Post # 1
Got some less-than-favorable news from my ob/gyn today. I’ve had abnormal paps since Fall 2011, including one colposcopy that showed ASCUS. I’ve been doing my regular 6 month paps, hoping to avoid another colpo, but they’ve all been abnormal. My most recent just came back, and the abnormality has now progressed to High-grade Squamous Intraepithelial Lesion (HSIL), showing moderate to severe dysplasia and carcinoma in situ.
My next step is to have a follow-up colpo as soon as possible, but I will have to find a new gyn first due to a move out east. I’m hopeful that I can avoid further interventions if at all possible due to fertility concerns, but I suppose that’s out of my hands now.
All well wishes are HIGHLY welcome, and stories from Bees who have had this result are worth their weight in gold.
Post # 3
@MissElizabeth: I’m sorry I’ve never been in this situation before, but your in my prayers! Best of luck to you! If you are going to the New England area Susan Simonoff teaches OB/GYN, used to practice, and would know some great referrals if you google her and give her a call or something!
Post # 4
- Wedding: February 2013 - Mansion House at the MD Zoo
I have a good friend who had a similar situation, had a colposcopy (sp?) and got pregnant successfully. No problems. It’s not ideal, but it’s not the end of the world, I promise. When you say ‘East’ where are you moving? I am sure there are other bees who have great GYNs to recommend. (I heart the docs at Mercy in Baltimore, if you’re moving here.)
Post # 5
I wish you the best in this time of uncertainty!
Reminds me I need to have a pap smear this year…
Post # 6
I was in a similar situation. I had HSIL lesions. It was quite shocking to me because I was only 23 and only started having sex (always protected, although with 2 different partners) at 20. I also had the HPV vaccine. It was quite upseting because the nurse who delievered the news to me told me I had ‘cancer’ accidentily.
Long story short, I DID NOT have cancer or even close. However, I was about to make an interstate move, and start grad school so I was quite worried about follow up treatement. Honestly, I found a new gyno fairly easily, had a colpo and later had a leep. Everyone told me the Leep would be the worst thing I ever experienced, but I didn’t think it was too bad. It was sort of like a bad period. (I did request a perscription strength pain killer.) At the time, it seemed like the worse thing that ever happened to me, but I healed up nicely.
The doctor says I should have no fertility problems, and I’ve had normal paps for two years. (My first two came back abnormal for Low grade squaemeous cells, but those cleared up on their own.) Since then I’ve tested negative for HPV and have had no further issues.
Don’t worry too much about having further intervention. One leep will not cause significant fertility problems, and there are less invasive procedures available depending on how far gone your HSIL is. You will be fine. Just do whatever is necessary to treat it now.
Best of luck!
Post # 7
- Wedding: November 2013 - St. Augustine Beach, FL
@MissElizabeth: Good luck. I was in the same boat earlier this year and ended up needing a LEEP procedure. Stay informed and ask about all treatment options and the pros and cons of each before making a decision. Absolutely stay on top of this though. No matter how much it stresses you out, the faster you get diagnosed and treated the better.
Post # 8
By out east I mean DC – I think I’ve located a good gynecologic oncologist, but all suggestions are welcome!!
We may as well be one in the same! I’m 23, had the full HPV vaccine series, and have always practiced safe sex. If my situation unfolds as yours did, I’ll be one happy camper – it’s super uplifting to hear everyone’s positive outcomes.
I scheduled an appointment next Wednesday for the colpo/biopsy – will update when I get results back. To all the Bees out there, get your paps religously!!
Post # 9
I had this and had to have a LEEP. All my paps since have been normal and am currently 18 weeks pregnant with no issues so far.
Post # 10
@MissElizabeth: sending you lots of well wishes!
I have had 2 LLETZ (or LEEP) procedures, both post-op followups, my GYN said there was no risk to my fertility. I have known of people who have had cone biopsies that were no threat to their fertility – they may just need a cervical suture if they do become pregnant.