Post # 1
So, I just got diagnosed with “interstitial cystitis.” It’s a bladder prob which makes me feel like I have a UTI 24/7/365. Which, um, obviously doesn’t help things in the sack.
(I also have to give up coffee/chocolate/alcohol/spicy things, which is what my diet pretty much consists of right now!)
Hopefully some treatment will be coming soon and so things won’t hurt-like-hell each time.
Are there any other bees out there with chronic illnesses affecting their down there time? Any advice on how to cope? My husband has been wonderful and understanding, but it still sucks to deal with this as a newlywed.
Post # 3
Oh no I am so sorry to hear this! I don’t have any bladder issues, but my roommate in college did and I felt so terrible for her. This must be tough for you. I know one thing that helped her immensly was craberry extract that you can get from a health food store. You can get either drops or tablets and they were one of the only things that helped her cope…plus lots of advil! I hope this all is resolved for you soon. Sending you all my positive energy!
Post # 4
So sorry you have to deal with that. You mentioned a possible treatment…Do you think that this is something that can be managed or cured eventually? That sucks you have to cut out your fave things from your diet. But just think about how you should feel better!! I’m glad you have your husband to lean on for support. I hope you feel better soon.
Post # 5
I would definitely try drinking more water, and cranberry juice or tablets.
Post # 6
Cranberry juice is good for UTIs, but its one of the worst things for IC. :-/
There isn’t a cure, just lots of behavior management and diet change and I think some meds. So hopefully it can at least be controlled.
Thanks for the well wishes!
Post # 7
Well, hopefully you’ll get “used to” the diet changes soon. I know it must be hard to give up those things you love to eat/drink, but it’ll be worth it since you should feel better! Hang in there!
Post # 8
so sorry, i have a friend who has struggled with this for years. i know she relied on a lot of support websites (try googling) and she tried various diets with nutrionists. she also did acupuncture and a few alternative treatments. basically she’s tried a bunch of stuff to try to find what works for her. unfortunately, that’s all you can do. the good news is she’s now pregnant and it seems to have finally gotten better during the pregancy! something about all the hormones gave some relief.
Post # 9
My endometriosis causes dyspareunia and it’s not exactly fun. It’s a life issue for us and some days are good and some days are bad. We “deal” by not worrying about what we “should” be doing but by what works for us. it is what it is…can’t change it, just gotta roll with it. Sometimes trying to make things work causes more stress. So we just have a low key approach to that aspect of our relationship. Not working out that night? No biggie–we cuddle instead.
Maybe just work on the diet changes for now and take things one at a time. Trying to “fix” everything all at once is really stressful. Talk to your obgyn about how to relieve the pain, though–he/she may have some ideas up his/her shoulder. I know my current doctor has been able to suggest a few things to me that have worked out well–things all my other doctors have never suggested!
Post # 10
OH that sounds so tough, I’m sorry you are having to deal with that. I went through about a year phase where I was getting UTI’s over and over again and couldn’t figure out why. I can’t even imagine a lifetime of that. Stay strong!
Post # 11
Hope you feel better and that things work out well for you!
Post # 12
You don’t have to answer, but I thought I’d ask. (or anyone else who can relate!)
Do you ever feel guilty about not being able to have sex as much as other people? I know my husband is understanding, but I still want him to have the sex life he deserves!
Is it tough not to compare your sex life to others? It took me months of wondering what the big deal about sex was cause to me it was so blah due to the pain. I feel like our society worships sex so much, so its hard to admit that for me it ranges from miserable to okay. (Don’t get me wrong – I still love the connection part of it, I just never get that oh-my-gosh-best-thing-ever feeling). Sometimes I get sad when I’m watching TV and some about-to-be-divorced couple is complaining about how they only have sex once a week and I’m thinking…gosh, its been 2 since I’ve felt good enough…