Post # 1
Hoping someone can help me out!
I have been on some version of a birth control pill for the last 10 or so years. About a year ago, I skipped a month due to a doctor’s error and developed terrible ovarian cysts. I went back on the pill and the cysts subsided.
Thing is, I HATE the pill. I hate the way it makes me feel. I have addressed my concerns with my gyn and asked her about switching to an IUD, and she said that switching from the pill would likely result in more cysts. I was thinking of the Mirena since is still has some hormones in it (the element that keeps the cysts at bay.) But I’m nervous due to the doctor’s predictions of cysts.
I can’t keep living my life on the pill, it is making me miserable. Do I have no other options but to be on the pill or face terrible cysts?
Any advice for a desperate bee?
Post # 2
what symptoms do you get from the cysts? I have PCOS and can live daily fine without worry.
I also hate the pill and don’t take it, but you just have to decide which is the lesser of two evils.
Post # 3
going2bmrsc : my cysts grow large & cause extreme pain. Last time I ended up in the ER.
How do you manage? I know PCOS is quite involved.
Post # 4
morethanyesterday : oh that’s awful 🙁
I was curious to see if you had lived with them at all, as just the name can sound terrifying I was so worried when I found out, then ended up only with a few of the crap symptoms, (terrible periods, cramps, burst cysts, body hair & headaches)
All of these I combat with medication/physio/chiropractor or laser hair removal ahaha
I know every form of contraception i’ve tried has only aggrivated my hormones or made me very very unwell.
i’m sorry i don’t have more help for you. sending positive vibes for an answer soon x
Post # 5
morethanyesterday : I’ve had two cysts burst on me. With the first one I had a dull ache for a few weeks and then woke up one morning in agony and was taken to emergency. My cyst had burst. The second time I had no symptoms leading up to the cyst rupture that it came as a shock I even had cyst. Thinking back on it, they both occurred after I had come off birth control!! Wow I totally never put that together until now!! I haven’t been on HBC in 8 years and I haven’t had a cyst or a rupture since.. I went off HBC because it was causing too many issues for me. It even caused problems with my eyes that my contacts wouldn’t fit properly 😕 We just use condoms now and I haven’t had cyst issues since.
TBH I don’t understand why your doctor won’t let you try going off your HBC for a longer period to see if the cyst was just a once off before recommending that you then go back on HBC. I’d bring that back up with her and say you’d like a few months to let your body regulate itself and then see if this is an issue to seriously consider. At the moment its just suspect and not a confirmed issue that you will continue to get large cysts if not on HBC. Test it out and evaluate from there. Good luck
Post # 6
I have issues with cysts and they were way worse when I was on Mirena, sadly. I had it taken out after just 3 years because I kept landing in the ER. I went on the pill after that, and while I don’t love the pill, I found a low hormone pill that worked for me. Once I went off of it and my husband and I were TTC, I struggled with cysts again. 🙁
I wish I had a magical answer for you, bee, but the pill was the only thing I found that worked for me, aside from the Nuvaring. With the Nuvaring, I developed bacterial infections. They felt a lot like yeast infections and were super gross, so that didn’t work for me long term, either.
Post # 7
morethanyesterday : Yep can confirm every time I come off the pill my cysts grow out of control. I’ve tried 3 times to come off it and each time I’ve had to go to the ER due to burst cysts. Haven’t found a solution yet sadly 🙁
Post # 8
Before I was married, my doctor put me on the pill for more than a decade solely to prevent ovarian cysts. It worked quite well to accomplish that goal. What I didn’t know is that the pill ended up feeding my fibroid tumors. Following a major surgery to remove more than a dozen tumors, I could no longer take the pill. Within a few years, I ended up with a number of huge (like 8-9 cm each) cysts and had to have two more major surgeries and a procedure to deal with them. Perhaps there is a different type of pill that won’t give you as many side effects?
Post # 9
The only reason I’m on the Pill is because it keeps me from having cysts. Darling Husband had a vasectomy 18 years ago (way before we met – he has two kids from his first marriage, as do I), so there’s little chance of me getting pregnant. Last time I came off the pull, I had bad cysts and couldn’t eat for 5 days bc of the discomfort. I’ve tossed around trying to come off the pill again, but it seems like a risk I can’t take (I’m self employed – I can’t afford all those sick days). So I continue on the pill. 😞
Post # 10
Thanks so much for sharing all of your different experiences.
It is helpful to read, but kind of backs up my claim that I’ll have to be on the pill forever! 🙁