- 7 years ago
- Wedding: October 2013
Looking to see if there are any other “soul cysters”!
Looking to see if there are any other “soul cysters”!
I do 🙂
But it is a club I would rather not belong to : (
I haven’t been diagnosed with PCOS, but I am having surgery to remove a large ovarian cyst in July, so I can be a “soul cyster” until then!
Can’t wait for the pain & acne to be gone!
Im so glad I found others, sometimes I feel like I am alone in the matter. 🙁
@aprilsixteenth, I hear ya! The acne and pain is terrible! Unfortunately I have multiple cysts so I cant have them removed 🙁 But, I am on birth control and metformin (glucophase) to control it!
I have PCOS, I was diagnosed recently and trying to stay positive.
@peachbaby4008: I have been thinking about it a lot lately…Ive been wanting to get educated as much as possible so I’ve been reading about low-GI diet, exercise, specific vitamins, metformin, etc.
I am glad I have done this because studies show that getting to a healthy weight, and exercising can almost eliminate all symptoms of PCOS. So I feel like I have a hand in how PCOS will affect me.
I tried certain PCOS forums and while all the women were very supportive and informative…I found that for me personally, it was not very constructive. Every woman is affected by PCOS differently- some have no problem getting pregnant, others go through years of infertility- some women struggle with weight to no avail- others lose weight easier or with help from metformin, etc…
I was getting affected by all of the more difficult stories. I have heard from my doctors, Aunt (who worked at an infertility clinic), and many mothers that negative thinking and anxiety lead to infertility much more than PCOS…
I know that PCOS is not all about infertility- it’s also about cysts, pain, weight, acne, hormones, etc- but for me that was the scariest aspect.
So I am just being as pro-active as I can with diet, exercise and vitamins. I need to believe that however long it takes, or whatever difficulties we go through, that i will be able to conceive and give birth to at least one child.
How do others deal with the anxiety?
@Evie19: I know how you feel! The biggest concern for me is the infertility aspect. I feel like I would let my fiance down if I werent able to give him children. :/ Sounds bad but true. Im not going to lie, but I cry alot over this. Between the acne, the hair growth/hair loss, weight gain, headaches, and just feeling crappy…its really hard to focus on anything else :/ Whats even harder is hearing about others having babys or seeing other babies. I dont like feeling jealous over others, but it happens alot.
I try soo hard to keep away from bad foods, caffeine, sugars, etc…but because my blood sugars are so out of wack its makes it very hard. My doctor has me on birth control for a fews years along with metformin to control it. Then when we are ready to start a family we will do all that we can. I have been put on anxiety pills as well as anti-depressants. I read as much as possible, and keep up with anything else I can do that will help maintain.
What has your doctor been telling you? Yes, PCOS may make things more difficult but SO many women with PCOS have kids! And some without any problem at all! I think it’s important for us to have perspective- I was talking about this with my wedding florist actually and she had much worse infertility problems and told me that she wished she had PCOS- it’s a much easier condition than the one she had…
So I hope you don’t work yourself up and get too negative before you even start trying! That is going to make things much worse.
Although fertility is a concern of mine of course, I am wondering why so many PCOS women are convinced they will have such a small chance of having children?
My aunt and mom have pcos and both had children within the first year of trying…Am I in denial or something? Are the chances really that low?
@Evie19: I dont think chances are low, but I think some just need more help. I know that I will need help in carrying to full term, well thats what my doctor says. About a year ago, I had gotten pregnant…which was definately a shock, but shortly after finding out I had lost it. 🙁 My doctor said it had nothing to do with my pcos, what I had was a chemical pregnancy and that it just didnt attach itself, he said it was common. He has no doubt that we will get pregnant, just that we need that extra push. He also told me that the majority of his patients with pcos were put on birth control for about a year or so and when he took them off, they got pregnant right away. Which does help put my mind at ease, but that feeling of “well what if it doesnt work for me” is still there :/ I tend to over think things alot. I think the chances of getting preggo is definately higher if not the same as a “regular” women if we maintain it, eat healthier, and have a healthy weight.
I’m sorry if I sounded overly…frustrated in my last post. I guess I’m just really trying to stay positive.
I’m also sorry you had to go through a miscarriage- that must have been extremely difficult. What your doctor said is definitely a great thing to hear and I think we all need to focus on that! 🙂
I also have PCOS but I have the opposite form that doesn’t include the weight loss. I was on the pill for about 11 years which I believe made it worse. When I went off the pill I didn’t get my period for about a year and when I finally went to the doctor about it she told me that I had pcos. I am now using acupuncture and chinese herbs and they are actually working wonders. I get my period every month and we are pretty sure at this point that I am ovulating. Stay strong ladies. We will all be fine! 🙂
I did a research study during which I ended up getting an ultrasound done and the doctor told me I had PCOS because of my pattern of cysts/eggs or something. I don’t have any symptom of it other than acne, but I do worry it’ll affect my ability to have kids particularly as I get older.
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