Post # 1
Hello all. I was recently (as in last Friday) diagnosed with epilepsy. Quite rare at my age, but not unheard of. As such, all this seizure stuff is totally new to me, and I am freaking out about the possibility of one happening at the wedding–which is just six months from now, so I’m not confident they’ll be under control by then.
I have grand mal seizures which, on top of being the most dramatic variety, carry a risk of losing control of one’s bowels and/or bladder. Which is a thing I do not particularly want to happen in my wedding gown. My second seizure actually happened when I was at my very first fitting; thankfully no messes were made but that doesn’t mean it won’t happen in the future.
So are there any brides out there with epilepsy or other seizure disorder? How did you deal with the risk? I should also mention that I have thus far had absolutely no warning a seizure was coming, so I wouldn’t be able to escape and lie down or anything. As the title of my post suggests, I’m seriously considering wearing a diaper under my dress. Which is terribly embarrassing, but significantly less so than messing my dress in front of all my friends and new family.
Has anyone out there worn a diaper under their gown for any reason? How did you pull it off? Also, another issue, my dress is mermaid style, so it fits pretty snug around my hips. There’s enough ruching and beadwork on the top to help mask any undergarment lines, but I am still quite concerned. I’ve never even worn an adult diaper so I don’t know what they look/feel like under clothes at all. Like I said, I was diagnosed literally two days ago as of this posting, so I have nooooooooo idea about how any of this works!
Sorry about the anon account, this is rather embarrassing for me to talk about so I didn’t want it on my main. It’ll probably be embarrassing for some of you, too, so please feel free to PM me if you don’t want to post publicly.
Also sorry if this is not the right place for this kind of thread, I had no clue where to put it.
Any help you can give would be very much appreciated!
Post # 2
incontanon: Sorry about your new diagnosis. Especially because it is a new condiion for you, your concerns and fears are totally understandable. Some people do get auras or warnings of their seizures but it also takes time to be able to recognize if their is any pattern to those.
I have no experience with adult incontinence wear, but the ads on TV seem to suggest there are less bulky products available. Cheryl Burke from Dancing with the Stars does a commercial for one.
Do you have a pharmacy that specializes in incontinence products where you live? Or, an incontinence program at a local hospital? You could phone them for advice.
Check out the websites of the manufacturers. Some of them will have free samples, or you could email asking for a free sample. THis might help you avoid having to buy a full package of several brands.
Post # 3
Post # 4
Those look good, I will definitely have to try them. Thanks!
eta: I don’t know of anywhere with specialty in incontinence, but I happen to live in a city with one of the biggest epilepsy treatment centers in the country, so they might be able to point me somewhere.
Post # 5
<br />Aww. I don’t have any advise, I just wanted to say sorry you’re having to deal with this. Your wedding will be beautiful! Good luck
Post # 6
incontanon: the panties that pp put up look pretty thin and wearable. Sorry about your diagnosis. My younger cousin has absence seizures where you basically loose conscious perception for a few minutes and come to not realizing time has elapsed. They make her very worried about living alone in case she falls and nobody finds her, so I understand your dignity concerns with epilepsy. if you are currently being controlled on medication hopefully your wedding will go smoothly! Good luck
Post # 7
i personally think(from seeing other people in my family and friends circle wear them) that they are kinda big and noticeable to wear under a mermaid dress. also if you do have an accident the depends don’t neccesarily always prevent the excess from leaking through to your clothes. i personally think getting a more pouffy skirt would be smarter and would probably make you feel less nervous about people seeing the depends line etc.
However, if you’ve already gotten the dress of your dreams I’m sure your doctor will have a solution to accomodate wearing the dress.
Everything will work out don’t stress <3 xoxo
Post # 8
There are definitely slimmer fitting types of incontinence products. The type that are the pull on style are typically slimmer then the tabbed style.
I don’t think you will have to change your skirt. Unless it is very thin, 1 layer, satin there will be enough fabric and detailing to mask any type of undergarment. While they are bulkier then regular underpants they aren’t as thick as you are probably picturing.
A few friends of mine with disabilities use them, and I’ve never noticed no matter what they are wearing.
Post # 9
Your hospital or treatment center possibly has a support group; that would be a fantastic resource for you, because you can spend time with others who are living full lives despite their illnesses, and learn their wisdom. I would be surprised if someone in a support group hadn’t gone through exactly the same thing! Ask your doctor, or the treatment center probably has a social worker in staff who can help point you to the right resources! It’s easy for Internet strangers to try to help but there’s nothing better than talking to someone who’s “been there, done that!”
Post # 10
Check out dear kate panties. I wear them at that time of the month due to an excessively heavy flow.
Post # 11
Looks like you’ve gotten some good suggestions so far. I just wanted to say please don’t feel embarrased, you can’t control them. My mom has grand mal seizures as well, she’s had them since a very young age (way before I was even born) so I’ve witnessed them all my life.
She as well feels embarrased when she has an episode in public but she jokes it off eventually. She has come to terms that as embarrased as she may feel she also can’t control them so she won’t keep beating her self up over it. I hope some day you can feel this way as well but right now I know it’s hard & you have every right to feel how you’re feeling with this new diagnosis.
Good luck & I hope you’re put on the right meds & get your seizures under better control. If you ever have any question my PM doors are always open 🙂
Post # 13
My brother has a seizure disorder. His seizures are now controlled very well through medication so hopefully you will have success in your treatment! He has other disabilities as well and therefore has to wear adult diapers (Depends) often. They are honestly much less bulky than you would think.
The Depends women’s underwear linked above looks like it would be a great product for you. Good luck!
Post # 14
I think it will give you piece of mind! Not wedding related, but I was terrified my water was going to break somewhere embarrassing when I was pregnant. I was 100% all for wearing a diaper towards the end. I had a csection so I never got that far, but there is no reason for you to think about something like that when you should be enjoying your wedding. Find the less bulky ones the ladies were talking about and enjoy your wedding! 🙂
Post # 15
So sorry about your diagnosis.
Maybe the thought is stupid, but perhaps wearing Spanx above the diaper might help against visability?