(Closed) Brides with chronic illness/ailments – wedding day concerns!

posted 8 years ago in 30 Something
Post # 17
Member
411 posts
Helper bee
  • Wedding: May 2015 - Our church and then at The Garden Room for the reception

I feel your pain, I have IBS and lactose intolerance. To this day, I still do not know all of the triggers for the IBS. Some days are better than others, but I have to be careful about what I eat. I’ll probably have to drink a lot of water the week of the wedding, go easy on food, pack some meds for upset stomach, try to relax, and pray for the best. Try not to stress out too much about it; I’ve also found that it just seems to make the symptoms worse.

Post # 18
Member
1225 posts
Bumble bee
  • Wedding: September 2014

I’m sorry you are going through that! For much of my life I’ve had bad IBS and other digestive issues. It’s horrible to deal with. I feel preachy but below us what worked for me, especially FODMAP. Sorry if I’m saying stuff you already know.

Which probiotics do you take? My really good Gastro doc told me Align were the best – developped by GI docs and double-blind testunh has shown they actually cause physical changes to the gut which relieves IBS (it closes space between the cells which hold inflammation in IBS) I’d also encourage you to look into the FODMAP diet, it is the the best/most up-to-date method for IBS. The traditional IBS diet did nothing for me, but low-FODMAP has really helped.

i have my digestive issues well managed these days, but I have chronic pain issues. Check out the website offbeat bride. They have lots if articles and essays on dealing with disabilities on your wedding day. I think there were some from people with inflammatory bowel disease, so some digestive stuff.

Post # 19
Member
7550 posts
Bumble Beekeeper
  • Wedding: April 2019

I am sorry that you’re going through this, can a doctor give you something that you can take on the day if your symptoms appear? Otherwise get as much help as you can and try to relax as much as possible!

I don’t know if what I have is chronic technically, but I have had it for a long time and there is a good chance I will have it for the rest of my life. Nearly two years ago I was diagnosed with major depression, had to stop university and work for a while. Then I went back for a few months, then in March 2013 got diagnosed with Bipolar Disorder and Anxiety. Again stopped work and university, and haven’t been back.

Originally planned on a 3.5 year engagement (got engaged January 2012 – so nearly two years ago) so I could finish university, we could move out and live together for six months or a year before getting married. I had tried on one dress, mentally figured out the guest list, knew the ceremony venue, thought of a reception venue, asked the bridal party, picked the colours and the theme. Then the second diagnosis put all of that on hold. I don’t even know when the wedding will be at this point, the date next to my name is one we chose before either diagnosis.

And I am concerned that I will have a severe panic attack in the days leading up to or on the day of the wedding. I have slightly shaking hands because of my medication, but there have been times when it has been full on shaking all over. I don’t want that to happen on my wedding day. I am scared of saying something stupid, I am worried that he will change his mind because of all this illness stuff he has had to deal with. I am worried that I won’t be able to mentally cope with the stress of the long wedding day.

But the biggest thing is that we can’t set an official date yet, not until my university and work stuff is sorted and we are able to financially move out of home.

Sorry for the long rant, this is just an issue close to my heart!

Post # 22
Member
1019 posts
Bumble bee
  • Wedding: August 2015

I have fibromyalgia/chronic myofascial pain/inflamed trigger points/migraines… basically my muscles are completely screwed up for no apparent reason and it causes me to be in severe pain every day.  I ended up getting a collapsed lung from the one treatment that really helped (trigger point injections), so now I’m back to square one.  I have muscle relaxers and pain killers, but I want to avoid taking them on my wedding day so I can be fully present.  I’m definitely worried that I will have a really bad pain day or a migraine the day of my wedding.  I’m going to try to take a few days off from work in the days leading up to my wedding to rest and keep the stress down.

I actually have my first appointment with a new physical therapist/physiatrist today, and I’m hopeful we can work out a plan to reduce my pain long-term.

Post # 24
Member
1243 posts
Bumble bee
  • Wedding: May 2014

@BurlapnLace:  Oh no…I hope that the doctors can figure it out!  I have bad nerve damage in my arm left from a bad car accident I was in a few years ago.  I get nerve blocking shots to help with the pain every 4 months…and hopefully my next one will be in April..just a few weeks before the wedding.  I’m pretty used to the constant pain…and I will probably have some pain killers on hand just in case but the thing that worries me most is that someone is going to grab my arm 🙁  Especially with everyone wanting to hug us…I’m terrified someone will grab the wrong spot on my arm and I will be in extreme pain.  I’d kinda prefer not to wrap my arm so the ugly wrap isn’t in all my pictures…but even with the wrap on and some protection to my arm people grab me and its painful…so if they end up grabbing the wrong spot on my arm..it could end not well.  I still have 4 more months…so i’m just gonna keep hoping to be completely healed by then. LOL nothing like unrealistic expectations..but it makes me feel better! 😉

 

Post # 25
Member
295 posts
Helper bee

Yes, I have a host of autoimmune issues, and these fears plague me CONSTANTLY. We’re going to just try to keep it as simple and stress free as possible, and hope for the best.

Post # 26
Member
3263 posts
Sugar bee
  • Wedding: April 2014

I have Crohn’s and Fiance has IBS. To say we both are concerned about bathroom issues on the day is an understatement! Fortunately for me, as long as I’m strict about eating right (no dairy, no gluten, low sugar) I should be fine, but he is always a toss up. Having said that, if I have to GO, then I HAVE to go and there’s no way I’m going with my bridesmaids holding my dress up, so that’s something I need to figure out…. I’m hoping I’ll be able to go earlier in the day and will make it through the night without it. I am planning to do a dress change at some point into a regular party dress so if I guess if I have to change out of my gown earlier, then so be it.

Post # 27
Member
28 posts
Newbee
  • Wedding: September 2014

@BurlapnLace:  I am sorry to hear about this. Can totally relate as I too started with unusual symptoms of severe bloating almost a year ago. I’ve seen several doctors regarding and no one seems to know why (so frustrating). I also have endometriosis but have had that for my entire adult life. Went as far as to change my diet to vegan and eliminate all gluten too. What DOES seem to help is daily peppermint tea and staying away from all hiden sources of lactose. (Super lactose intolerant) As a back up, I’m planning to go with a flowy -in- the- front dress and not plan the wedding near my period.

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