(Closed) Too many health problems (possible TMI and long)… Need support.

posted 6 years ago in Wellness
Post # 3
248 posts
Helper bee
  • Wedding: October 2011

I’m so sorry you have to deal with all of that! As someone who has dealt with a couple of the things you’re going through, and some additional ones you aren’t which I won’t get into here, I can definitely relate and sympathize.

I got my endometriosis diagnosis over a year ago and am still dealing with the repercussions of it. Was also put on Depo Lupron to treat it and now have random severe joint pain, very similar to fibromyalgia, so you aren’t alone!

And don’t worry about feeling like you are whining. You have some very troublesome things to deal with and needing to vent it out is natural and healthy. If you ever need to vent to someone besides your family can give me a PM anytime πŸ™‚

Post # 4
1999 posts
Buzzing bee
  • Wedding: April 2012

πŸ™ I’m so sorry!  I’m right there with you.  I have various degrees of a headache 24/7 (seriously..) and about 90% of the time i either have a yeast infection, a bacterial infection, or a UTI.  I feel like I’m always broken and miserable.  And almost every single day by the time I go to bed my stomach is in terrible cramps, but no tests have ever determined an actual problem.  And I have severe neck problems that 6 months of phyiscal therapy didn’t fix so I am constantly in pain.  I also get canker sores all the time, which isnt SO awful but its really really annoying to not be able to eat correctly most of the time…

I feel like we are allowed to whine!  People who feel good all the time (or even just ok honestly) don’t understand what its like to just feel broken!

Post # 5
1160 posts
Bumble bee
  • Wedding: September 2012

I feel for you. I have chronic pain and a series of things wrong with me as well, and it’s emotionally exhausting. i totally understand .


I wouldn’t worry too much about the neck lump. If it’s not a muscle, it’s probably just a swollen gland or a lipoma. Try not to stress about it!

Post # 6
1716 posts
Bumble bee


Vent all you want, whine all you want. You’re allowed to here! 

Post # 7
8359 posts
Bumble Beekeeper

Hi there

I can feel ya. But I am not going to go into my problems because this isn’t a pity party for me and it shouldn’t be for you or anyone else! Feel free to PM me if you want to chat to a fellow always ill person!

What I am going to say is that it is ok to let it get to you every once in awhile. You are only human and it is really really hard for other people to really understand. But it is important to not let it consume you. Is there any support groups in your area that you can attend? I have found that talking with someone who is going through the exact same thing is a real eye opener in terms of understanding and also at letting you knwo when you are whinging/having a pity party.

Another good tool is to focus on the good things in life rather than the bad as hard as that might sound. In your next post in this thread why not tell us 3 good things that are going on in your life? Sometimes we forget that sooo many good things are happening to us because we as humans tend to focus on the negatives.

Take it easy on yourself and rememebr if you think it is too much/too depressive maybe talk to a health professional. Sometimes long term sufferers of illness can get depression especially if they spend a lot of time in doors or have hormonal problems.




Post # 8
114 posts
Blushing bee

Physical pain is draining, and I am so sorry you are suffering on various levels with your health.  All I can offer is what I did when working through health issues.  Keep a diary, with a log of appointments, diagnosis, medication and any other information you think is necessary to describe your health issues.  Keep pushing until a doctor listens to all your issues! 

Your case is a mystery that is waiting to be solved, and I hope you find that one doctor who will figure it out.  Is there a teaching hospital nearby?  Many times they have a team of doctors who analyze difficult and/or unusual cases.  With all that is going on in your body, I should think you have a good case to move forward.  You may need to be pushy, so bring an advocate with you when you go to appointments.  I found another set of ears was helpful because I would get hung up on something and miss what followed.

I am sending healing thoughts and wish I could give you a gentle hug.

Post # 9
1407 posts
Bumble bee

I know how you feel.  My 30’s have been great – massive blood clot from ankle to abs and now I just found out my mystery illness of a year is an inflamed pancreas.  

Just remember – someone always has it worse.  And you will get better.

Post # 11
2073 posts
Buzzing bee
  • Wedding: July 2012

@kayrie95:  You have my sympathies.  I also have fibro and it is one of the most frustrating, poorly understood diseases ever.  I also had cancer at the ripe old age of 20 and was diagnosed with Crohn’s disease, which has been super agressive and hard to treat, at the age of 23.  Plus, in addition to the gut symptoms I have athritis symptoms from the Crohn’s too.  I’ve also dealt with a whole host of female issues as well, but not endo.  I’m so sorry to hear you are having so much trouble.  Chronic pain is so debilitating to the body and the mind too!  Glad to hear your fiance is supportive.  You should be super proud that you’re graduating from college soon, in spite of all of those issues.  

Feel free to PM me about the fibro treatments.  I went through about a year of trying different meds but finally found one that is doing the trick.  I guess it’s fairly new but I’d be happy to share.  It’s always good to have someone to talk to.  

Post # 12
146 posts
Blushing bee
  • Wedding: April 2014

Ive been through a lot of illness/health issues in my life and know how hard it is to putyour life on hold while you wait. I ESPECIALLY know how upsetting it is to have doctors look at you and go “i dont know?”. Just keep trying, keep seeing new doctors, and you’ll find the doctor who has all the answers and will forever be your savior. Dont let them tell you your fine if you dont feel fine. Only you know your body, and dont let them convince you otherwise.

Stay strong…nothing in life ever was worth it if it came easy so you know youre due for something wonderful soon! πŸ™‚

Post # 13
1239 posts
Bumble bee
  • Wedding: March 2013

@kayrie95:  so sorry to hear this, it is very difficult to deal with constant pain.  I also have endo and have had surgery, if you need support you can pm me, I have a few different things I try to helps a bit.  Take care.

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