Post # 1
So. I’ve been diabetic for six years now and use a Medtronic insulin pump. I have reasonably good control over my blood sugar (A1Cs are usually between 6.0% and 6.5%), but man, the whole thing definitely raises some wedding complications! For instance:
1. What do I do with my pump? I’ve seen brides who have pump pockets sewn into their dresses (http://boards.weddingbee.com/topic/diabetic-pump-in-a-wedding-dress), which is AWESOME, but I wonder how much that would cost. I wonder if I can somehow incorporate it into the sash? I could also forgo the whole thing and go back to injections for a few weeks, but I also don’t want to be injecting insulin at my wedding every time I want to sneak a slice of cake!
2. What about unexpected lows? It’d be pretty embarrassing to be standing up there saying my vows and all of a sudden feel sweaty and shaky (in a way that’s entirely unrelated to nerves). Do you have a bridesmaid whose designated role is to carry around glucose tablets in her handbag? Or, I guess I can make my fiance do that, haha.
Anyway, the whole thing just seems messy. But in a weird way, it’s also a challenge that I’m looking forward to dealing with. Has anyone had experience with weddings and diabetes and/or insulin pumps? I’m sure there’s bound to be some brilliant workarounds floating about amongst you bees.
Post # 3
Congratulations on your wedding!! I am not a t1d but I am the mother of a extra sweet 4 year old t1d. 🙂
The sewn in pocket wouldn’t be that expensive. I would ask a seamstress how much it would cost. Seriously. Sewing a pocket is pretty easy. Hmm, you could do something with the sash but if it looks bulkey, I would go for a sewn in pocket. Hmm, you could contact a medtronic rep and ask if they have any remotes laying around that you could borrow. You could wear a leg pump ouch holding the pump and then use the remote to bolus? We use the animas ping, so I don’t have a lot of experience of getting the pump out to bolus. We use the remote 100%. I really think your best bet is to get a little bocket sewn in. sorry that I”m all over the place here with my thoughts. ha
As for sugar, it could go both ways. You could be super nervous and end up with crazy highs the whole day and not have to worry about a low. Or you could run low from all of the activity. If you’re starting to run on the low side that day, I would run a temp reduced basal, at least for the ceremony. Hanging out at 200 for the cereony won’t kill you. 🙂 I did hear of having some smarties connected to your bouquet and your maid of honor’s bouquet for backup. Probably not a bad idea to have your fiance have some too. I would have juice and glucagon in a purse on a chair in front too… but I”m a mother of t1d so I probably am over doing it. haha
My ex husband is a t1d and to be honest, we didn’t have any backup sugar during our ceremony. ha see how my perspective changed as a mother and not just a wife?! ha
I wouldn’t go on shots before hand because you’ll have ot adjust to figuring out your lantus rate and then your lantus might push you down during the ceremony and you won’t be able to “temp reduce” it. I would figure out the pump. 🙂
Good luck!!! Let me know how it goes!
Post # 4
Congratulations on the wedding! I’m not sure if you’ll see this since it’s been so long, but I have type 1 diabetes also and got married almost two years ago. I just got a pocket sewn into my dress. I’m not sure how much it would have cost, but the seamstress actually had a nephew who had just been diagnosed with type 1, and she was so sweet and excited to see someone else with it and on a pump that she did it for me for free. But I really don’t think it would have been that expensive. The only issue would be making sure that the pocket is heavy enough. At first she did it in this really pretty (but fragile) lace that wouldn’t have supported my pump and CGM, so she had to do a second, sturdier pocket.
As for the low blood sugar issue, I gave both my dad and my husband glucose tabs to carry beforehand, just in case. But it turned out it wasn’t an issue at all. The stress and excitement made me hang out in the low 200s all day. It wasn’t ideal, but I figured I had more important things to worry about that day than my blood sugar. I just corrected and moved on.
Oh, and something else to think about: my dress put a lot of pressure on my stomach (where I usually put my sites), so I wore them both (CGM and pump) on my butt, and it worked out much better. I don’t know what your dress is like, but that may be something to be aware of.
Post # 5
@MelanieAnne: Wow. I know it has been over a year since you posted your reply to emmaliiiiine, but as a recently engaged newbie to wedingbee, I needed to read what you wrote today! I think I’m going to hand-stitch “I figured I had more important things to worry about that day than my blood sugar” on a pillow so I never forget it!
I’ve had type 1 since I was 5 (24 years now!), and I’ve never had an easy time with it. I ‘ve always tested regularly (10 to 30 times per day), and have been lucky enough to keep my a1c at 6% for the last few years. In January, my insurance switched my insulin from Novolog to Humalog, and my blood sugar has been averaging 280 since then. Each day I’m exhausted, grumpy, frustrated, and terrified of developing even more complications, even though I’m testing 20-30 times per day, adjusting basals, and taking corrective insulin. Since we don’t have a cure, that’s all I can do. But for some reason, I keep thinking I can “manage” it even though I know it’s not always possible. I just really needed to read that sentence to focus on the good in my life, and I sincerely thank you for that.
Post # 6
Wow, my husband is a T1 and he’s never had a 6.0 A1C!! We thought his 6.8-7.0 was pretty darn good! Way to go for taking such good care of yourselves ladies
I don’t really have advice, but on our wedding day my husband had been drinking a bit and all the adrenaline made his BG way high. He kept bolusing and bolusing but it wouldn’t budge. So, at dinner time, he tried to bolus and it told him he had met his limit for the day! He had to mess with the pump for like 5 minutes to redo the settings to let him take more. It ended up being fine, but was kind of annoying for a few minutes there!
Post # 6
RunnerBride13: I think a 7 is an extremely darn good A1C! I just got my bloodwork back (1st since January) and my A1C went from a 5.9 in September to a 7.8, all because of my insurance making me switch to humalog. It’s been a nightmare, but I’m still here!
Getting to a 6 and under was very, very difficult for me. It took years (I’m not kidding, years) of testing my blood sugar every hour 5-6 days per week to make it happen. Even then it wasn’t always smooth sailing. It’s hard with type 1 because so often it’s not about food. After meal blood sugars have always been perfect for me (luckily, as I know that is not the same for all type 1s), but it’s the over night, exercise, stress, weather, full moon, what’s on tv, etc. that messes me up 🙂 I still test as often as when I was under 6, but now I’m a 7.8…It’s the monster that is type 1 diabetes.