(Closed) Bees with Interstitial Cystitis and/or Pelvic Floor Dysfunction?

posted 6 years ago in Wellness
Post # 3
Member
1235 posts
Bumble bee
  • Wedding: July 2012

@kkish3: My Fiance has IC..its really hard for him since his insurance doesnt cover physical therapy which is the only thing that has ever helped him, and he cant afford it. We are working out more now, and that seems to help, but he still has alot of trouble with his bladder (frequency, urgency).

Post # 5
Member
1572 posts
Bumble bee
  • Wedding: May 2013

I don’t have IC but I have had vaginismus and underwent pelvic floor physical therapy for about a year (I think a little less? After that, I took a few months off and have gone periodically since – not counting that in the year.). I’d say the original year or so of PT was the best thing. Not only did it help w/ the “tense-ness” but it helped me get more in tune w/ my body. As a result, I was able to realize that I tense up my body (not just my PC muscles) so much more than I pay attention to, as well as how to relax better. The PT made me feel like less of a freak and gave me hope (let me just say at its worst, a slim tampon would not have gone in). I still occasionally use my dialators, and I also still do some of my stretching exercises. I got back in to doing yoga, and when I realize I’m tensing my body or just my PC muscles, I do a few of the exercises. I also sometimes just massage my abdomen.

Post # 7
Member
1572 posts
Bumble bee
  • Wedding: May 2013

@kkish3: I don’t know if it would work for anyone else, so I’m not sure I can offer any advice on that. I do know that even if yoga hasn’t directly helped, it does help me relax so it benefits that way. Some stretches may be extremely beneficial. Before I was able to get into PT (the waiting list was several months long), a good friend of mine teaches yoga and is a massage therapist and showed me some stretches that have been helpful. I figure it’s worth a shot – there’s a bunch of yoga places near me that offer one free session or something of the like.

Post # 9
Member
1629 posts
Bumble bee
  • Wedding: February 2012

I’m undiagnosed but I do see a specialist and take medication! I have cut out caffeine, citrus fruit, and artificial sweeteners from my diet. It came on very suddenly for me and I have never done drugs or alcohol so it is a real mystery. The tests at the hospital are no fun! One thing that may have helped is working out… a lot. The thing that really sets me off is being on the bus, especially if I have to stand. I do go to the washroom before I leave anywhere, even if I don’t have to. Been okay for the last while, fingers crossed, maybe it’s getting better for good.

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