(Closed) Anyone with or know anyone with chronic pain?

posted 8 years ago in Wellness
Post # 3
Member
2867 posts
Sugar bee

Yeah, I go through cycles of it. I have IBS, but I suspect it might be something else as I have symptoms of both PCOS and endometriosis (both of my sisters have PCOS and my mother, her mother, and aunt have endometriosis).  I have yet to get it checked out for reasons I won’t divulge online.  I get severe lower abdominal pain a few times a month and it makes me uncomfortable to discuss it with friends, I don’t want them to think I’m neglecting them but at the same time, I don’t want to be in pain around them. I actually take online classes now b/c I can’t handle going to class when I get an “attack.”  I definitely sympathize with you.  Luckily my job has fairly liberal sick day policies.

Anyways, my aunt has Fibromyalgia and she developed it after a really lengthy illness.  She is in so much pain, it’s not psychosomatic.  She has tried various medications with no help, lowering stress is the best thing that helps her.  She makes sure she gets plenty of sleep.  It’s difficult for her to open up to family members, even her siblings, because they doubt the diagnosis and subsequently, her.  She told me though that Fibromyalgia is more credible than Chronic Fatigue Syndrome.  She says that if a person gets diagnosed with CFS, then doctors won’t listen to them. 

Post # 4
Member
9231 posts
Buzzing Beekeeper
  • Wedding: November 2010

My DC thinks I have fibro.  MY GP hopes not,.  We should know something soon, I’ll have better insurance shortly & will get blood work & an xray of my neck–another source of chronic pain.  My neck causes terrible headaches & hand/wrist pain sort of like carpal tunnel.

I also blew out my knee in a fall in July, so I’m off the treadmill for now.

And my hormones are whacked right now.

What little sanity I have comes from having access to a lap pool.  

 

Post # 5
Member
1801 posts
Buzzing bee
  • Wedding: June 2010

I have a disaligned knee with scar tissue following surgery when I tore it up playing softball in high school.  A lot of doctors and people have discredited the pain because it’s not a disease or formally diagnosed thing like other chronic syndromes, but I finally found a doctor that was able to recognize what my problem has been for years.  I also found a physical therapist who took it seriously and was able to give me some real results.  Granted, they’re not solutions to the problem, but the exercises do help with daily functioning and helped me to be able to wear heels at the wedding.

Post # 7
Member
2867 posts
Sugar bee

@bloodgo1:  Yeah, I need to get it checked out.  My fiance and my younger sister want me to but I’m nervous at the same time.  For example, I don’t want to have surgery b/c I’m really nervous about it (I know, I’m a wimp).  Or worse, that I won’t be believed, if that makes any sense?  I had a series of issues as a kid that required extensive testing related to that area and it makes me really uncomfortable to have to go through that again.

Post # 8
Member
966 posts
Busy bee
  • Wedding: May 2011

I did have chronic pain for a few years there – multiple seizures a day do a number on one’s bones and muscles.  Felt like half my bones were splintering.  Then there were migraines and worse-than-migraines (much more intense, but no vomiting.  Wasn’t aware of anything but pain and desperately wanting to die when those hit.  I’d just freeze and stare.)

Post # 10
Member
1940 posts
Buzzing bee
  • Wedding: July 2010

My Mother-In-Law has struggled with chronic pain, and it’s definitely gotten worse (from an outsider’s perspective) over the last few years.  I have really mixed feelings about all it.  I know she struggles with pain, but I don’t think her doctors are helping her anymore by continuing to prescribe a lot of narcotics.  I see her struggles (and the struggles that the rest of the family has because of it) and it’s really sad.  She is truly addicted to prescription pain medications, and it’s to the point where she is unsafe to herself and others.  For example, she will light a cigarette and then pass out and therefore have burns on her clothing/herself/furniture.  She was completely out of it an my bridal shower and left about 10 minutes after arriving.  She’s tried to overdose using the medications several times.  I wish she would seek help (outside of her current doctors who keep prescribing more medication), but she doesn’t think she has a problem.

It’s nice to read other people’s perspectives on chronic pain so that I have a better understanding of what she is going through.

Post # 12
Member
9231 posts
Buzzing Beekeeper
  • Wedding: November 2010

@bloodgo1:

Have you tried Tramadol?  It’s not a narcotic but sort of acts like one.  

Post # 14
Member
2496 posts
Buzzing bee
  • Wedding: January 1991

I was diagnosed with Fibromyalgia almost 3 years ago, but I kind of knew for several years before that.

My pain is managable without meds (tried them… not for me), but it’s ALWAYS present.  On my worst days I feel like I have a terrible flu/growing pains/ache, and on my good days I have pain, but it’s not bad.  It’s definitely worse in cold/rainy/miserable weather though… ughhh…

Fiance and our families fully support me, but they just don’t always get it.  Like, the inside of my knees is SO sensitive… it’s one of my tender points and sometimes Fiance will accidentally tickle me there and it HURTS and I don’t think he gets it.  Or when the pain lingers after being hugged too hard or something, people just don’t get why something like that hurts…. but it does!!  It can be really frustrating.

Post # 15
Member
2867 posts
Sugar bee

I just wanted to say, that I don’t want to discredit the CFS diagnosis.  Additionally, I really empathize with those who have fibromyalgia and other chronic pain.

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