Post # 1
Im waiting for blood test results and I’m seeing my GP again on Thursday but i guess I’m here to vent and maybe seek some advice if others have been through this too…
I’ll start by saying I’ve got Fibromyalgia (so painful) and under active thyroid (levels are fine now)
In the last year I have had 4 colds, flu (the real deal) and gastroenteritis. I’ve had mouth ulcers every month (got a new one today) and my scars don’t heal. I have these funny turns like I’m gonna pass out, not fun when you’re at work or in public. They’re not panic attacks as I’ve suffered from them in the past so I can compare the two.
I’ve developed insomnia (no thanks to my neighbours) but my body wakes up a lot and I need to pee at night every couple of hours (doc once said the peeing must be due to anxiety) I know Fibro is terrible on the sleep front…
I’m never not tired. Im active because I’m stubborn as a mule or determined whichever way you wanna see it 😉 So I do get on with it. I went to work on 2 hours sleep on Thursday and felt sick as a dog by the end of the day.
I take vitamins, drink plenty of fluids, walk a lot, eat well, don’t smoke, don’t drink, watch my caffeine intake.
Anyone else have this problem of being poorly every couple months, scars that won’t heal, ulcers etc?
Post # 2
Tisa85 : Not a doctor, here. But have you ever heard of Postural Orthostatic Tachycardia Syndrome? (POTS) It can make you feel like you are going to pass out, and many people actually do. Do you have any other symptoms? Dizziness, faster heart beat, nausea, etc?
Post # 3
FutureMrsW621 : I do have those problems too 🤔 I’ll see what the doctor says. Thank you! He mentioned checking for diabetes too…
Post # 4
Given that you already have multiple chronic health issues, really, a full work-up with your doctor is best. It’s likely multifactorial and not rooted in just one thing. Is your work up with FULL labs? Because many things you have to specifically request because it’s not covered under the regular labs (for example, Vitamin D is usually not included unless specifically ordered because they suspect a deficiency). And were they fasting labs?
Frequent urination, non-healing wounds and ulcerations, dizziness can all symptoms of diabetes or other similar blood-sugar regulation disorders. Fatigue, easily bruising with difficulty healing, mouth ulcerations and dizziness can also be symptoms of anemia. Low energy, fatigue, and bone and muscle pain can also be caused by Vitamin D deficiency. Mouth ulcerations can also be a sign of a viral infection. They can also be a sign of Crohn’s disease, which could also cause malabsorption and possibly mean you’re not actually getting benefit from the vitamin you’re taking and then lead to other deficiencies like the ones above. Lack of sleep has been shown to weaken immune systems leading people to be more susceptible to illnesses.
I mean, really, you can play Dr. Internet and plug your symptoms into every online checker all day long, but it’s really only going to give you a differential diagnosis of a dozen or more different things that only a full lab work-up and other testing is going to be able to rule out.
Post # 5
Tisa85 : I don’t have the mouth ulcers but every few months I feel like hell and no sleep is enough sleep. I had a break of two years then it started again. Still trying to figure out the cause. I get super itchy all the time and I’ve got new allergies and stomach problems all the time. So I’m here to say you’re not alone with random distressing symptoms. Or perhaps not random, I don’t know…
I second the idea top look at POTS. They thought I had immune but nothing comes up in tests.
Take care, I hope you get relief soon. Hugs.
Post # 6
I have POTS, so whenever I hear or read the feeling faint thing my ears perk up. Have your doctor do an orthostatic test if you can. Real quick and easy, they take your blood pressure/heart rate laying down, sitting, and standing. With POTS, if you stand for too long your heart rate may continue to climb causing the faint feeling. They can also do a Tilt Table Test.
EVERY SINGLE ONE of my bloodwork tests, adrenal testing, diabetes, etc, came back fine. So it’s a tough syndrome, BUT it can be caused by a lot of other disorders/autoimmune diseases. So try to advocate for yourself. I hope you have a good doctor-Good luck!
Post # 7
annabananabee : I agree, he’s asked that I get a test for lots of different things so hopefully I’ll find out what’s going on. Dr Google is the worst Dr ever!