- 6 years ago
- Wedding: March 2012
So I had my Post-Op that I was needing help with questions for on this thread. Some Bees thought it may be nice/helpful to find out the answers, since many of the questions were general. I’ll answer both the general and AmeliaBedelia-Specific questions to help share. Ask anything you would like!
ALSO – feel free to share your own answers, whether they are different or the same. Thanks for reading bees!
Surgery Results/Current/ Pre-TTC/ Other
Where did you find the Endo? How severe was it? Did you remove it/all of it? Biopsy results?
For me, my Endo was found more under my uterus (they had to move it during surgery to remove the endo). It was mostly what she would consider “mild” but she pointed out that the amount of Endo is not equal to the amount of side effects or symptoms. She removed most of it.
Interesting part: Biopsy results. She had removed most of the Endo but had one that looked like classic Endo but she wasn’t sure. She got the biopsy results back and it was *drumroll* a bit of my fallopian tube? Yeah. I was confused and like WTF too. Matter of fact, so was she. It had floated down there at some point. She thinks during development. There were blood vessels branching off of it. She did say that my fallopian tube looked fine to her though.
Will there be ovulation or menstrual pain more than normal now?
When should the numbness go away? All-clear for regular activities now?
The numbness in her opinion is a good thing and is fine. I should expect it to go away in a few weeks. Got the all-clear too! (FYI: It’s been 2 weeks and a day).
What is the most effective means of controlling symptoms of PCOS – weight gain, for example. Metformin has been recommended, but is that only when trying to actively TTC?
She doesn’t “like” to prescribe metformin or other drugs for weight loss. She recommended Weight Watchers (again…) and said that I would probably need to work out for several hours a day, basically. If you want more info I can share. She did say there is another Doctor in town that prescribes the Metformin for PCOS but that they both say patients generally gain the weight back after they come off because their lifestyle changes were not significant enough. I’m torn on this issue.
Also, post-TTC (hopefully post-baby) she recommends the Mirena, not BCPs because she says it tends to regulate hormones better. She pointed out this was just her personal experience/opinion.
Does Endometriosis continue forever? Does anything stop it/slow it down?
Yes, it can come back after surgery and after pregnancy, but pregnancy can “cure” it the best of anything.
What treatment do you suggest long-term? How often should we check back up on these issues? Should I be recording anything – already keeping track of periods on App.
Long-term – weight loss for PCOS, monitoring of pregnancy, and otherwise controlling symptoms. If the same severity of pain returns, another LAP may be necessary. She said keep tracking, but for now nothing else. (Sidenote: We’re not TTC right this second, more like next year.)
What is the likelihood of hysterectomy after children and at what age?
Unknown – too many variables. Won’t do it before 35 unless there is a huge issue.
Are there any alternative therapies I can try (diet can really help with Endo, as can acupuncture, and nerve-blocking injections)? Can you refer me to someone specializing in them?
I’ll admit, I didn’t ask this. Sorry bees!
Are my hormones causing my inability to lose weight? Fixable?
Yes. Diet, lots of exercise.
Which is worse, PCOS or Endo?
PCOS is worse for pregnancy, Endo is worse for pain. Yay, double whammy.
How long do you think it would take us to get pregnant? Is this possibly dependent on how long we wait to start trying? Is age a factor?
Over 1 year – yes, and yes. She also said that fertility treatments can be explored if my ovulation is as bad as we suspect it is (I have 60+ day cycles). She said that waiting too much longer than we are planning to could either cause it to take much longer or even cause me to have to have another surgery (please, no.)
How do I know if I ovulate? If I don’t…then what?
OPK’s, charting, tests. Will come later. If I don’t: Clomid and Provera.
When should we start TTC? What do we need to do – tests for both he & I? SA? Etc.
Whenever we want, 2-3 times a week. Yes, normal tests.
What are our options if we do not get pregnant naturally? Is this normally covered by insurance?
Clomid & Provera is “step one.” She said, after that we’ll discuss further treatment. She seemed optimistic – and I trust that optimism. She wasn’t alarmed by any of my results. Insurance is something to remember when changing insurers.
Will you consider prescribing fertility drugs like clomid?
Yes. See above.
How long do we need to try before becoming worried/seeking medical advice? Also – I know this is awkward, but how do we know when to “try” during the month with my crazy cycles?
6-8 months, but if I’m not “O”-ing then earlier. If in 6 months I only have 2 or 3 AF’s then I need to go in. Shouldn’t “worry” until we’re over 1 year mark. (Though she said I shouldn’t worry at all, lol). She already said this, but reiterating: 2-3 times a week.
Will there be a need to take supplements (like progesterone) to sustain pregnancy?
Possibly, but that is unknown until an actual pregnancy occurs. Levels will need to be tested more frequently.
Can I have a vaginal birth, or will I have to have a c-section? (due to incisions, risks, etc)
Depends on the pregnancy itself, not my diagnoses. While PCOS does up the possibilities, she said every pregnancy is unique. (I know, right? We all know this. But she’s right.)
How many children will it be safe to have?
She said as many as we can afford, lol. But in all seriousness, she said pregnancy can usually only help Endo. PCOS is unaffected generally, so no issues. I felt silly.
Will I be able to have a normal active pregnancy, or should we plan for bed rest? I’ve read premature births have been found to be related to Endometriosis – have you found this with your patients? How do you/we monitor this?
Said PCOS is where the MC’s and Prematurity factors come in, not Endo. Thanks to another bee (Barbie86 I think is your SN!) for pointing this out. I didn’t explicitly ask this Q. Monitor it like other pregnancy but with “a bit of extra precaution.”
What other complications can arise during pregnancy that you should watch for?
PCOS can play a role in gestational diabetes, heart risks, etc.
OVERALL, the fallopian tube thing was totally bizarre. And the picture of it was gross…I was like WTF? Also I’m a little heartbroken that it’ll probably take over a year to get pregnant. And I’ll admit, I’m a bit scared about the weight loss issue. I have been battling my “belly bulge” my entire adult (and teenage) life and now we realize what was behind a lot of it…and I feel like I’ve been told there is still nothing to do except keep working. I’m a bit broken up over it, but I did want to share my answers as best I could with everyone. 🙂 Feel free to ask questions on answers I gave that were scattered, unclear, or not very detailed. I am willing to talk. 🙂
Oh, and since I suck at links, the link may not have worked when I shortened it. So here is this: http://boards.weddingbee.com/topic/need-help-getting-thoughts-together-fertilitypost-op