(Closed) Any other ill bee's out there? :'(

posted 6 years ago in Wellness
Post # 3
Member
115 posts
Blushing bee
  • Wedding: June 2013

I am really sorry you feel so bad and your having such a hard time right now. I hope you start feeling better soon.

 

Post # 4
Member
2523 posts
Sugar bee
  • Wedding: December 2012

I’ve been sick with kidney stones for almost 2 months now, and it’s been some of the worst pain of my life, and I’ve had some pretty bad infections before. I’ve passed one stone, and I thought my kidneys were failing because it hurt so bad and I was peeing blood. 🙁

So I definitely feel you, because when an organ isn’t working properly, you just don’t feel right, and it’s very easy to feel emotional, especially if they’ve put you on a ton of painkillers because they put your hormones out of whack. I’m glad your Fiance is trying to help you feel better emotionally until you feel better physically. That’s what has been helping me, too.

I hope you feel better soon, because I know it’s hard because life doesn’t stop when we’re hurting so much. 🙁

Post # 5
Member
870 posts
Busy bee
  • Wedding: June 2013

Hi Mrs.Charpentier,

I don’t have the same health issues, but I am a fellow sick bee.  I totally understand the pain… and the mopeyness.  I’ve already had my vent post, so I won’t get into it here, but know that you’re not alone.  If you’re still experiencing issues, it might be worth it to go back and tell your doctor.  Sometimes you have to keep pushing to figure everything out.  It’s okay to feel sad, but keep the good things in your mind and try to stay positive.  And if you need someone to listen, feel free to PM me.  Sometimes just having someone to talk to can help you feel better.

Post # 6
Member
4327 posts
Honey bee
  • Wedding: January 1992

Oh man. This sounds like me when I had my “mystery illness” which turned out to be a haywire thyroid gland. First it was a thyroid storm, with elevated heart rate / blood pressure, bowel issues leading to a colonoscopy, panic attacks, confusion, severe headaches, and general stiffness all over. Then it turned into hypothyroidism, which is where it ultimately settled, and the symptoms are reversed. Weight gain, constipation, extreme lethargy / exhaustion, and what appeared to be reynaud’s disease in my hands and feet. 

Before the doctor finally put 2 & 2 together, it was so depressing not knowing how to make myself feel better, let alone what was wrong with me. But once I found a competent doctor and knew how to get well, following her advice took some time, but results did happen. 

Just take it one day at a time, and pick out something each day, even if it’s ONE thing a day that’s better for you. It helps to make note, because over time, you’ll see you really HAVE improved until you’re feeling even better than you started. 

I know I’m not 100% yet because we haven’t found the dosage that’s the magic amount quite yet, but I feel so much better than when I started!!! I didn’t know what I was missing, and I can’t imagine how much better it’s going to get.

Post # 8
Member
4327 posts
Honey bee
  • Wedding: January 1992

@MrsHoneyC:  That’s the worst. It took doctors 3 years to find out what should have been an easy problem to diagnose with my thyroid, but nope… 

But at least you have a root cause to your problem, and it may take some time, but I’m sure you’ll find amazing recipes to work with that will be so delicious, you won’t even notice that other stuff you used to eat. Can you try to make it a fun game to explore and cook new recipes with your FI? I know it sucks, believe me, but if you can’t turn some aspect of it into an adventure, it’s totally going to keep you down in the dumps.

Post # 9
Member
197 posts
Blushing bee
  • Wedding: March 2014

That’s such a tough place to be in. I can’t completely relate (not similar circumstances) but I completely understand the headspace and just feeling so lost and down and generally like everything takes so much effort just to function.

I have a collegue who was diagnosed as Ceoliac and of course then also uncovered allergies to eggs, dairy, you name it. Luckily she’s a real foodie so she’s been able to make it an exploration exercise in finding great foods to replace the ones she can’t eat anymore, but I understand just how much time and energy that requires. Do you have any friends or family you can call on for extra support while your partner is away? Someone who likes cooking to help you get a handle on things?

I’m waiting for a hemithyroidectomy to take out a nodule and cyst. Two rounds of ultrasound and biopsy haven’t been able to determine if it’s cancer and it’s getting uncomfortably big, so taking it out. I had to delay surgery by 2 months and now I’ve got to the original date I delayed, I’m really feeling like “I could have had it done already, I want it out now!”

I know everyone’s different but for me, I get bogged down in my own negative thoughts that just go around and around. It helps so much to talk to people and get some outside thoughts, like a breath of fresh air. Obviously we’d all like to support you here, but are there other people in your everyday life you could include in how you’re feeling? Or some specific websites/support groups to put you in touch with more people in the same situation?

Post # 10
Member
4659 posts
Honey bee
  • Wedding: August 2013

I’m not in as bad a place, but I have IBS and mild anxiety disorder and they feed each other horribly — if I start to panic, I get the runs, and when my bowels act up, it triggers a panic attack. Get me in one of those cycles and I either need to pound imodium or just stay home all day to recover.

Have you been to superbetter.com? It basically turns living a normal life in the face of these kind of issues into a game, and it’s a bit addictive at times, which is good! If you play, it helps to build different types of coping resources, and it feels good to do. I seriously recommend it. 

Post # 11
Member
1040 posts
Bumble bee
  • Wedding: January 2010

@Bebealways:  I’ll have to check this out.

I have fibromyalgia (with chronic fatigue as well), poly-cystic ovarian syndrome, a severe anxiety disorder, plus allergies/intolerances to dairy, most sugars, and wheat/processed carbs. I honestly can’t remember what it feels like to be ‘normal’ or to have a day without fear, pain or anxiety. I really need to focus on the positive, or else I would start wallowing in self-pity, and make myself even more upset.

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