(Closed) Anyone else have rheumatoid arthritis?

posted 8 years ago in Wellness
Post # 3
Member
281 posts
Helper bee
  • Wedding: September 2010

@stephinPA: I have RA too, and I completely understand how you feel.  Our wedding is in 4 days and the stress of last minute things is overwhelming my meds and I feel like I did 3 months ago, not as bad as I’ve been but not good either and I too wonder if I’m up to taking care of a child.  I wish I had comfort to offer you, but at least I can let you know that you are not alone.  I hope you are feeling more confortable soon.

Post # 5
Member
281 posts
Helper bee
  • Wedding: September 2010

I used to take hydroxychloroquine but it wasn’t strong enough.  I ended up on Arava and then we added Enbrel as well.  My dr and I were both hoping to stop at the plaquenil b/c it can be taken through pregnancy but I was miserable.  The Enbrel is a lifesaver, and I don’t really want to think about how I’d feel right now if I wasn’t taking it.  Normally I feel just about like I used to.  I even run up stairs (which is good ’cause our condo is on the 3rd floor with no elevator – excellent purchase on my part Frown ) and walk on our treadmill. 

Maybe some prednisone to get some temporary relief?  Although I know I try to avoid it if I can.  When were you diagnosed?  I was about 3 years ago and am still trying to figure out my limits, but the seem to be a moving target…

Post # 7
Member
281 posts
Helper bee
  • Wedding: September 2010

From what I understand, we get treated much faster and with much stronger medication which limits the joint damage that earlier generations had to deal with.So that’s good at least.  They say keeping it under control is the best thing you can do.    I’ve been lucky with side effects, a few gave me headaches, but nothing too bad.  I’ve had a couple infections, a sinus infection and a kidney infection, but both were treated easily and not a huge deal.  I get regular bloodwork to make sure that nothing serious is wrong, so I’m pretty confident that I’m in good hands.  As long as I don’t read the lists of side effects, those can be panic inducing.

Post # 8
Member
541 posts
Busy bee
  • Wedding: March 2011

My mom has RA and gets shots every 2 months to prevent it from getting worse. She’s raised all three of us without huge problems. She isn’t a very physically involved mom (ie. throw the ball around with you) but she’s there watching and it wasn’t a problem for us. She used to have to get fluid drained out of her knees and can’t bend her right wrist anymore. But the shots are pretty new and work well for her. Maybe you should look into that. I know it’s partially covered by insurance if not fully. Good luck.

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