(Closed) Any other Bees have Raynaud’s Syndrome?, I’m in need of advice.

posted 6 years ago in Wellness
Post # 4
Member
3773 posts
Honey bee
  • Wedding: December 1999

I don’t have it a, but I know somebody who did and she pretty much just delt with the sypmtoms by altering her lifestyle. I know she didn’t go out when it was cold and sometimes had to keep her gloves on if it was chilly inside. I am sorry I don’t have any better advice. I think it would be a cardiologist that you would see since it is a disease of the blood vessels. It is important to find a doctor that is fimiliar with it though because the drecreased circulation can cause a lot of damage to the nerves in the hands and feet and can lead to really bad sores.

Post # 6
Member
385 posts
Helper bee
  • Wedding: June 2013

A rheumatologist is normally the physician you would see for diagnosis and treatment of Raynaud’s. I have Raynaud’s and have had it for years.

The first thing after a diagnosis of Raynaud’s is to establish whether it is Primary or Secondary Raynaud’s… There aren’t any specific tests they can run, but the doctor will go over all your symptoms and history with you. Primary is when there are symptoms without an underlying disease process, Secondary occurs along with an underlying disease. The secondary form is generally more severe and harder to treat. It is very important to determine whether it is one or the other.  There are symptoms you may not even realize you have (nailfold changes etc) which a rheumatologist can pick up on.

You may want to check out http://www.raynauds.org/index.php/raynauds/frequently-asked-questions/

I have secondary Raynaud’s, and so while there are medications that I could take, I mainly just deal with it via lifestyle changes as my rheumatologist does not think the meds would help enough to make a significant difference.  I don’t want to scare you, but Raynaud’s was my first symptom of Lupus and MCTD.  I have had Raynaud’s for 6+ years and was only diagnosed with Lupus last winter.  There are a lot of people who have primary Raynaud’s, and that is probably all you have, but it is so important to find out early if you have another issue going on.

raynauds.org has a lot of good information on it, and I hope this info helps you! Feel free to message me if you have any other questions! Good luck with the doctors and don’t be afraid to speak up and ask questions. Smile

 

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