(Closed) Anyone have Fibromyalgia? What is your experience?

posted 7 years ago in Wellness
Post # 3
82 posts
Worker bee
  • Wedding: May 2013

My mom and I both have Fibro. My symptoms are more tired and foggy than pain but I am definitely more sensative when touched/hit. My mom gets awful pain. She is on medication and if she doesn’t take it, she hurts a lot. I didn’t find medication to help me but instead felt my issues were better than the medication side effects. Our primary didn’t actually diagnosed us; in fact our chiropractor did do we went to our primary in regards to it. Hope that helps!

Post # 5
734 posts
Busy bee
  • Wedding: August 2014

Massage and ice help a lot. I have a lot of clients with fibromyalgia and the medicine helps some along with massage and ice. Its manageable when you take care of yourself, but its definitely not fun. I have some clients who have found alternate ways to deal with it (diet, etc.) but the thing that I’ve found is that some of them find something that they can pin-point as a cause while others just have generalized symptoms that they can’t fix. Some have found a gluten allergy or cutting our parabens, etc. helps. Others try and can’t find anything. That’s what makes it such a difficult condition.. the symptoms are so generalized and could be caused by another condition.

The one thing that is common is the pain which is so hard on people and the fatigue. But like Evan2011 said sometimes the medicine makes things worse.

Personally I’m not sure how I feel about the diagnosis. It basically means “pain in the muscle fibers” and sometimes I feel that doctors diagnose people with fibromyalgia when they don’t feel like figuring out what might really be the cause. I’ve had clients where it turned out their only problem was that they had risidual scar tissue from a car accident which caused pain and fatigue because of strained muscles. However, if you really can’t find what is wrong it does help people (like your employer) understand the pain you are going through – because it is absolutely real pain.

Post # 6
4322 posts
Honey bee
  • Wedding: January 1992

I think there was a bee who had this disorder too… someone with sapphires in her wedding band, but you know how common those are becoming these days. I can’t remember for the life of me who that could have been. Hmm.

Maybe if you search the threads using the tool in the upper right corner of the site, you will find her experiences, along with other bees’. They may be helpful to you if you don’t get many responses.

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