- 5 months ago
- Wedding: December 2016
Hi Bees, some of you might remember that I posted around 7 months ago about the fact that my sisters and I found out (last minute) that our mother’s medication was about to be lowered. I had posted because I was frustrated that her doctors wouldn’t really talk to me or hear us out on our (extremely valid) concerns regarding this.
Well…it’s happened. The dose was too low and mum had a relapse back in early February. My sister called me one day to say that she’d been around to mum’s house and a lot of the old symptoms were back. I got in touch with our local mental health service, who mum’s care has been arranged through in the past. My sister and I both went out to see mum later that day and told her our concerns. She insisted she was fine. Two people from the Crisis & Assessment Team (CAT) came out to assess her. Mum was willing to go back onto her original injection dose and to take it in a tablet form to supplement the dose until it was back up to the right levels. The CAT team visited her every second day to see how she was going, but after a week said there wasn’t much else they could do as she was complying with their instructions and was still medicated. They said that they would no longer be visiting her, but she did have appointments to meet with an actual doctor in the next few weeks. We were told it could still be a while before mum is back to normal, as the injection is slow release. So, we thought everything was going to be fine, we just had to play the waiting game.
My sister called me yesterday saying that she thinks mum has gotten worse. I agreed from what she described. I had already planned to go over to mum’s for a visit, so I decided to stick with my plan and judge for myself. On the way over there, I called the mental health service and explained our concerns. As it was after hours, I spoke with the on duty triage nurse – he said that he would page the CAT team immediately and have someone call me back. I got to mum’s and was very glad I’d made the call based on what I could see and what she was telling me. I finally (almost an hour later) got a call back, but it wasn’t the CAT team – it was an on duty triage nurse who’d taken over for the guy I’d originally spoken with. This woman was incredibly unhelpful (claimed that my description of the symptoms didn’t classify as worse, continuously spoke over me and wouldn’t let me explain anything) and then became downright rude (mum had agreed to speak with her but quickly became defensive/aggressive due to the line of questioning; when I was put back on with the nurse, she accused me of lying to my mum about the reason for the call – which is 150% not the case). She basically said that all she would do is contact mum’s GP today to find out when her next injection is due and to mention our concerns.
I was planning to call them back today and try to speak to someone else, but the on duty triage nurse who was on this morning beat me to it. She called because she felt that some of the notes the previous nurse had made didn’t make sense and she felt, from what she read, that the issue required more attention. It was such a relief to speak to someone who actually listened and let me explain mum’s current symptoms. She immediately agreed that it seems her condition has worsened and said she would be contacting the CAT team straight away so that they could get an action plan in place. I’ve since had a few calls from her saying that the team are trying to initiate contact with mum over the phone first but she’s not answering. They plan to go around to her home later this afternoon/this evening no matter what. I’m finding this whole thing so stressful and frustrating and I just don’t really know what to do.
Sorry this was so long – I think I just needed to get the situation off my chest. Only a handful of people know about what’s going on and I don’t really have a whole lot of people to talk to about it.