(Closed) ADHD- Anyone with kids that have been or are being assessed?

posted 6 years ago in Parenting
Post # 3
Member
1778 posts
Buzzing bee
  • Wedding: August 2010

I didn’t, but my cousin’s child was assessed with ADHD and I was part of the conversations/support for her.  It was a difficult process, but things are SO much better for her.  They tried many different approaches and eventually found that a very low dose of meds was what she needed.  The child feels much better (like she can focus) and is doing great in school.  Just remember that you have to be an advocate for your child and you might have to push them to get the services your child needs (if any).  I know it’s difficult, but try to look at it as “finding the best path to help your child” rather than “figuring out what is wrong.”  Going in with a positice attitude will definitely help you!

 

ETA: Good luck and I hope you have a smooth process!

Post # 5
Member
1778 posts
Buzzing bee
  • Wedding: August 2010

@Take The Reins:  Please make sure you are in touch with your insurance company.  You will need to get a lot of documentation (for more insurance companies) to get assessments and therapies paid for.  They may give you a limited amount covered and then allow for more if needed.  As for the private school, do they not have an IEP system?  That sounds tough.  Do they have special education classes?  It may be that he may need help for some subjects but not others (for example maybe he has no problems paying attention with music or art but he has a lot of trouble with his behavior during math).

 

ETA- I see you are in Canada.  I have no idea what the systems in place are like up there.

Post # 6
Member
9916 posts
Buzzing Beekeeper
  • Wedding: June 2013

@Take The Reins:  In the United States, every child is entitled to a “free and appropriate education;” do you have something similar in Canada?  Many private schools in the United States do not have state of the art programs for students with learning differences because they don’t have to.

How old is your step son? (I assume that’s what SS means.)  How many years has he been in school?  

Post # 8
Member
480 posts
Helper bee
  • Wedding: December 2015

I’m not a mother yet, but when I was young I was diagnosed as having ADHD. It made such a major difference, because before treatment I was unable to concentrate at school, and was constantly fidgeting and getting distracted. I was put on ritalin when I was about 8, which really helped. Before being on ritalin if I was in class and I saw a lawnmower outside I’d completely lose interest in what the teacher was saying and I’d look outside at the lawnmower. Any noise really bugged me and distracted me.

When I was put on ritalin it felt like there was an invisible force stopping me from getting distracted. I also went for hearing tests, and tests to check my brainwaves etc. I was also sent to a councillor who specialised in treating children with ADHD. I’ve also dealt with a few ADHD children at work (I relieve in an early childhood centre) The most important thing I’ve found is being super organised, and having a routine really helps me. I also found that with my ADHD certain things triggered it more (maths especially)

I think it can be really hard now a days to get treatment and help for ADHD, but you just have to be really pushy to get help. I’d also suggest going to support groups in your area, and getting in touch with any ADHD groups or foundations.

Good luck!  

Post # 9
Member
1778 posts
Buzzing bee
  • Wedding: August 2010

@Take The Reins:  Sorry I wasn’t very clear, I didn’t mean just psych care, I meant things like occupational or art therapy if he needs it.  He may very well not need anything special other than an assessment and a slightly different treatment from adults or to have his seat moved in class. I’m really hoping for the best for your family! It’s really difficult to get help, but it sounds like your stepson has good people in his corner willing to fight!

 

@MissMfutureMrsB:  The invisible force analogy is a really good one! It’s actually almost exactly what my cousin’s daughter said (she called it an invisible bubble). Support groups is a really good piece of advice as well!

Post # 10
Member
480 posts
Helper bee
  • Wedding: December 2015

@Schatzie821:  Aw that’s adorable! Tongue Out +1 on the moving of your SS’s desk. It helps to be closer to the teachers desk so that she can keep her eye on him, and tell him to pay attention etc, and to make sure that the other kids aren’t distracting him. 

Post # 12
Member
964 posts
Busy bee
  • Wedding: June 2012

Hi. I wanted to share…

My stepson is now 7. His journey with ADHD started at age 3 when Darling Husband (at the time a single dad) woke up to SS not being in the house. He had unlocked the door and walked down the street to the babysitter’s house. FREAK OUT moment!

He has since been tested and has ADHD. He has been through several meds already. There was an issue with his mom not wanting him to be on meds… slowing down the process. We had to hospitalize him in November because he was getting very aggressive. Come to find out he also has mood disorder (not called bipolar since he’s so young). I think that is more of his issue, but very often ADHD and bipolar are seen together.

