Post # 1
Since November 2010, I’ve had severe right sided ovarian pain. I was diagnosed with Polycystic Ovarian Syndrome (PCOS) in December 2010 and endometriosis in Feb. 2012. My GYN thinks that the pain is tied to ovulation and has me on continuous cycle birth control. It seemed to be helping at first, but lately it’s getting WAY worse. I have cysts on my right ovary and their best guess is that it irritates nerves around it to the point that I can’t walk, stand, or lie down, but have to be in a curled, sitting position for 3-4 days. I’m on Norco for pain control and that doesn’t even really touch it sometimes.
The odd thing is that I don’t have enough symptoms from endo or PCOS to make it obvious anything is wrong except for this pain. I’m not overweight, no real problems with acne and my periods were bascially non-existent rather than heavy and constant.
My GYN is seeking second opinions but wants me to look at possibly Depo-Provera (I refuse to take Depo-Lupron!) or having her refer me to Mayo or University of Michigan to have them examine me and possibly suggest treatments.
Does anyone have any experience with this? What has worked for you?
Thanks in advance.
Post # 3
@hogoboom2012: I have endo. Took Depo Provera for over five years and loved it. Also took Lupron for six months, which honestly gave me no side effects aside from the injection hurting like hell.
Now I’m on Loestrin 24 FE (taken continuous without the placebo week), which is doing a pretty great job as well. I still have cramps occasionally, during which times I take Naproxen for pain and promethazine for nausea.
Post # 4
@hogoboom2012: I like @zerlina: ‘s medication regimen. Geez, I’m sorry for all that you are going through!
Post # 5
@zerlina: I had endometriosis too in late teens and early twenties. I got on the Loestrin in 2002 and stayed on it until 2006. I have been off of it since 2006 with no problems. Before taking the Loestrin, I had 6 laparoscopies, and one laparotomy to remove a grapefruit size cyst on my right ovary. I’m also think working out and lowering my body fat helped the situation.
Post # 6
Thanks for your replies. I really appreciate them. I haven’t heard anything about Loestrin, going to look it up today. I do work out and have lost a significant amount of weight since I was first diagnosed and that seemed to help somewhat.
Post # 7
I have PCOS (but not endo) and also right ovary pain every other month. I’m on Metformin for the PCOS and while I haven’t noticed a huge difference in the ovary pain (3-5 advil usually take care of that), I have had other improvements from it: not as tired as I once was, don’t feel awful after eating, etc.
For BC: I’m just on a standard pill (Estro-step) and have been for years.
Post # 8
Have you been tested for Celiac?
Post # 9
@cannotwait: No, I haven’t. I had a lap in 2012 and was diagnosed with endo, PCOS in 2010.