Big life decision that effects TTC

posted 2 years ago in TTC
Post # 2
Member
5003 posts
Bee Keeper
  • Wedding: October 2018

Is dropping to a lower dose of the meds an option? Maybe half-ish what you’re on now?

Post # 3
Member
480 posts
Helper bee
  • Wedding: City, State

I have a history of seizures and was on medication so I understand your dilemma here. I decided to try going off medication, with the full support of my doctor. However, I only had to go 6 months without driving (still very irritating in a regional area with very limited public transport), and my chances of being seizure free when I came off were higher than yours. My doctor was confident it would go well. Anyway, all went well (that was a few years ago) and I’m now 10 weeks pregnant.

I’m not sure about you, but even lowering the dose would have meant I wasn’t allowed to drive.

I think you need to decide which risks you’re happy to take, it is a very personal decision. I wish you all the very best with whatever you decide.

Post # 6
Member
480 posts
Helper bee
  • Wedding: City, State

mrsnitti17 :  thank you!

Which medication do you take? For what it’s worth, weaning off keppra was a good experience for me. I didn’t experience any weird effects. I did try to take really good care of myself and ensured I got plenty of sleep. I don’t know if that actually helps, but I was pretty scared that I might have a seizure so was willing to do anything!

Post # 7
Member
5003 posts
Bee Keeper
  • Wedding: October 2018

mrsnitti17 :  Ooh, not a good idea then. If it were me – and this is coming from someone who doesn’t take any regular medications, much less something like AEDs, so take it for what it’s worth – I’d probably stay on the meds and not delay TTC. 

What was your doctor’s opinion?

Post # 10
Member
492 posts
Helper bee
  • Wedding: November 2008

Have you consider adopting?

Post # 11
Member
950 posts
Busy bee
  • Wedding: December 2014

With such high odds of weaning off the meds not working. I would lean towards staying on them. 

Post # 12
Member
403 posts
Helper bee
  • Wedding: October 2013

mrsnitti17 :  Hi Bee! I also have epilepsy and we will be TTC in May. I have an army of doctors right now that are on board for when I get pregnant to monitor everything. Honestly, going off of your meds does not seem worth it at all. I will be staying on my medications and have been reassured by all my doctors that it is better to take the low chance of birth defects than the risks of what it could do to you. Having a seizure pregnant could do more harm, and the risks are so low now and days.

You are more than welcome to PM me if you’d like. Since we are TTC so soon, I have all this info on the top of my mind 🙂

Post # 13
Member
403 posts
Helper bee
  • Wedding: October 2013

Also, just saw you are on Keppra. According to my high risk counselor, Keppra is one of the safest medications to be on if you are pregnant. I am on Aptiom which isn’t as researched which is scarier for me, but I know that health wise, I need to remain stable.

Obviously, this is a very personal decision and its great you have been talking to your doctor already. Everyone is different just like all epilspy and triggers can be different. Do not feel guilty either way you go. I left a high risk appointment in tears the first time because the Doctor pretty much said if I stayed on my medication and something happened to my baby, it would make me a shitty person. She ended up getting fired and my neurologist was PISSED!

Post # 14
Member
370 posts
Helper bee

mrsnitti17 :  We cannot make the decision for you but I feel for you, this is a tough decision to make. I know its expensive but is surrogate or adoption and option? Personally, I don’t think I would want the risks associated with either option. :/ 3.5% is still low, I would consulate a high risk OB before making any decisions.

Post # 15
Member
654 posts
Busy bee
  • Wedding: October 2017

Is there any risk to the baby if you have seizures while pregnant? That may be something to consider if you decide to stop taking the meds. 

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