The medications will continue to need tweaking as they age and have different issues. He has an awesome behavioral specialist at his school. They have come up with great ideas to help limit distraction… trifold board to go around his desk during test, noise cancelling headphones, a break every 45 to 60 minutes. You have to be the advocate and make sure his teacher is on board. If you have any other questions, PM me. The journey can be long, but the results can be good. Also check to see if you have a CHADD group in your area. It’s a support group for parents and adults with ADD/ADHD and serve as a good resource and support.

Post # 13
Member
1572 posts
Bumble bee

My little brother has ADHD and it was diagnosed when he was in about 4th grade. His teachers frequently went to my mom about his issues, and when my mom took him to the doctor, he gave my mother an assessment to fill out about him and then also one for his teachers to fill out (has to be present in more than one area). After taking Abnormal Psych for my degree (I have a Psych degree), I realised that he not only had enough symptoms to qualify for the diagnosis.. he had EVERY symptom! He was on Adderall for a while, but it made him SUPER emotional, so they switched to Concerta and that one helped him tremendously. However, when he was in middle school my mother (with no support from any medical professionals) decided to take him off the meds and that he “didn’t need them” and yet she complains all the time about how he acts and his terrible grades. He is 15 now and still has a lot of the same issues, my mother just doesn’t get that it isn’t something that he will grow out of, he can improve but it isn’t going to just disappear one day… And he loves to use it as an excuse to not try and do well in school or behave like a civilized person.. just a mess all around.

I believe the best thing when kids are diagnosed with ADHD is for them to stick with the meds, but also do behavioral therapy as well. I HATE when people act like it is just a made up disorder, I invite all of them to live with my brother!

Post # 14
Member
93 posts
Worker bee
  • Wedding: October 2014

Children with UNTREATED ADHD are at higher risk for substance abuse and low self esteem.  Usually they self medicate later on and have lower self esteem in class, because they are constantly in trouble. If a child is having trouble, and nothing is working. Treatment with medication AND therapy may help.  Here are some ins and outs of filling ADHD meds at the pharmacy.

Stimulants are used to help the child FOCUS.  They will not help the hyperactivity.  These medications include…

  1. Amphetamines (Adderall)
  2. lisdexamfetamine (Vyvanse)
  3. Methylphenidate (Ritalin, Concerta)
  4. Atomoxetine (Strattera)- less effective, but not a controlled substance.  Can be a great option, but Im not going to cover it in this post.

Good things to know about filling perscriptions for these… The first 3 are controlled substances.  They are as controlled in the pharmacy as oxycontin (they DO NOT do the same thing as oxy and are nothing like it, they are just under lock and key in the same way).  THis means that you will need a HARD COPY perscription each time you want to refill this medication.  If the doctor messes up the written perscription that you bring to the pharamcy, the doctor CANNOT call or fax the right perscription.  In this case you will have to get a whole new HARD COPY from the doctor.

Most pharmacies will not fill a refill more than 2-3 days before the medication supply runs out.  For example, if you get a 30 day supply, you will not be able to fill the next script untill at least 28 days have passed. (the amount of days you can fill early depends on the pharmacy)  This mean you have to be on a schedule… call the doctor for a new script about 5 days before it is due, go pick it up, bring to the pharamacy, and then pick it up when it is due.

Some pharmacies do NOT always have the medication you will need in stock.  This is why it is good to bring in the HARD COPY script early.  Even if it cannot be filled you (the 2 day rule), it will give the pharmacist time to order the medication.

Some insurances prefer one drug over the others.  The first 3 are have all about the same efficacy.  Go with the one your insurance pays for.  The differences aren’t big enough to spend more money than you have too.  Call the number on your insurance card to figure out what meds they cover for ADHD BEFORE you get to the doctors office.  You can give this info to your doctor, so the he or she can prescribe the covered medication for less hassle.

Most insurances will need the doctor to call in a prior authorization (PRIOR AUTH) for many of these meds.  This means that the insurance makes the doctor jump through hoops to help you get this med covered.  The perscribing doctor will have to CALL the insurance company and tell them what other meds have been tried, why they didn’t work, or why this med is necessary for the patient.  This is common, and if this is needed, it is good for BOTH the pharamacy and the patient to contact the doctor to get this done.  Usually the patient needs to keep calling the doctor to make sure it is done, because some doctors drag their heels.

Hope this saves you some trouble.

@Take The Reins:  

Post # 15
Member
2951 posts
Sugar bee
  • Wedding: February 1998

My 13 year old son has ADHD & OCD.

It’s a real struggle and the process in Australia is really long and draining. 

I do anything I can to help him.  He is medicated already for his OCD  which has  made him happier. I have chosen not to medicate him for his ADHD as the 2 meds don’t work well together. 

I have learnt so much and i will never give up on him 

 

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