Post # 1
So today was our daughter’s diagnostic appointment for suspicions of autism. I don’t know what I was really expecting but to hear the words out loud from a doctor “Your child does have autism” sent me into a sob session I didn’t get out of for 15 minutes.
I feel shell shocked but like I knew it was coming…? A weird emotion. I’m in a weird place right now.
I figure I’ll give myself the night to cry. Then tomorrow it’s off to start the legal, educational and resource/support process. As well as other tests and lots of paperwork and reading.
All I can say is, parents of young kids don’t be afraid to acknowledge your suspicions if you feel something isn’t right with your child. I am so grateful that this was discovered so early in her life because we have that much more of a chance to give her the great start she needs. Just for now it’s like wow… definitely feeling shaken.
Post # 3
I’m sorry you got this diagnosis, KatyElle. Hugs.
I’m glad your daughter’s receiving the care she needs, though. Early intervention usually means better results. How old is she?
Post # 4
I am so sorry Lady (((HUGS))) to you. I know that you can handle all that is to come. I wish that I had some great insightful thing to say to you, but I will just send you my good vibes and lots and lots of HUGS.
Post # 5
Many hugs! I don’t have any advice but I’m glad you decided to have her checked out.
Post # 6
Sorry about the diagnosis. That has got to be tough. Just try to keep in mind that it’s such a blessing she was diagnosed at a young age. How old is she, if you don;t mind me asking?
I hope tomorrow brings more happiness to you. Be strong for yourself, and your daughter. You guys will be just fine. 🙂
Post # 7
Sorry to hear that… I can’t imagine how you must be feeling
I think its great that you got her tested early. She will have a lot more support now in school. I’m taking a Learning Support class as part of my elementary education program and we’ve been talking a lot about the importance of getting kids who are suspeceted to have some kind of exceptionality (special needs) tested ASAP. The sooner you, the teachers, the resource/learning assistance teachers know, the better. The longer that sort of thing gets “ignored” the wider the gap gets and the more trouble the child will have keeping/catching up.
Post # 8
My heart is with you. A day to sob and mope is probably the right way to go for today. (Or rather, I’d need it, too!) It makes sense to grieve the hopes and dreams you had for her before you start your journey with an autistic child tomorrow. But with that will come new hopes and dreams for her.
We have some experience with that in my family– and the road isn’t easy, but just having the diagnosis was a huge burden lifted for some of those involved. I hope it’s that way for you, too.
Post # 9
Sorry, forgot to add, she’s 3. Thank you for all the kind words. My husband and I are just kind of sitting here zoning out.
Post # 10
My heart is with you!
On the upside, there are tons of programs out there for children with autism, including head start programs. The government funds these programs until the child turns 21. They offer one-on-one support for the child as well as respit (essentially babysitting) services for you and your husband.
The important thing to remember is that autism is a spectrum disorder. Many children with autism are still high functioning. Regardless, she is going to be a special, special child. While she may develop in the typical fashion, she will have many gifts and talents that “typical” children do not have. Have faith. I know it must be difficult but try to stay strong and positive for your beautiful little girl. 🙂
Post # 11
@KatyElle: I just want to send some reassuring words your way and let you know that although yes there will be hard times ahead and many of them, there are going to be some unbelievably rewarding times ahead as well. I am an Infant Development Worker and I work with babies and children 0-6 who are at risk or have a diagnosis. I can understand how hard this road to diagnosis and after can be. It does sound however, that you are wonderfully caring parents and just that simple fact is going to help your child achieve her full potential with your help and the help of the professionals that are there to lend a helping hand when you need it. Don’t be afraid to ask for help and know that Early Intervention is the key! Hugs to you.
Post # 12
Sorry to hear your news!
I used to go to neurofeedback therapy for migraines, and there were always children with autism there. They said it worked wonders for them. Many came in completely non vocal and I would hear them talking a lot. Might be something to look into.
Post # 13
I’m glad you were able to get the diagnosis. Sometimes the not knowing is the worst part. I’m sorry your daughter will have extra challenges, hopefully you’ll obtain the support your family needs!
Post # 14
I’m so sorry to hear it.
When you are ready, I have a blog to suggest by a guy who has an autistic son. That is not what the blog is about (it was started long before his son was born). He is extremely well written and very funny, and he occasionally shares what life is like with his son: http://defectiveyeti.com/
Here is a particularly informative post about his son: http://defectiveyeti.com/archives/001457.html
He is also a regular contributor on NPR about Autism in the media.
I just wanted to share this blog because Matthew Baldwin went through what you are experiencing now, and things are turning out very well so far. maybe you will relate to him, maybe not, but I wanted to share because I think his blog is so good. I know that every child is different. I wish you and your family the best!
Post # 15
Oh wow. If you don’t mind me asking, what were the things you noticed that led you to getting her evaluated? Did your doctor give you any insight into what end of the spectrum she might fall? Be brave, lady. I know this is a shock.
Post # 16
((hugs)) You’re a great mom KatyElle. You listened to your gut and had her checked out. Now you can keep moving forward and start trying to manage and treat this. Sending lots of love and hugs to you, Darling Husband and your daughter.