Hi there everyone!
Thank you for the encouragement! It’s nice to hear that others can relate.
@Tinatiny1: I know what you mean…one wrong bump in the car, standing the wrong way, pulling my pants up, walking my dog as she got excited to see someone, are all silly examples of things that have set me back months at a time. It’s so frustrating and it makes me feel like I have to live in a bubble even through the few weeks I was in much less pain. No get scared when my fiance even tries to hug me because Im so guarded with my neck. Luckily, he is great and couldnt be more understanding.
I see Dr. Roh at Orthopedics International here in Seattle. He is an award winning minimally invasive spinal surgeon. My physical therapist said he has seen some of his patients after surgery and they have all done well. I haven’t seen him in about 5 months, but I have an appointment with him at the end of this coming week. I am going to ask him about surgery as an option just because it’s almost been a year and a half, but even if its an option I want to get a second and probably third opinion. I was told no chiro too because the discs are already smashed and leaking spinal fluid, that we can’t risk any type of compression.
I was so bummed that I was worse today. I can’t even reach up to brush my own hair or lean over the sink to wash my face. Just the little things I have always taken for granted are now gone once again. Some days I can be strong and then other times I just cry until my eyes feel like they are going to fall out.
@Happy Hopeful Bee: thank you for your encouraging words! I’ve been seeing a great massage therapist three times a week. She studies structural integration. I’ve only been seeing her for 3 months now so I’m hoping she can help me get through this phase quicker than before. I’ve also been seeing an acupuncturist for 3 months, once to twice a week. I get electrical stim front her too. I’ve been seeing a physical therapist for 14 months. I switched 8 months ago and new new therapist is much better. My herbalist just gave me some anti inflammatory herbs that i am taking as of today. This has been such a long term thing that I started seeing a psychologist once a week because its so hard to not get sad, frustrated or mad at all of this.
So three months ago I woke up with a huge swollen painful foot. 2 weeks prior I was seeing doctors because so felt pain everywhere, was having muscle fasiculations (twitches) every minute and felt like someone was cutting off of my blood supply to my limbs. Turns out I was right even though all the doctors thought I was crazy and just stressed. 14 specialists later, I was diagnosed with chronic Regional Pain syndrome and a sesamoid bone death (AVN) due to a lack of blood supply. This sympathetic nervous system disorder effects muscles, blood flow, etc and they are now linking this to neck injuries. It’s very scary as all my limbs would go heavy and dark red. If not caught early it progressively gets worse and pretty much cripples you. I spent the last 3 months retraining my nerves in physical therapy and at home…and I got so much better faster than any doctor ever pictured. I was determined. I got through this so I keep telling myself I can get through my neck, but it keeps locking up with pain. I maybe need to search, search, search for answers just like I did with my nervous system disorder.
My fiancé and I decided to elope because planning a wedding here was too much with my health. I just hope I am better by August!
If anyone else has any suggestions, I always love to hear about alternative therapies And especially success stories. Thanks ladies for all your advice and stories.