(Closed) Any other bees with Scoliosis?

posted 7 years ago in Wellness
Post # 3
2981 posts
Sugar bee
  • Wedding: August 2011

I do! I can totally relate. Mine was so bad that I was beyond the brace and went in for corrective surgery (Harrington rods from T3 to T12) when I was 12. I have a nice big scar down my spine and one on my hip where they took bone out for the graft.

As far as the effects of it and how I look now, my right shoulder blade sticks out a little bit further than the left, and I have a short leg (by like an inch) but really, 99% of people can’t tell I have it, except for my rad battle scar. I’ve tried chiropractic to ease some of the pain. My sacrum rotates and my right SI joint gets painful when I walk alot. Chiro really seems to help, as does massage for knots. 

When I bought my dress, I got a standard V cut out back. My curvy spine and scar don’t bother me anymore at all. It’s just a part of who I am, like having hazel eyes or skinny wrists. Here’s a pic of me from behind. I’m kinda standing like a linebacker (wasn’t really ready for pic!) but it gives an idea of what I look like after I was “pulled straight”.

Post # 4
726 posts
Busy bee
  • Wedding: June 2013

I have scoliosis too! My curves are well into surgery range, but I don’t want surgery and I don’t feel like I need it at this point in my life. Maybe later on, but definitely not any time soon. I have tried and will continue to try everything under the sun to help. I recently discovered the Schroth method, and went to a clinic to learn the exercises. Too early to tell if there is any “real” progress yet, as it’s only been almost a month, but I have noticed I’m able to do things for longer (like clean) without getting all pained up. The best part about Schroth is that I actually like it (can’t say the same for yoga or pilates) and I like that it’s something I can do on my own (can’t say the same for chiropractic or osteopathic manipulations, or massages which I love ever so much).

More info on Schroth http://www.schrothmethod.com/clinical-scoliosis-studies and the clinic I went to is http://www.scoliosisrehab.com/

ETA: I missed your part on the emotional effects, which I’m taking to mean self-image (correct me if I’m way off on this). Well, yes I’m paranoid about it, since I’m so obviously crooked (I have a crease on my right side between my ribcake and my hip, and the right ribcage has a huge hump from the rotation), but it doesn’t stop me from wearing two piece bathing suits! I refuse to believe in any standard of beauty that I can’t be included in. This goes for my height, my cup size, my hair texture, my skin color, my figure with curves in places where curves don’t belong. And any other things that come into play with “beauty”. So I know it’s all very cheesy and “love thyself”, but really, it’s the best way to be!

Post # 6
899 posts
Busy bee
  • Wedding: November 1999

Thankfully, my back is a straight as a board, but my mom had a severe case of scoliosis. Her back was in a s-curve, so it didn’t affect her appearance much. When she was in her 40s she had to have corrective back surgery (twice!) because she didn’t wear her brace when she was younger. It was really hard for her: it was something like a 6 month recovery – each time. She has lots of metal in her back and can’t bend it. She can only bend from the waist so she always sits up straight. BUT, it doesn’t get her down – she just has to adjust.

Yes, you might feel a little uncomfortable, but I can assure you that on your wedding day, no one with think – oh RahlyRah has a crooked back. They will only think about how beautiful you look!

Post # 7
410 posts
Helper bee
  • Wedding: May 2012

I don’t have it but my 2yr old son was born with it so he has congenital scoliosis. Unfortunately it’s the type where bracing is useless so he has to have surgery and soon. They want him to have VEPTR surgery where the put rods from his rib to his spine and rib to rib and he will have to have them lengthened every 4-6 months until he quits growing. Not fun. We’re currently seeking other opinions, one in LA and the other Boston. So far one doc wants ro remove his hemi-vertebrae but that scares the crap out of me! The majority of his is at the base of his neck so his head tilts to the left a bit especially when he’s tired 🙁

Sorry I didn’t mean to use your bridal post to share this info but I like to hear about adults of scoliosis and what the experience. I always wonder what all this will mean for him down the road.

