Any chronic migraine sufferers here?

posted 4 weeks ago in Wellness
Post # 16
Member
6806 posts
Busy Beekeeper
  • Wedding: April 2016

Okay so I’ve been a chronic migraine sufferer since puberty (I’m 36 now) and in the last few months they had gotten even more frequent to the point where I was getting ones every other week that would last up to 3 days. Awful!

I recently switched to a new preventative medication just a couple weeks ago. It is the first prescription medication developed specifically to target migraines. It’s called Aimovig. It’s only been around a couple years and I think there are now 1 or 2 others (I think Ajovy is the name of another one). Anyway I’m very excited about this because as you probably know all other migraine medication was originally designed to treat something else and the side effects were frankly horrendous more often than not. Well it’s early stages of these drugs but so far there’s literally no side effects listed except for mild constipation I think.

Now I don’t know if Aimovig is going to work yet for me or not. My doctor said it could take 3 months before we really see results (it’s a monthly injection). But I’m excited to at least be trying something that’s actually FOR MIGRAINES. I’m trying to stay optimistic! The other downside is that you have to have good insurance because from what my doctor said most insurance companies won’t cover this until you’ve tried at least two other preventatives and then even still sometimes you’ll get denied. Ugh. Thankfully (?) with my horrible migraine history I got approved right away.

Best of luck! 

Post # 17
Member
284 posts
Helper bee

I was a chronic migraine sufferer for years, with aura and vomiting. These would happen at least twice a month. I quit all caffiene (mostly diet pop) in January for other reasons and ever since then I have had maybe 2 migraines, which both seemed related to the weather. 

Post # 18
Member
700 posts
Busy bee

chocco :  Me! Mine have gotten SO much worse now that I’m in my 30s. Do you see a neurologist? If not, I’d recommend finding one. Being hydrated is key for me along with making sure i have balanced electrolytes. I’ve also noticed that sugar is a big trigger for me so I try to stay away from sugars/non-complex carbs.

How often are you taking your abortive meds? I went through a phase where I was having migraines so often I was taking too many of the abortives and was getting rebound headaches in addition to the migraines. My neuro prescribed a steroid pack to help reduce the rebound headaches and now I’m conscious about taking no more than two abortives per week. All that being said I’m still having trouble controlling my migraines, I’ve tried 3 preventatives in the past couple years and have made an appointment to try botox next. I would NOT recommend Aimovig, my side effects were terrible. 

Post # 19
Member
6806 posts
Busy Beekeeper
  • Wedding: April 2016

FutureMrsGrabs :  I’m curious what side effects you had from Aimovig because my doctor said that aside from constipation and possible injection site irritation that there were no listed side effects. I personally haven’t noticed anything yet but I did just start my first injection a few weeks ago so I’m trynig to remain aware. 

Post # 20
Member
867 posts
Busy bee
  • Wedding: June 2017

Oh Bee. I feel for you. I’m a chronic daily migraine sufferer as well.

I highly recommend 3 things: steroids to break a cycle, acupuncture, and Botox. Botox has been life changing and most insurance plans cover it. It lasts 10-12 weeks and it allows me to function as a normal human.

Post # 21
Member
700 posts
Busy bee

llevinso :  I’m glad you haven’t had any, from what I’ve read it seems like 1 in 6 don’t have any side effects so I hope that continues for you and it works! About a week after I got the shot I googled Aimovig side effects (due to what I was experiencing) and there were threads with THOUSANDs of comments on side effects. I honestly would’ve never taken it if I’d known and I’m shocked that there’s so few side effects listed after reading what I’ve read since I got it. I typically am not sensitive to medications and almost never have side effects but I had so many with Aimovig. It started with severe insomnia, bruising, mood changes, joint pain, night sweats, along with a bunch of other things. I’m about a month post shot and am finally feeling better but I also hate how long it takes to fully leave the system. I am not on any other medications than that so it couldn’t have been anything else. 

Post # 22
Member
700 posts
Busy bee

letsdothisthing :  I’m planning to try Botox as soon as I can get in (assuming I’m not pregnant) and am so glad to hear it is working for you! How often do you do acupuncture and do you find that it helps a lot? 

Post # 23
Member
6806 posts
Busy Beekeeper
  • Wedding: April 2016

FutureMrsGrabs :  Interesting. Thanks for sharing! I definitely am not experiencing any of those things yet. We’ll see how it goes. I’m going to try and keep an open mind and stay optimistic. My doctor did say though that since it’s such a new drug, it’ll be years before they know the full list effects. 

Post # 24
Member
1229 posts
Bumble bee
  • Wedding: June 2016

No me but my husband was a chronic migraine sufferer. He always said stress and poor sleep were his triggers.

For other reasons he went off of caffeine and alcohol and migraines basically disappeared. He hasn’t had one in a year now. He was probably a 2-3 cups a day coffee guy and maybe a nightly beer/wine 4-5 days a week.

With experimenting he can have cider and mixed drinks but beer and wine are totally out (wine was first out and beer was OK, then beer seemed to become a trigger — so he’s watchful to see if it spreads to other alcohols too).

He also is super conscious about hydration and has electrolyte powders to mix into his waters to maintain balance correctly.

Post # 25
Member
16 posts
Newbee
  • Wedding: May 2020

saturnian :  it is quite inconventional and doesn’t always for for everyone, but it is worth it! 

chocco :  I put it off for almost a year because I was sceptical, but it worked!  It hurts like a son of a bitch to get done but the momentary pain is well worth it! I no longer wake up everyday in pain!  Look into it, and if you decide it is something you want to try just make sure you go to a reputable piercer, they have to hit a specific spot.  I went into it with the attitude that if it works, great, if it doesn’t at least I have a cool new piercing lol.

Post # 26
Member
86 posts
Worker bee

Apparently Botox is excellent for chronic migraines. Have you tried it?

Post # 27
Member
224 posts
Helper bee
  • Wedding: October 2017

If your migraines are genetic, you should look into getting tested for the MTHFR gene mutation. I have the mutation and can’t absorb folate very well and somehow they have linked this to some migraine sufferers. As soon as I started taking vitamins with methylfolate (As suggested by my doctor), I haven’t had a single migraine. I’ve been migraine free for 2 years. Just my experience, not sure what will work for you! 

Post # 28
Member
177 posts
Blushing bee

Are you on birth control? I had migraines 10+ days a month for almost 3 years, which coincided with the three years I was taking birth control pills (different ones, migraines with all of them).  I stopped taking BC as an experiment and the frequency of migraines went down drastically and things that I thought were triggers didn’t bother me anymore (only had them around menstruation). Turns out I also have epilepsy and fluctuating hormones around menstruation are a trigger. I’m sure your neuro has thought of this but it’s worth mentioning since people with migraines have epilepsy at a much higher rate than the general population. Probably not the problem, but then again I never thought I would have this issue either. Good luck!

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