(Closed) Anyone with endometriosis?

posted 7 years ago in Wellness
Post # 3
Hostess
18644 posts
Honey Beekeeper
  • Wedding: June 2009

Yes it does sound like endometriosis to me.  I have pain constantly.  Now I’m on continual BC and it has helped with the pain a lot.  I also had surgery about a year and a half ago and a previous surgey back in 2006.  I still feel discomfort during sex, it’s better if there is a lot of foreplay and taking it slowly.

Feel free to ask me anything and I’ll try to answer!

Post # 5
Hostess
18644 posts
Honey Beekeeper
  • Wedding: June 2009

Yeah that sounds a lot like mine.  You almost might have Pelvic Congestion Syndrome which my specialist diagnosed that it focused on the sides.  I think that being active does help it, I’m feeling a lot better now that I’m working out more often.

I didn’t really like the Lupron, the side effects were awful and it didn’t keep the endometriosis away very long.

It does sound like me that it just started at your period and got worse with time until it was all the time.

Post # 7
Hostess
18644 posts
Honey Beekeeper
  • Wedding: June 2009

Honestly, you might want to go to another doctor.  I don’t like that she dismissed you saying that it wasn’t severe enough.  Any endometriosis could cause infertility and pain, that’s not severe enough for her?  She probably won’t be able to tell much from a pelvic, usually the only way to really see endometriosis is through surgery.

Post # 8
Member
1116 posts
Bumble bee
  • Wedding: August 2008

I have a family history as well.  I have no real symptoms of it at this point – thank goodness, but my fertility doc recently found 2 endometrioma cysts on one of my ovaries. Usually, this type of cysts means I have really advanced endo.  I’ve read that it can actually be more painful in the early stages, and less so as it gets more advanced, for what it’s worth.

Just as an FYI, there are holistic ways of managing symptoms & reducing spread than can be really effective for some people.  An anti-inflammatory diet can be really helpful, especially things like cutting back on dairy, sugar, and citrus, as can reducing exposure to excess estrogens like soy and meat.  But different folks have different triggers.  I think acupuncture can also help relieve pain, and a naturopath can prescribe chinese herbs that may help too.

Hope you find a way to feel better soon!

Post # 10
Member
3525 posts
Sugar bee
  • Wedding: December 2010

I had a ton of pelvic pain (really low–like in the pubic area and near the hipbones) that didn’t go away. My periods were horrendous–very painful and very heavy. And even though I started having problems with heavy periods when I was 15, no one bothered to check for endo. I didn’t start having pain until I was 19, and I could NOT get a doctor who was willing to check for anything. I heard “You’re too young to have anything seriously wrong, especially since you’re on birth control pills–just chart your pain and we’ll talk at your appointment next year.” By the time I found a doctor who would help, I had spent over two years in constant pain.

When I finally found a gynecologist who would listen to me, he was skeptical–after all, BC usually helps with the pain and growth of tissue. But when he did a pelvic exam, he noticed some abnormalities near my fallopian tubes and gave me the option of having a laparoscopy. I did, and lo and behold–endometriosis. My doctor removed large sections of tissue (both normal and abnormal) to try to prevent rapid regrowth. And I was totally pain free for four months!

It’s been four months since the surgery and the pain is coming back a little bit–just enough to make me nervous. I learned that every time you have a period, the estrogen allows (and even promotes!) tissue growth. Once I finish my current cycle, I am going to start a monophasic pill and take it for as many months as I can without spotting, then have a period. If all goes well, I’ll only have three periods a year, which should slow the growth.

Before I had my surgery, nothing would even touch the pain. You could often find me doubled up in agony on a chair or bed. Now, I’ve found that an antiinflammatory helps (Aleve is a godsend for me). I am really hoping that it doesn’t get bad again, because it’s a miserable thing to have. =/

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