicodin as needed). You might also look into any support groups in your area (I wish I had started going to lupus support groups earlier – and I recently made a friend in one). I also really love the website Chronic Babe; they have great message boards that may be of assistance to you. 

and PM me if you have any questions or want to chat. Good luck

Post # 11
Member
1355 posts
Bumble bee
  • Wedding: July 2014

@Cluelessbride10:  I have a rare autoimmune inflammatory disorder that leaves me bedridden for days at a time so I can relate. I also think you need to toughen up a little bit and look forward to a proper diagnosis so that you can get the proper treatment. It’s only going to get better from here so try to take it easy. Everything will be fine! No one is going to leave you or turn their backs on you! They will be more attentive and sympathetic if anything. Hope you are feeling well!

Post # 13
Member
9412 posts
Buzzing Beekeeper

@Cluelessbride10:  I am so sorry you are going through this. My uncle was incorrectly diagnosed as having RA and it actually ended up being something completely different. I would honestly try and avoid Googling anything and making things worse for yourself. A medical professional is the best person to tell you what to expect and treatment options that are available to you.

Leave a comment


Sent weekly. You may unsubscribe at any time.

Find Amazing Vendors