Post # 1
Just wondering if anyone has any experience with their baby/child having a Ventricular Septal Defect (VSD). My 4.5 month old daughter was diagnosed with the hole in her heart when she was about a month old. We were all hoping it’d close on it’s own, but yesterday after an extensive EKG it was decided this hole is too large and will not close on it’s own, ever, therefore she needs to undergo surgery to close it. Obviously I’m scared to death, but I know this is what is best for her and she will be just fine! She will be at one of the top rated children’s hospital in the country, so she’s in the best hands. But it’s still my tiny baby having open heart surgery. Just looking for some success stories and anyone with similar experiences. Thanks!
Post # 2
Well, I don’t know the details, but my stepdaughter had a hole in her heart as well. When she was about 6 years old she had to have it fixed. There was a lot of recovery (back then), but she’s now an adult with her own baby boy. So basically just sharing a success story and a glimpse into the future! It must be very scary for you as parents, I am sure!
Post # 3
My twin baby brothers were both born with holes in their heart, one closed up on its own and the other had to have open heart surgery to have it fixed. They are both happy, healthy (super active) 7 year olds.
I hope this helps.
Post # 4
My husband works in cardiac surgery and has been involved in many VSD pediatric cases. He has never told me of any babies that didn’t make it- and he’s operated on some tiny babies. Any surgery is scary, but this condition is not uncommon and it’s far better to fix a defect when a person is an infant than wait until they are older. Good luck and hugs… hope all goes well for you and your family
Post # 5
My SO had VSD and needed to have it surgically repaired as an infant. It was scary for his family, but he is perfectly normal now and does not have any restrictions or lasting effects (other than the scar, but it has faded and isn’t that noticeable). He’s a perfectly healthy and active man.
I hope your baby girl has a successful surgery and an easy recovery!
Post # 6
RedHeadKel: Excited To Bee: molokoa: serotonin:
Thank you all for your comments/well wishes! I’m trying to be as positive and optimistic as possible – the success rate is so high for these operations with almost zero side effects or issues after surgery, so I know she’ll be just fine. She’s super small (failure to thrive is a main side effect of VSD) so I can’t wait til the day when I can hold my chubby baby and fly through clothes and diapers sizes because she’s growing so quickly. It’s been a long rollercoaster of emotions these last 4 months, I feel relieved to have a plan and a light at the end of the tunnel. And look at this little face, you can’t help but smile and know she’s going to be fine!
Post # 7
I have a friend who had open heart surgery at a few monthes old for the same reason. He is over 30 and still brags about how he was a badass baby because of it.
Best wishes and speedy recovery to your daughter. She will have a great story when she is older!
Post # 8
That’s what my husband said, “She’ll have a great story to tell and a badass scar” Though I’m sure as a girl wanting to wear cute tops a scar on her chest won’t be the best thing, but hopefully it’ll mostly fade.
Post # 9
Your baby is beautIful!
thats what I was born with except I had five small holes in my heart, a leak in my pulmonary and aortic valve and a heart murmur. I did not have surgery to close them because mine were small enough that I just had to see a cardiologist every 6 months until I was about 24 years old, when they all closed on their own…Today they are all closed, I still have a small leak but nothing to be concerned about. I am a happy healthy 30 year old!
Post # 10
I’m happy to hear about the little one getting the surgery!! She’ll be fine, I promise you. 🙂
My Mum had a friend who was born with a hole in his heart. At 19/20 years old, he died from it. He was very healthy otherwise, but he died on the waiting lists for the medical procedure. He never recieved it. So, I’m glad she’ll be recieving it. I’m sure she’ll be just fine.
Post # 11
My Dad was born with a hole in his heart in 1950. Back then this was serious business and they told my grandmother he wouldn’t live to see 18.
But, in 1960, with new medical advances. .my Dad had open heart surgery to fix the hole.
Dad is 65 and very healthy. .. always active with karate and running..etc.
So…in 2016…and not to make light of your baby’s situation…but I’m sure that in this day and age it’s a very risk free surgery
On a side note, when we were small and asked Dad about his zipper Scar he told us that when he was a kid he swallowed a toy soldier and they had to cut him open to get it out…lol
But, today, there are all kinds of Scar revision procedures
Post # 12
I don’t have any experience with VSDs, but I just want to say your little girl is adorable. I know it must be scary, but this is not an uncommon surgery. Wishing you both good luck!
Post # 13
I was born with Atrial Septal Defect and had open heart surgery to repair it when I was four. I’m good as new now! And having a scar never bothered me. It’s always just been a part of me. VSD/ASD are easy repairs with great recovery stats. I know it’s so scary, but your little girl is going to be just fine! Sending hugs, mama.
Post # 14
One of my mom’s best friend’s son was born with a hole in his heart, and had to be operated on very soon after he was born. He’s a thriving 30 year old now!
My LO doesn’t have a hole in her heart, but she will have to have surgery for something else probably by the time she is 2. I know how scary it is to think about your baby being operated on and going under.
Post # 15
I was born with 3 holes in my heart and was on the list to have surgery twice as a kid. 2 of the holes closed by themselves over the years but one didn’t. It just got bigger and my heart got enlarged. So last year I had it closed. It was an ASD and luckily I didn’t need open heart surgery but they closed it through my groin. I have no problems now and my pregnancy is not too hard for my heart to handle. Good luck, I’m sure your beautiful baby will be just fine.