(Closed) Any bees dealing with cutaneous lupus?

posted 7 years ago in Wellness
Post # 3
Member
678 posts
Busy bee
  • Wedding: November 2011

I’m sorry that I just saw your post, but know that you are NOT alone!  I have SLE that affects my joints and muscles.  My mother and aunt also have lupus.  I was diagnosed last year at 29, but had symptoms since college. 

I try to avoid direct sun exposure for extended periods of time and workout and practice breathing to deal with stress.  I altered my diet to alleviate pain and see a rheumatologist and hematologist because I also have extreme vitamin deficiences and anemia. 

 

It’s important to have a good support network.  I am actually walking in the DC Lupus Walk with my fiance and a group that I formed at church.  it also helps that IU can talk to my mother and aunt.  Know that lupus manifest itself differently in everyone, so make sure to find knowledgable and flexible health care providers.  See if there is a Lupus support group or organization in your area.

You can fight and manage living with lupus, it will take some adjusting…but, I have faith it will all work out!!

Post # 4
Member
1115 posts
Bumble bee
  • Wedding: April 2010

Glad to see this post. My husband has this. It took him several derms to figure out what it actually was.

Like you, even with the topical meds they give him which keep it at bay most of the time, he does still have some flare ups now and again.  I don’t really have any tips for you because he’s kind of dealing with the same thing. Sunlight, stress, diet, etc…all triggers.

He wears SPF 45 daily and a hat when it’s going to be super sunny out.

Other than that, I don’t know what to tell you except you’re not alone!

And Makeup Forever HD foundation is awesome!!

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