I do spend a fair bit of time in bed and on the couch because of fatigue. I sometimes have serious problems if I do more than that, just going to a doctor’s appointment can lead to a flare. It depends on the day.
I feel like I spend a fair bit of time with medical appointments and pickups at pharmacies and hospitals. I’ve also attended various health related sessions.
When I have energy I run errands and comparision shop, especially for items I don’t need right away. For Christmas gifts, I would take a look at a few stores before deciding what to buy. Recently, I needed a new gardening tool and so I went to multiple places, seeing how various ones felt in my hand.
I do exercise classes when I can. I go out for lunch with a friend or find a group that’s doing something during the day. When I’ve been kinda iffy but not horrible on a nice day I went to a small park a few houses down with a book, sat on the bench but was able to chat with some people walking their dogs.
Last summer, on days when I was doing better I used up most of my energy watering my garden using the rain barrels instead of the hose. It was hot and barely rained (was filling one up with ground water) so that could be done daily. It would take a minimum of an hour to water everything that way, so with adding in breaks and then taking care of bugs/weeds I could easily fill the whole day until Darling Husband got home just doing that.
In bed/on the couch, it’s podcasts, netflix, books, puzzle types of games – computer or books like sudoku, and of course the internet is a great time suck.
Throw in stuff other people also do, laundry, cooking and cleaning and I can fill my day.
Personally, what I find to be the most difficult is there are often things I want to do, but just can’t. Like I had to put off checking out a store for more than a week because I just wasn’t well enough to go out. I hate spending so much time on the couch but my condition is serious with a fairly high mortality rate so avoiding triggering it as much as possible is pretty important.