- 5 years ago
- Wedding: May 2014
I just need some quick opinions here.
My mom has been diagnosed with MDS and Aplastic Anemia. She has been surviving off blood and platelet transfusions. Her immune system is VERY week and she has been hospitalized for nasty infections SEVERAL times over the past year. She has tried several treatments and non have worked. Her last resort was a bone marrow transplant. She is in the hospital now…she started chemo on Saturday March 9th and will have whole body radiation and the transplant on Friday March 15th.
After the transplant she will spend up to a month in the hospital. Following her release from the hospital she and my dad will be required to live for a month is hotel to be near her transplant hospital in case of emergencies. Insurance will not cover the stay at the hotel. As you can imagine a 30 day stay in a hotel will be quite expensive.
After they finally get to go home they will have to make frequent trips back to the transplant hospital (approx. 100 miles from home) for follow up appointments. The cost of this will also add up quickly.
The idea of throwing a benefit dinner with auction and raffle has been tossed around. The money from this benefit would be used to cover hotel costs and transportation costs. It would also be nice to have some extra money to have their house professionaly cleaned before her return to make sure it is as clean and germ/bacteria free as possible due to her extremely fragile immune system.
A few people are worried that this will seem tacky because insurance is covering all of her actual medical bills. (However, they did have to shell out about $1000 for at home IV antibiotics this past fall) They are worried that people will think it is greedy and it will upset people without insurance. I think this is RIDICULOUS!
Personally I don’t think anyone will feel that way. And I don’t care if they do. I want to do everything possible to ensure that my mom has a safe, healthy, and comfortable recovery. If that means raising money to relieve the stress of travel expenses, ensuring a safe and germ free environment, and making life more convenient and comfortable for my parents I don’t see anything wrong with that.
Am I wrong? How do you guys feel about this? Do you think it is acceptable to hold a fundraiser? Or is it tacky and greedy?
Also…She will not be allowed to clean with chemicals, dust, or vacuum for six months following the transplant. This is due to her weak immune system…these activities could introduce bacteria, fungus, and other nasty things to her compromised body. I would love to be able to provide money for them to get their house cleaned regularly. My dad has been amazing at taking over household chores (cleaning, cooking, shopping), but it is not a natural role for him. It is difficult and stressful. I feel he could be a better caregiver and provide better emotional support to her if he didn’t have to worry about these things as often.
I have moved my wedding date to next May to provide her with the time to get better and be an active part in the planning and celebrating. I want to do everything possible to help her get back to normal so she can enjoy life again.