(Closed) Calling All Celiac Bees!

posted 5 years ago in Wellness
Post # 3
Member
10571 posts
Sugar Beekeeper
  • Wedding: January 2011

Why are you just having bloodwork done?  That’s usually the first place to start, but to get a true diagnosis you need to have a biopsy.

Post # 5
Member
10571 posts
Sugar Beekeeper
  • Wedding: January 2011

@LoggerHead91207:  Ok, that makes sense.  Your OP only mentions getting more bloodwork done.

I know someone who had the biopsy and isn’t Celiac.  She has some problems with wheat, but is still able to eat a piece of bread every day.  Just not 2 Smile

Post # 6
Member
3720 posts
Sugar bee
  • Wedding: July 2013

@LoggerHead91207: 

Okay, so a few things:

 

1) For celiac testing to work you need to be eating a lot of gluten for a long time (I was told 2-3 slices of bread a day for a month). Without enough gluten you will get a false negative  My testing came out as a negative because I stopped eating bread (before I had heard of celiac) because it made me sick.

 

2) Going off gluten normally takes 2-3 weeks to see some improvement and 12+ to feel better. So please, give it time and take baby steps.

 

3) Many pre-packaged gluten free foods are full of empty calories (and really high in calories) and taste like cardboard (at best). I try to avoid all of them.

 

4) You will have 2-6 months of withdrawals. They will suck. I would cry over pizza. Be strong, you will survive, but it is serious withdrawal.

 

What I eat:

 

Breakfast– Rice Chexs with raisins and milk, greek yogurt (not dannon), eggs, and larabars

 

Lunch/dinner– lots of frozen veggies, beans, cheese, rice pasta (trader joes has the best value and Tinkyada is also very good), sweet potatoes, grilled meat.

 

Pretty much everything on the outside of the grocery store is safe and the aisles are off limits. Dairy, veggies, fruit, meat, rice, beans, and corn tortillas are safe bets. McCormick spices are safe.

 

When you are craving crap, Bob’s Red Mill makes a great pizza crust and Betty Crocker’s gluten free brownies and cookies are quite good.

 

For eating out: bunless burgers, steaks, grilled fish, baked potatoes, veggies, croutonless salads, and eggs go a long way. In a pinch, Cheetos, snickers, and nuts can make a meal at a gas station. Wendy’s chili, baked potato, salads, and fries are great for traveling. Starbucks lattes also get calories and McDonald’s smoothies aren’t horrible. A lot of Mexican (except for flour tortillas  is safe and Thai and Indian curries have always been fine for me (avoid the nann). Domino’s has a gluten free pizza (some risk of cross contamination, but I haven’t gotten too sick off of it) and Outback, PF Changs, Olive Garden, and Romano’s Macaroni grill have Girlfriend menus.

 

If you have any questions, please feel free to ask. I’ve had it for 5 years.

 

 

 

 

 

 

Post # 8
Member
10571 posts
Sugar Beekeeper
  • Wedding: January 2011

@LoggerHead91207:  I think it’s something else in the wheat and not the gluten itself in her case.  Just something to consider as well!  Some people can’t eat wheat, but they can eat rye and other things that still have gluten.

The topic ‘Calling All Celiac Bees!’ is closed to new replies.

Find Amazing Vendors