Post # 1
Hey Everyone—this is going to be a semi-long post, so be prepared!
Ok, so my fiance andI just announced to his family that we’re getting married. We’ve been decided on that for awhile, but his family is very traditional and wanted a ring first, so he let me pick one out and “officially” proposed and now everything is moving quickly…
In February, we had a HUGE wrench thrown into our lives. My mother, who is just now 47, had been diagnosed with Huntingtons Disease. I know some of you might know about this disease from House, but it’s a quick moving, degenerative disorder that gives my mother about 10 years, semi-good years. Since this has happened, and factoring in that Mr. K. is going to be 32 this year, we’ve decided that as soon as we’re married and we’ve ruled out me having huntington’s, we plan to begin TTC.
My question is, what advice do any of you ladies dealingwith PCOS have for starting to prepare now for TTC in a year… I want to be ready to go when the time comes.
Thanks everyone for bearing with me!
Post # 3
@Tabye: I am very sorry to hear your sad news.
If you know you have a year I would…
- Come off any birth control you are on and use condoms so that your cycle can regulate (this takes a long time in my experience).
- Start taking a prenatal vitamin so that all the goodness can build up before you start TTC
- Loose any weight you might want/need to, so that you are healthy come the time
- Embrase a healthy diet/excersize so that when you start TTC you do not have to make drastic changes
- Start trying to work ot when you ovulate either through temping/charting/cervical mucus observations or use of OPK so that you have a whole year to work out exactly what time of the month you are in your fertile window
Given these things when you are ready to TTC you will really know whats going on with your cycles and you will be fighting fit to carry a baby!
Again, my sympathy for what you are going through right now ((hugs))
Post # 4
Thank you, for all that great advice and your kind words 🙂
Post # 5
I’m so sorry to hear about your mom’s diagnosis. I work in health care so I know about Huntington’s. There is another Bee on here who is TTC now (or newly pregnant) with a similar situation facing her mom’s mortality.
Personally, I have PCOS but I am not TTC yet. I have heard that “letting your cycle regulate” off BCP is a bad idea for PCOS. You may not ovulate on your own and coming off the pill often triggers it that first cycle. I’d go for it ASAP, but obviously talk to your doctor.
Are you going to go through genetic counseling to see if you + Darling Husband will pass the gene for Huntington disease? Oops, I just read that you ruled it out.
Post # 6
I am starting the genetic counseling in September and should know by January. I’m pretty hopeful I don’t have it, but you never know. If I do, we’ll be doing treatments that rule out the embryos affected by Huntingtons. We’re just hoping to
Get that BFP the old fashioned way.
As a side note, due to reactions to BC, I’m actually only utilizing condoms right now. I have an appt with my OBGYN to Talk over options, but I always love
Going in with lots of ideas and questions to ask!
Post # 7
I am sorry to hear about your mother.
In regards to TTC and PCOS. Everyone is so different in regards to their symptoms and treatment it depends on a lot of factors. So I have a bazillion questions for you:
You are not on BCP right now??? So you are not being treated for PCOS at all right now?
Are your cycles regular? (Do you get AF on your own)
Do you have lean PCOS or are you overweight?
Are you insulin resistent?
What are your PCOS symptoms?
Have you had an ultrasound to check out the state of your ovaries?
Post # 8
My periods are roughly 18 months apart. I have lean PCOS (but I also have Crohns, so I think that has more to do with it). I have confirmed PCOS (they did a scope a few years back) but I’ve never had a cyst burst. They’re always small and go away on their own. I am not insulin resistent, but my ovaries are quite full of cysts. I have only ovulated one time in the last year and one month (Father’s day 2011). I know when I ovulate because I cramp on my right side (my left ovary is in worse shape than the right one). I’ve talked briefly with my OBGYN about treatment options, and with my crohns she wants to try diet and natural supplments before strong drugs. She suggested Vitex because she personally had a lot of luck with it, but I’m not sure since the reviews seem so mixed….
Post # 9
Thanks for answering all of my questions 🙂
I have a couple concerns:
#1 because your cycles are so irregular and you are not medically controlling the symptoms you are not keeping your uterus healthy via regular bleeding and your ovaries healthy by preventing scarring from the cysts. I recommend trying to get an appoint with a reproductive endocrinologist that specializes in PCOS. My RE would induce regular periods and medicate to regulate the hormones to prevent the cysts.
#2 I understand that you have more complications than just PCOS with the crohns, but I worry about diet and natural supplements actually helping you. Diet usually doesn’t help lean PCOS girls (I am also one) to the point of regulating cycles because we aren’t insulin resistent and adipose tissue isn’t causing the hormone disruption.
#3 You mentioned you thought you ovulated once because you experienced cramping. Cramping unfortunately does not equal ovulation and only blood tests, temping, etc. can ensure ovulation. I have never ovulated and I get cramping in the area of my ovaries regularly.
I know very little about Vitex. I am currently starting my second cycle of clomid *hopefully I will ovulate* and I use Prometrium to bring on AF.
I know that I haven’t given you any answers to your questions but I hope I have given you some information that you can use to formulate questions for your OB GYN. However, often OB GYN’s aren’t as knowledgeable about PCOS because they have a broader knowledge, as opposed to RE’s who specialize in reproductive hormone syndromes.
Good Luck – PM me if you want to chat further