(Closed) Endometriosis

posted 8 years ago in Wellness
Post # 3
Hostess
18637 posts
Honey Beekeeper
  • Wedding: June 2009

I have endometriosis too.  Actually, my last lap was clean but it doesn’t mean that it isn’t there somewhere else.  What we are doing now is just having me on continuous BC.  Right after they found it, I was on Lupron for 6 months to try and dry it all up.  I can’t be on it long term because of bone issues (and it hasn’t been studied for long term use).  If you have any questions, feel free to ask!

Post # 4
Member
6892 posts
Busy Beekeeper
  • Wedding: March 2012

I don’t have it myself (though I do have PCOS, so some of the same issues without the same symptoms) but my mother had endo. If it’s comfort you are looking for – she naturally had three children and didn’t have to TTC for very long at all with any of us.

On the other side, she also had to have a hysterectomy but not until she was in her 40s. She likes that though – now no period. 🙂

Post # 7
Hostess
18637 posts
Honey Beekeeper
  • Wedding: June 2009

@Mrs Grape: The main treatment is hormone therapy (Lupron).  It basically puts you into menopause so you get hot flashes/etc.  My pain went away for a while after the surgery but it’s come back now (I have some other issues as well).  The best thing for the pain for me has been not getting a period because that’s when it’s the worst.

It’s also good to stop your period because doctors believe that is when the endometrial tissue gets out of the uterus.

Post # 9
Hostess
18637 posts
Honey Beekeeper
  • Wedding: June 2009

@Mrs Grape: Yeah they might want to put you on it for a few months like me.  Also, them clearing out everything during the surgery should help with the pain.

Post # 11
Member
448 posts
Helper bee
  • Wedding: November 2011

Hi I think I have endo as well. But I was never diagnosed my doctors don’t seem to care if I am in pain. I solved my own problem by following advice from

endo-resolve.com

 

Diet, exercise and supplements make my cramps MANAGEABLE.

 

I am so so sorry you have this it has been a nightmare for me.

Post # 12
Member
3981 posts
Honey bee
  • Wedding: July 2011

My mother had it pretty badly. Her periods were so painful she would actually have to take a week off school about once a month. She was told she couldn’t have kids because the eggs wouldn’t travel correctly. Well, she had me and then 3 years later, twins! Right after my sisters were born she opted to have a hysterectemy (sp?) to prevent future unessecary pain. I had to be started on birth control at 14 as a preventative for it. Not sure how it works but supposedly it does. It can be really bad an painful or just kinda annoying. It just depends on how bad it is.

Post # 13
Hostess
18637 posts
Honey Beekeeper
  • Wedding: June 2009

@Dsquared: I really think you need to find another doctor who cares that you are in pain!  Try finding someone from the Pelvic Pain Society if possible.

Post # 15
Member
3004 posts
Sugar bee
  • Wedding: March 2010

My mom actually had endometriosis as well as something else that caused a lot of holes in her uterus.

She said that she had extremely awful periods and they were extremely heavy. I hope this doesn’t happen to you but I have heard that BC can really help these symptoms. 

My mom said she was lucky to have my brother because her uterus was like a sieve. She said that she had some complications with him being born breech but everything was ok. 

The topic ‘Endometriosis’ is closed to new replies.

Find Amazing Vendors