Post # 1
I have recently, in the past three years been diagnosed with lupus. In the past year, I’ve been having more and more flares. I’m worried that I’ll have a flare on my wedding day. I hoping for the best, but if I do have a flare, I’ll be in so much pain, I don’t know what I’ll do.
Have any of you dealt with this? Do you have a plan for if this happens?
Post # 4
I don’t have lupus, but one of my business partners does (we have a holistic health practice). She was diagnosed years ago and has treated herself through diet – she is vegan and gluten free. She works with people who have all types of auto-immune disorders. I don’t want to spam the boards here – but if you’d like her contact information shoot me a pm/email and I will forward it along.
Good luck 🙂
Post # 5
I was recently diagnosed, not a surprise but it’s still hard news to take (my mother, aunt (mom’s sis) and other relatives have it. I’ve actually had symptoms since I was in college, but it was recently confirmed. I’m taking it all in stride and focusing on my health, reducing work/life stress (heh, and I’m an attorney) and planning for the big day…it is manageable and you can live a full life. Don’t automatically start taking a ton of meds and just find a great specialist an rhumatologist to work with.
I’ve been planning for sometime (unofficially) to reduce stress as the big day approaches and I hope I won’t have to take any medication…
You’re in my prayers…and I hope you had a beautiful wedding day (flare and stree-free!)
Post # 6
@diva81esq: Thank you! I’m actually not taking any medication, except for naproxin when the pain is too much to bare/bear (I never know for sure). I have started taking systemic enzymes, which have made a huge difference in my flares. They are fewer and further between, and they are shorter when they do happen.
I did have an absolutely lovely day, perfect, and fortunately did not have any flares until we returned home.
We have been talking about my work situation. Jim would like me to find something that is very low stress, preferably something that will allow for a flexible schedule in case flares occur… not an easy task to find such a job. Right now, since I haven’t found a new job, we’ve been talking about me possibly opening an Etsy store and sell bridal accessories.
I can’t imagine having lupus and being a lawyer. That cannot be easy. How do you manage? Plus planning a wedding… Wow. I hope you have a lot of help, and that your fiance is very understanding.
My wedding was beautiful–lupus-free and stress-free. That was one of the reasons we decided to elope, so I wouldn’t have the stress that naturally goes along with a big wedding.
Post # 7
YAY, I’m so happy that you had a beautiful wedding day!! CONGRATS to you and the MR!! You are too kind!! Good luck in your job search and with your Etsy endeavour…what field are you in? Oh, what type of accessories (hehe)?