(Closed) As a Mother, Could You Do It? Could you help your child through this?

posted 7 years ago in Emotional
Post # 17
Member
691 posts
Busy bee
  • Wedding: June 2013

Of course, what other choice would I have?

Post # 19
Member
855 posts
Busy bee

@dewingedpixie: First, this sounds awful. I’m so sorry you have to go through this Frown

I would say there is a really high chance that this is celiac. My dad has it, and so do I. We had two completely different reactions to it when we were first diagnosed and mine went on for over FIVE YEARS!

My symptoms weren’t the typical stomach and digestive upsets. I had high blood pressure, clots (at age 19 I was at risk of having a stroke), cysts, joint problems, severe headaches, wounds that refused to heal, swelling – so SO much.

It wasn’t the celiac’s that was doing this to me – it was the malnutrition. and it affected me in ways that meant no doctor could diagnose it for over 5 years.

It still hasn’t been actually diagnosed in me. I just cut out gluten and I instantly felt better. The thing was, I’d eat gluten a little bit, but not 3 meals a day for 6 weeks like the test needed – so it always came back negative.

When I started on my gluten-free diet, I also went vegan. All those vitamins and minerals from all those good foods got me back in shape in no time.

 

Also – this is a massively big thing to suggest, but if you feel you are desperate about her life and her future – would you consider moving to a city that had a lot of places that catered for allergies?

I moved to a city that is FULL of vegan restaurants, veggie restaurants, and gluten-free cafes. There’s even a 100% organic supermarket that sells things that before I could only find online.

It means that when I go out with friends, I CAN eat whatever I want. When my dad came to visit this weekend he couldn’t believe that he could walk into a cafe and have his pick of any cake.

I know it’s pretty extreme, but I just wanted you to know that it IS possible to live with such severe allergies, and once you finally know what she can and can’t eat, you’ll become a master chef/baker and provide her with wonderful treats 🙂

Post # 20
Member
855 posts
Busy bee

@trueblue14:  that gave me goose bumps. I’m so sorry Frown thank you for sharing your story, though, and giving the OP hope and comfort that it’s not the worst thing that could happen x

Post # 22
Member
855 posts
Busy bee

okay those big six aren’t too bad. and she’ll definitely be healthy if she can’t eat any processed food!

a vegan diet isn’t massively hard so it shouldn’t be too tough for her. especially if she can eat lean meat, too.

and lean meat with veggies and rice/potatoes is a really easy meal for her to be able to eat regularly so that’s a real bonus!

she’ll be eating CLEAN and if this is the worst case scenario and she can’t ever eat those foods again, she’ll be soooooo healthy!!

My friend in the office doesn’t eat meat, soy, dairy OR nuts and she’s amazingly healthy. She knows all her nutrition and looks incredible.

And you’re really lucky to be living in an area that provides good food Smile

Try not to worry too much about how this will affect her. Try and look at the positives! At least she’ll be better, one way or another!

Post # 23
Member
9134 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

@dewingedpixie:  Consider joing a support group or action group in your local area.  I found the DC Metro Celiac Organization pretty quickly.  http://dcceliacs.typepad.com/  These organizations are grest for providing additional support and suggestions on how to cope with the stress you and your daughter are dealing with on a daily basis.  They can also assist you in finding local grocers and restaurants that cater to you and your daughter’s dietary needs.  You can do this!

Post # 24
Member
9134 posts
Buzzing Beekeeper
  • Wedding: November 2013 - St. Augustine Beach, FL

Oh, and here’s a Mommy blog that may also help or at least put you in contact with other mommies in your situation.  http://glutenfreemommy.com/

Post # 25
Member
9544 posts
Buzzing Beekeeper
  • Wedding: August 2013

I work in a hospital that specializees in EoE. And so I know it sucks. It does. But there are plenty of people who deal with it and live healthy productive lives. Have faith. It’ll work out one way or the other. It probably won’t be fun but I’m sure you’ll be glad to just get some answers.

Post # 26
Member
862 posts
Busy bee
  • Wedding: September 2012

@trueblue14:  I’m so sorry for your loss. 🙁  Your story is truly heartbreaking but beautifully-written and inspirational.  Thank you for putting it into perspective for all of us that there truly are worse things.  It was extremely kind of you to share this.

Post # 27
Member
26 posts
Newbee

I’m very sorry for what you’re going through, I don’t know what the acronyms means, but it sounds just awful!

Post # 29
Member
8439 posts
Bumble Beekeeper
  • Wedding: April 2013

@dewingedpixie:  If I were you, I’d be researching helminthic therapy (I warn you, it’s not for the faint of heart, but it could really help improve your child’s health).  The medicine we practice here in the US is great for things like trauma, but it’s terrible for auto-immune disease.

Post # 30
Member
1889 posts
Buzzing bee
  • Wedding: May 2011

@dewingedpixie:  I’m so sorry you’re going through this– I can’t even imagine how painful it must be as a parent to see your child sick and in the hospital, with her health not improving.  I hope you can try to see this not as a burden to you, your fiance, and your child, but an opportunity to grow, to nurture your relationship with your daughter, and to show her how supportive you will be for her for the rest of her life.

As for the extremely restrictive diet?  I’m sure that won’t be easy, but there are so many options these days and recipes/food blogs online that you should be able to find new recipes (and experiment with your own) that she will like to eat.  Hopefully, the physical/behavioral issues are stemming from specific foods that her body is reacting to, and once you can pinpoint and avoid those foods, she will be able to blossom into a healthy young girl.  Wishing you all the best!!

Post # 31
Member
268 posts
Helper bee
  • Wedding: December 2014

I will share my story with with you.  About 4 years ago I started having stomach issues, swelling (looking like I’m 7 months pregnant), gas, diarrhea, etc. It was like every time I ate, I was sick, so I started my own elimination diet.  My Fiance who is a total meat and potatoes guy (like hates anything green in colour) stood beside me, held my hand, and gave up everything I had too.  

I eliminated shellfish, red meat, eggs, dairy, basically became vegan within a year and saw no results.  I couldn’t figure out what was causing so much pain.  

I saw my GP who suggested I go for allergy testing and a celiac test and see where that goes. My celiac was negative, but my allergy test was positive for wheat, VERY positive.  SInce you have celiac, you know how tough it can be to give up wheat when its in so many products. 

I was so upset, I mean I live in a province known for growing wheat!! I loved cake, pies, cookies, crackers, etc.  and now i’d have to give it up. 

My Fiance saw me struggling, he took the positive outlook, by letting me know that this is our chance to explore new foods, ones we may not have tried otherwise. The benefit is absolutely worth the sacrifice, and together we could do this.  We chose to look at all the options I do have, rather than what I can’t have.  

I will be the first to admit, I struggle.  And its ok to struggle and have moments where you’re not sure if you can really give things up- we’re human.  But its gets easier.  We just have to exchange old habits for new ones.  

 

You can do this, and I know your child can do this! Keep positive 🙂 

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