Update: A diagnosis and a new doctor!

posted 3 years ago in TTC
Post # 3
339 posts
Helper bee

I can’t believe the Dr’s missed this! I agree with the good Dr, your symptoms sound like classic endo. 

So glad you know what you’re facing now 🙂 

I don’t have endo, but if I thought I did I would go with option 2. That way you know the extent of the damage and can make a plan from there. 


Post # 4
248 posts
Helper bee
  • Wedding: August 2013

@stefanielovesjamie:  I am so happy for you. It will be nice to live a pain free life once again. Sometimes I am  amazed at who passes med school. 


Good luck on a new begining!!

Post # 5
3756 posts
Honey bee
  • Wedding: April 2014

I am SO HAPPY that you found an awesome doctor!!!! I’m so sorry that you’re dealing with endometriosis but finally you have a diagnosis and hope for treatment. Dismissive doctors make me so angry. I have such little faith in the medical field these days. I’ve had to fight for my health as well so I know how you feel. I’m so glad you’ve found answers. Good luck with your treatment, keep us posted!!!

Post # 6
8818 posts
Buzzing Beekeeper

Wow, you have gone through a lot. I admire how strong you’ve been and I’m SO glad you got a great doctor and some answers! Good luck!

Post # 7
2527 posts
Sugar bee
  • Wedding: December 2011

@stefanielovesjamie:  i am so glad you finally found a good doctor!! that has to be the biggest weight off your shoulders to finally have a diagnosis and know that you were right all along AND to have a doctor who actually listens!

Post # 8
613 posts
Busy bee
  • Wedding: May 2010

@stefanielovesjamie:  I’m so glad you finally found a good doctor! I have endometriosis, stage IV, and I had a laparoscopy in January. I actually didn’t know that I had endometriosis before the laparoscopy. I guess depending on your plans to ttc, I would have different recommendations for which route to take. If you plan to ttc soon(less than 6 months), I would do the lap, but if you aren’t ttc, then maybe try the lupron. That’s just my opinion, the simulated menopause freaked me out because I was ttc (am pregnant now though!), but it seems to be a good option.

Post # 9
1582 posts
Bumble bee
  • Wedding: November 1999

@stefanielovesjamie:  I don’t have any information on these treatments, just a question for you to consider to help you make up your mind. If you get the lupron shot, does that send you into a permanent menopausal state? i.e., if you choose this route are you giving up the possibility of having kids some day (if that is important to you). Just something to think about.

Post # 11
1582 posts
Bumble bee
  • Wedding: November 1999

@LAZB:  Although I don’t know a lot about this, I think if I were in your situation I would choose the laproscopy. It sounds like that would give you more visibility into the problem and help you determine the best course of treatment.

Post # 12
240 posts
Helper bee

Congratulations on finding a doctor to listen! I know all too well how frustrating it can be when it feels like they’re not listening to what you have to say. I wanted to share a few thoughts, based on experiences I’ve had. …

They thought I had endo at one point and I had a laperoscopy. Turns out I didn’t have endo. The recovery from the lap wasn’t too terrible, if you want to go that route.

I also have been diagnosed with premature ovarian failure (POF) and dealt with hot flashes and night sweats; it went on for quite some time while it was undiagnosed and occassionally, though I’m on HRT, I get them now. These side effects are no picnic. (I honestly wouldn’t wish hot flashes on anyone.)

Good luck to you no matter what you choose!

Post # 13
141 posts
Blushing bee
  • Wedding: April 2013

So happy that at least one doctor was able to sit down and listen to what you were saying. Endometriosis is no laughing matter. I have plenty of friends with it. They all did the laparoscopy first then the pill or lupron shot. Laparosopy helped clear things. Better do it early so you can get rid of anything that might be attached to other organs before it gets worse.

Best of luck!

Post # 14
11772 posts
Sugar Beekeeper
  • Wedding: May 2013

Thank GOODNESS you finally found a good doctor! Congrats on finally getting a diagnosis!

Post # 15
298 posts
Helper bee
  • Wedding: August 2013

So glad you finally found a doc who would listen! I complained to my doc for years but it wasn’t until I had pain so basd I couldn’t walk AND began bleeding  that he finally sent me to a specialist. The specialist reccommended laproscopy for endometriosis since my pain was so severe- I highly reccommend it! I know it sounds really scary but it was honestly a piece of cake. The surgery is a surgery, so obviously don’t make the decision lightly, and it’s not painless, but its really quite minor. I had my laproscopy on a Thursday morning, went back to work on Monday. I’d say within 2 weeks I was completely recovered from the surgery. I even went to Costa Rica less than a month after my surgery. After the surgery my doc put me on bc pills continuously  (i.e. I take the active pills one pack right after the other, no sugar pills in between) to reduce my reoccurence of endo. I’ve been good since Feburary:)

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