Post # 1
In 2009, I started having a strange rash on my face. It was kind of itchy, scaly, and bumpy/raised. I thought it was a sunburn at first, but it just wouldn’t go away. Several months, dermatologist appointments, medications, and 1 biopsy later, the diagnosis I got was cutaneous lupus. Since the diagnosis, my doc tried several topical corticosteroids, and finally she had to resort to an oral anti-malarial drug to get my rash to resolve. Now it’s back 🙁 I am in a tough spot because going back in for more appointments or medications will be very expensive – I am in a new job, and have my own individual health insurance policy that won’t cover any lupus-related treatments for the next 5 years. Stupid health care/insurance system.
I was wondering if any of you bees also have this, and how you deal with it? Other than sunscreen, how do you help prevent flare-ups? My triggers are definitely stress and sunlight, which means there is a very good chance I’ll be dealing with a lovely lupus rash at the time of my early October wedding. Do you have any great makeup secrets for covering up rashes?
More than anything, it would be nice to know I’m not the only one struggling with this. 🙁
Post # 3
I’m sorry that I just saw your post, but know that you are NOT alone! I have SLE that affects my joints and muscles. My mother and aunt also have lupus. I was diagnosed last year at 29, but had symptoms since college.
I try to avoid direct sun exposure for extended periods of time and workout and practice breathing to deal with stress. I altered my diet to alleviate pain and see a rheumatologist and hematologist because I also have extreme vitamin deficiences and anemia.
It’s important to have a good support network. I am actually walking in the DC Lupus Walk with my fiance and a group that I formed at church. it also helps that IU can talk to my mother and aunt. Know that lupus manifest itself differently in everyone, so make sure to find knowledgable and flexible health care providers. See if there is a Lupus support group or organization in your area.
You can fight and manage living with lupus, it will take some adjusting…but, I have faith it will all work out!!
Post # 4
Glad to see this post. My husband has this. It took him several derms to figure out what it actually was.
Like you, even with the topical meds they give him which keep it at bay most of the time, he does still have some flare ups now and again. I don’t really have any tips for you because he’s kind of dealing with the same thing. Sunlight, stress, diet, etc…all triggers.
He wears SPF 45 daily and a hat when it’s going to be super sunny out.
Other than that, I don’t know what to tell you except you’re not alone!
And Makeup Forever HD foundation is awesome!!
Post # 5
Thanks, ladies – I’m glad you replied!
@Theresa90405: I will give the Makeup Forever HD foundation a go. I think even just having a good foundation at the ready will help lessen my stress about this, and maybe help prevent it from flaring up!