(Closed) Adenomyosis? What the heck?

posted 5 years ago in Wellness
Post # 3
Member
258 posts
Helper bee
  • Wedding: June 2014

Aw, I’m sorry!  How uncomfortable!  I don’t have adenomyosis, but as you m ay have googled, it’s basically that some of your endometrial tissue (adeno-) ended up/migrated to the wrong places, namely muscles (-myosis).  Your periods are normal, but your stomach discomfort probably oscillates with your monthly cycle.  They’ll probably put you on a mono-phasic birth control pill to control your hormones more reliably.  The cells, even though they’re in the wrong place, are still exposed to and still respond to any circulating hormones (i.e. estrogen/progesterone), causing them to try to carry out their God-given function.  But since they’re in the wrong place…it doesn’t work out so well, hence your discomfort. 

 

I don’t know much about prognosis, only about the concept.  I hope you feel better soon, best of luck to you! 

 

Post # 4
Member
43 posts
Newbee
  • Wedding: September 2013

@berybery:  I, at 24 years old and no children have it and no idea what caused it.  My cramps were so bad that all I could do was lay on bed and cry for two weeks out of the month.  It felt like someone was stabbing my lower back, stomping on my lower stomach and trying to pull my insides out.  Not a whole lot is known about it.  My option were a hysterectomy or birthcontrol that completely stops my period.  I don’t want children, but at the same time I might change my mind later in life so I opted for the Depo Shot.  I had a bad experience with the shot in the past, but I was in so much pain and so miserable I decided I was going to take my chances.  I was diagnosed a year ago and I’m doing fine now, with the use of the Depo.

Post # 7
Member
9642 posts
Buzzing Beekeeper
  • Wedding: September 2012

@berybery:    ((HUGS))  Yep – I was diagnosed with it back in 2007.  OMG, the pain was excruciating, so I really feel for you.  I’ve never known anyone besides me to have it. 

After going through several doctors and doing a ton of research, I had a partial hysterectomy by laser surgery, so nothing was removed except my uterus (the surgeon cut it into tiny pieces with a laser and pulled them out of my belly button).  I did not want to lose my cervix or ovaries, I was adamant about that.  The disease affected my uterus only and I wasn’t planning to have more children anyway.

The best thing about that kind of surgery – minimimally invasive, minimal scarring (two very tiny incisions only) and fast recovery.  I was back at work in 4 weeks.  No more pain and no more periods!!  Yay for that.

Post # 9
Member
340 posts
Helper bee
  • Wedding: July 2013

I was diagnosed last year after i complained about the constant pain after sex, i cry. I also have endo. For the endo i took depo in the past but had horrible side effects . As for therapy, because i have both dr recommends i dont bleed at all to help with the pain so i take Yaz right now continuesly every day of the year. Sex is painful, bowel movements at times, and a feeling of bloating all the time. He said he could go in there to help remove tissue but since i would like to TTC in the next 1-2 years he said it was better to wait. His recommendation was if he went in and things were bad i would get a hysterectomy. However he said just because it it looks bad inside it doesnt mean you cant concieve so he said to just TTC and see what happens. All i know is the minute i have a baby i want everything out of me…im tired of the pain

Post # 10
Member
285 posts
Helper bee
  • Wedding: October 2000

@Sunfire:  Would you mind if I PM you for some info unless you don’t mind sharing publicly. I am going for my second consult next month with my dr to discuss partial hysterectomy. I have questions that I’d like to hash out prior to my visit. Thanks:) 

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