Any bees who have Hashimoto's?

posted 2 years ago in Wellness
Post # 16
Member
2042 posts
Buzzing bee
  • Wedding: May 2016 - Sussex, UK

I have hypothyroidism, not Hashimoto’s but have all the symptoms you describe. Still trying to get my TSH under 3 but taking forever. Been TTC for 9 cycles. My friend was diagnosed with Hashimoto’s at 8 weeks pregnant with her first. She conceived first cycle and then with her second it took two cycles. It definitely can cause fertility issues but not for everyone.

Post # 17
Member
470 posts
Helper bee
  • Wedding: March 2017

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saratiara2 :  Don’t be nervous…you don’t HAVE to be a such a restrictive diet, my advice is to do what is best for you. I personally (and this is just my personal opinion based on books and documentaries) think that the antibiotics and hormones in the meats we consume is to blame for A LOT of diseases and medical issues we have. Yes, people will argue veggies has those too, but definitely not to the same degree as meat does. Any how…the part that stinks is that everything with diseases is trial and error. You really have to try a few things out and see how to feel or what your bloodwork looks like. This is why I urge you or anyone that has this disease, to go to the library and read as much as you can. The saying “You are what you eat” is so TRUE!

I tried going gluten-free and Vegan at the same time and i think that is why i failed on both diets. gluten free was restrictive and adding on Veganism was just a lot to change in my normal routine. I am now eating gluten, although I do not eat a lot of it, and being a vegetarian (which is really just eating eggs and some cheese. I cut milk out of my diet a LOOOONG time ago because it made my stomach feel icky after I consumed it).

As for the energy, that will get better once you are on a thyroid medication. It’ll make you feel MUCH better.

Post # 18
Member
470 posts
Helper bee
  • Wedding: March 2017

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ann.reid.9277 :  Hello Bee! 🙂
Yes I’ve done a lot of homework. I will say, I am currently going to see a second Endo for a second opinion even though I already have one. This is another advice I have for all bees to ALWAYs get a second opinion. You never know other doctors may have better insight or different treatment option that may be best for you!

As far as the natural thyroid treatment I’ve actually never heard of that…I’ll definitely bring it up to my Endo when I have my appt in 3 weeks. The only symptom really that I have and that annoys the crap out of me is the hair shedding…my hair sheds SO MUCH…and idk how I am not going bald. But I must have a lot of hair because I still have a lot of it.

Post # 19
Member
926 posts
Busy bee

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appleblossom217 :  there is no existing treatment for Hashimoto’s in the medical sense since it’s an autoimmune disorder where our cells attack the thyroid. But like what you have updated us all, it can be controlled and the effects minimised. So thanks a lot for the update!

 

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saratiara2 :  my GP diagnosed me with Hashimoto’s thyroiditis and subclinical hypothyroidism after testing for anti-thyroid peroxidase (TPO) antibody and had a thyroid ultrasound scan. Taking levothyroxine helped to reduce most of the hypothyroid symptoms and hopefully helps my thyroid to slow down towards the path of destruction. Get it tested. Sometimes my TSH is at normal range but I felt utterly rubbish. But do work with your doctor on this.

Post # 20
Member
1315 posts
Bumble bee

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saratiara2 :  I have not been diagnosed, just here to say I feel your frustration. I have all the symptoms you listed and  I have lost so much hair it’s scary, my ponytail feels about half of what it used to be in my hand.  I have cried looking at the shower drain before. I have actual bald spots, small ones. I’m lucky I started with a lot of hair.

The last time I had my TSH checked it was 4.7 which my doctor said was fine even with the issues I’ve been having AND knowing that my mom has been on thyroid medication since she was younger than I am now.  He gave me some ridiculous and irrelevant dietary advice and sent me on my way. I was livid once I got home and read more about TSH levels. I feel so defeated.

I was finally able to get an appoinnent with a good doctor, my mom’s, who hasn’t taken new patients in years.  She seems to get great care from him and she’s been going to him for a decade so I’m hoping he pays more attention to me than previous doctors.  I’ve been waiting two and a half months for the appointment and it’s finally coming up at the end of the month.

Good luck to you.  It seems that when it comes to thyroid you have to be your own advocate and be a real pest to doctors to get anywhere.  I hope you update us.

Post # 21
Member
176 posts
Blushing bee
  • Wedding: April 2016

I was diagnosed 18 months ago. Its been the hardest 18 months of my life. I had been feeling tired, not just tired tired but OMG I’ve been partying for a week tired (without the partying!) finally found a dr who, instead of just saying “oh you’re a woman and getting older its natural to feel like that” decided to check my TSH levels…..they came back at 12!!! the first thing he did was put me on thyroxine 50 mcg and some low dose antidepressants (yep depression is a byproduct) I have my bloods checked every 3 months and have had my meds increased each time.

I’m now taking 250mcg thyroxine, eating gluten, sugar and lactose free (for the most part) I’ve done the elimination diets and some are good some not so good. there are some great websites and diet suggestions around, go on to pinterest and type in thyroid diet or Hashimotos diet. Its trial and error you need to listen to your body, rest when you need, cut as much stress from your life as possible (easier said than done I know) get into yoga, tai chi etc, gentle exercise rather than hard workouts which can actually bring on flareups.

Have your bloods checked every three months not only for TSH but Antibodies as well, if you have a good dr get an annual ultrasound on your thyroid as well to check whats happening, if you can get your adrenal levels checked as well. Forget about losing weight for the time being.  

Good Luck with it all x

Post # 22
Member
152 posts
Blushing bee

I have it. I have been completely unmedicated since I was diagnosed 3 years ago. I found out after I completely would not take no for an answer about why I couldn’t lose weight. I would have trouble with weight loss in these little bursts. I wouldn’t put weight on but if I didn’t watch my diet the weight would just stick to me.

Finally they tested not only my TSH but my thyroid antibodies which were well over 1000. It made sense. For years doctors had been telling me I had a large thyroid and would run the tests but only my TSH and it was always normal.

The weight is STILL a problem. This summer I harrassed my doctor into running every.thryoid.test because my hair was shedding a lot. (still is and has thinned) They checked everything and not a one level was in the danger zone. My ferritin level is low (17) so i’m trying to supplement with iron.

If you find out you have it and are going the natural route there are things I’d suggest. I now take selenium and managed to reduce my antibodies by half in just a few months. I take several supplements and did AIP diet for a while. I now do AIP/Paleo and am completely gluten free. I keep carbs under 100 grams a day and sugar under 50. Yoga has helped. I have SLOWLYYYYYY lost 20 pounds since august. It’s the hardest challange ever and with 15 to lose it’s going to be a fight to get it off. The diet and supplements have helped with many of the symptoms. But natural isn’t always the best route especially if your levels are out of whack.

Post # 23
Member
152 posts
Blushing bee

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soon2btnt :  I completely agree about listening to your body. I actually tried veganism for the symptoms and weight loss. Made it three days and was so tired I could barely move. Bad brain fog too. You really have to go with what your symptoms are telling you.

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