From my own experience with him, I would say the majority of the time strangers or others that don’t see him regularily they don’t notice his scoliosis much. I would assume the same would go for you in your dress AND I think JessicaVictoria814 had a really good point in saying it’s just a part of who she is. Everyone at your wedding cares about you regardless of you having had scoliosis

Post # 9
3982 posts
Honey bee
  • Wedding: July 2011

I don’t have scoliosis but my little sister does. Hers was pretty bad. To the point that if the didn’t have corrective surgery within 6 months, it would have begun to tear apart organs. Scary! She was lucky enough to qualify for a really awesome childrens hospital that specialized in scoliosis surgeries. She is almost perfectly straight but it affected her chest, she now has a concave breastbone, and one boobs looks smaller than the other because of the twist on her ribcage. She has always been so self concious about her scar and worrying that people will think her back looks funny. I finally convinced her to embrace it because she is a survivor. Scoliosis literally could have killed her. So, next year, once she is cleared to ride rollar coasters again, she is going to get a zipper pull thingy tatted on the bottom of her scar. She was really worried at my wedding about her scar and even tried on a wedding dress once (hey, excuses to dress up in wedding dresses are always fun even if you are single!) and she realized that when she gets married, her scar will show. She will be damn proud of it because it is not only a part of her, it shows her strengh. So, while I don’t personally have it, I know the struggles it can cause. She has rods in her spin and cannot move the upper 1/3 of her spine. They had to fuse the bones to prevent it twisting anymore. She showed up with theginnings of scoliosis when she was 15 and by 17 she had a ? curve and now you wouldn’t know it!

Post # 10
1240 posts
Bumble bee
  • Wedding: June 2012

Though not the same. I have lordosis. And my neck is S-Shaped. Mostly from a gymnastics fall. I was doing a backhandspring and over rotated feet came around my back to my forehead (I made a big huge circle) and the bridge of my nose caught the end of the board that went to the soft mat. 

I go to a chiro, it was 3x a week, we’re down to 10 days between visits. Though pricy. I sleep better, my knees feel better. So much. And insurance does do some. 

Post # 11
2227 posts
Buzzing bee
  • Wedding: January 2012

Mr Rugbee has scoliosis as a result of one of his legs being 1″ longer than the other. It also causes his hips to be uneaven and the muscles on one side of his back to be overdevelopped. Since he got a lift for his shorter leg a lot of the back & hip pain has gotten better.  I give him backrubs at least 3 times a week!

I don’t think you should worry about your dress: You only notice because you consciously know it’s there. None of your guests & family will have anything but nice things to say!

Post # 12
9 posts
  • Wedding: September 2012

I can totally relate! I have scoliosis too. I was diagnosised when i was about 13/14ish. It was bad enough for a back brace or surgery, so nothing has been done. Although, it didn’t really bother me then other than it’s made my breasts lopsided :(. It’s been hard on my self-esteem. Now that I’m older, i feel a little more comfortable in my own skin, but there are just some days that I just wish my back was straight and I had nice boobs lol. Ya know? 

Anyways, I’m even more self concious when I’m in my wedding dress. I know you can tell, and i’ve been trying to think of ways to hide it like i do day to day. I use sweaters or boleros over my tanks, etc. And i have to add extra padding to the left side of my bra. It’s really dishearting. I’m not sure how i’m going to cover it up though I guess it doesn’t matter to my fiance…he loves me the way that I am! 

 What did you do for your dress? Are there ways to cover it up like alterations, etc.? 

Your story tocuhed me in that I can totally relate. Thank you and other for sharing. 

Post # 13
2448 posts
Buzzing bee
  • Wedding: September 2013

@Eight6Eleven:  I had surgery too to fuse my lower spine. Now I have really long legs and a really short torso because I grew only to 5’5 when i was supposed to be 5’11. I have one long scar on my back but my back is uneven because they took out a rib to cover my fusion. I’m self-conscious about it when I’m wearing bathing suits or anything that hugs the upper part of my body. i always feel like my upper body is really square because there’s not much space between where my ribs end and my hipbones begin. Not to mention it looks like i have freakishly long arms. I don’t have any back pain (guess the surgeon did an awesome job) but I 

@rainbubbles1:  I have a thread where I posted photos of myself in my dress and I’m sooo paranoid that when it comes back in the correct size, I’ll still look like a blob. I’m looking into corseting or something to cinch in my ribs to give the illusion of a waist. I refuse to give in and get a ballgown that would be more flattering because i really love my dress but i completely understand when you say how disheartening it is.

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